Sexuality and Citizenship for People with Intellectual Disabilities in Lifelong Family Care: Reflections from a South African Setting
This chapter is concerned with how family caregivers respond to the sexuality of their adult children with intellectual disability (ID) in the context of the provision of lifelong care. We note that families receive little support in their caring task and that their responses, arising from the responsibility that they feel to protect their seemingly vulnerable disabled family member, are to contain sexuality and to limit or forbid sexual expression. This curtails the sexual rights and full citizenship of adults with ID and raises questions as to how these rights could be addressed with due consideration for the family’s needs. We suggest that the relationship between caregiver and the disabled family member should be the central focus of this discussion within a feminist ethics of care.
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