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Pilgrims’ Progress

  • Pip Hardy
Chapter

Abstract

Hardy continues the history of the Patient Voices Programme from 2004 to 2010. After addressing some of the challenges faced by the new programme, including ethical issues, use of appropriate terminology, the need for research and difficulties in disseminating the work of Patient Voices, the author details the consolidation of the programme, highlighting some of the key projects that revealed the breadth of use of digital storytelling in healthcare, across education, patient engagement, service improvement and research. Meanwhile, Patient Voices expanded its network of friends and collaborators, undertaking work internationally and joyfully accepting the British Medical Journal’s 2010 award for Excellence in Healthcare Education. Regular supervision was identified as essential to maintain the mental health, well-being and emotional safety of digital storytelling facilitators.

References

  1. Anderson, E. S., & Lennox, A. (2009). The Leicester model of interprofessional education: Developing, delivering and learning from student voices for 10 years. Journal of Interprofessional Care, 23(6), 557–573.CrossRefGoogle Scholar
  2. Bailey-Dering, J. (2007). Getting to the bottom of things. Pilgrim Projects Limited. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0110pv384.htm
  3. BMJ. (2010). Patient Voices: Excellence in healthcare education 2010 winners. British Medical Association. Retrieved 2012, from http://groupawards.bmj.com/excellence-in-healthcare-education-2010-winners
  4. Gandhi, M. (1869–1948). Source of quote unknown.Google Scholar
  5. Hardy, P. (2004). Patient Voices: The rationale. Pilgrim Projects. Retrieved from http://www.patientvoices.org.uk/about.htm
  6. Hardy, P. (2007). An investigation into the application of the Patient Voices digital stories in healthcare education: Quality of learning, policy impact and practice-based value. MSc dissertation, University of Ulster, Belfast.Google Scholar
  7. Hardy, P. (2015). First do no harm: Developing an ethical process of consent and release for digital storytelling in healthcare. Seminarnet: Media, Technology & Life-Long Learning, 11(3).Google Scholar
  8. Hardy, P., & Jaynes, C. (2011). Editorial: Finding the voices for quality and safety in healthcare: The never-ending story. Journal of Clinical Nursing, 20(7–8), 1069–1071. doi:10.1111/j.1365-2702.2010.03539.x.CrossRefGoogle Scholar
  9. Hardy, P., & Stanton, P. (2007). E-health connections nursing workshop: Connecting to the future. Pilgrim Projects.Google Scholar
  10. Lambert, J. (2002). Digital storytelling: Capturing lives, creating community (1st ed.). Berkeley, CA: Digital Diner Press.Google Scholar
  11. Mauchland, B. (2006). Jimmy’s story. Pilgrim Projects Limited. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0047pv384.htm
  12. McGlinchy, Y. (2006). For the love of Lee. Pilgrim Projects Limited. Retrieved March 2014, from http://www.patientvoices.org.uk/flv/0054pv384.htm
  13. Page, B. (2004). What they really really want. Health Service Journal, 114(5900), 16–19.Google Scholar
  14. Patient Voices. (2006a). Stories from the NHS Heart Improvement Programme. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/hip.htm
  15. Patient Voices. (2006b). Stories from the North and East Yorkshire and Northern Lincolnshire Strategic Health Authority (NEYNL). Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/neynl.htm
  16. Patient Voices. (2006c). Stories from the Working in Partnership Programme (WiPP). Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/wipp.htm
  17. Patient Voices. (2008a). Communities of Health: Stories from NHS Newham. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/newham.htm
  18. Patient Voices. (2008b). Healing journeys. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/shu.htm
  19. Patient Voices. (2008c). Stories from junior doctors in training. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/lssc.htm
  20. Patient Voices. (2009a). End of life care. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/naoeol.htm
  21. Patient Voices. (2009b). Stories from the Isle of Wight Stroke Club. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/iowsc.htm
  22. Patient Voices. (2009c). Stories of inter-professional working from the University of Nottingham. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/unip.htm
  23. Patient Voices. (2009d). Work in progress. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/exdra.htm
  24. Patient Voices. (2010a). After the fires. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/bchs.htm
  25. Patient Voices. (2010b). Stories from the National Patient Safety Agency. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/npsa.htm
  26. Patient Voices. (2010c). Stories of recovery from La Trobe University. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/latrobe.htm
  27. Patient Voices. (2010d). Telehealth stories. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/telehealth.htm
  28. Patient Voices and StoryCenter. (2008). Stories from the Saskatoon health region live well™ with chronic conditions program for aboriginal people. Pilgrim Projects Ltd. Retrieved May 2017, from http://www.patientvoices.org.uk/sask.htm
  29. Sackett, D. L. (1997). Evidence-based medicine. In Seminars in perinatology (Vol. 1, pp. 3–5). Elsevier.Google Scholar
  30. Sumner, T. (2009a). Inspiring innovation through Patient Voices: Presentation at innovation expo. London: Edexcel London.Google Scholar
  31. Sumner, T. (2009b). The power of e-flection: Using digital storytelling to facilitate reflective assessment of junior doctors’ experiences in training. Paper presented at the learning for a complex world, University of Surrey, 31 March 2009.Google Scholar
  32. Wikipedia. (2013a). Evidence based medicine. Wikipedia. Retrieved from http://en.wikipedia.org/wiki/Evidence-based_medicine
  33. Wikipedia. (2013b). Hierarchy of evidence. Wikipedia. Retrieved from http://en.wikipedia.org/wiki/Hierarchy_of_evidence
  34. Winterson, J. (2007). The stone gods. London: Hamish Hamilton.Google Scholar

Copyright information

© The Author(s) 2018

Authors and Affiliations

  • Pip Hardy
    • 1
  1. 1.Patient Voices ProgrammePilgrim Projects LimitedLandbeachUK

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