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Breathe Easy: Digital Stories About COPD

  • Matthew Hodson
Chapter

Abstract

Dr Hodson offers a powerful insight into the untold stories about living with Chronic Obstructive Pulmonary Disease (COPD), a chronic lung condition that causes symptoms of breathlessness and coughing which impact on daily activities such as walking and gardening. Dr Hodson explains why capturing these untold stories is so important and why there is greater emphasis on ensuring people who use NHS services should be at the heart of decision-making in our modern health service. Dr Hodson discusses the process and outcome of creating Patient Voices stories as they bring to life the experience of people living with COPD, including their engagement with pulmonary rehabilitation and ACERS, concluding with a number of valuable learning points.

The stories created as part of this project can be viewed on the Patient Voices website at http://www.patientvoices.org.uk/easybreathing.htm.

References

  1. Alexander, P. (2012). Just around the corner. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0606pv384.htm
  2. Cummings, J. (2012). Compassion in practice. Nursing, midwifery and care staff, our vision and strategy. London: Department of Health.Google Scholar
  3. Durkin, M. (2012). The eleventh hour. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0605pv384.htm Google Scholar
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  5. Graham, L. (2012). Making a difference. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0602pv384.htm
  6. Hamblin, A. (2012). Coming out. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0603pv384.htm
  7. Hodson, M. (2012). Small impact, big difference. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0601pv384.htm
  8. NICE. (2010). Chronic obstructive pulmonary disease: Management of chronic obstructive pulmonary disease in adults in primary and secondary care (partial update). NICE guidelines. National Institute for Health and Care Excellence, London.Google Scholar
  9. Simons, J. (2010). Breathless. Pilgrim Projects. Retrieved May 2017, from http://www.patientvoices.org.uk/flv/0447pv384.htm

Copyright information

© The Author(s) 2018

Authors and Affiliations

  • Matthew Hodson
    • 1
  1. 1.Homerton HospitalLondonUK

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