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Digital Storytelling and Dementia

  • Elly Park
  • Hollis Owens
  • David Kaufman
  • Lili Liu
Conference paper
Part of the Lecture Notes in Computer Science book series (LNCS, volume 10298)

Abstract

Digital storytelling is a form of narrative that creates short films using media technology such as downloading still photos, sound, music, and videos. Past research has indicated benefits of storytelling for persons with dementia to include enhanced relationships and communication. The purpose of this research was to explore and understand digital storytelling as perceived and experienced by the storytellers themselves.

Using a multi-site case study design, the study was conducted in Edmonton, and will continue in Vancouver and Toronto. This paper presents preliminary data collected in Edmonton, the first site to commence. The study involved participants with dementia in a seven-session workshop over the period of six weeks, where they created digital stories with the help of researchers and care partners. Participants then discussed the experience of meeting with researchers, sharing stories and using technology including digital media. Lastly, there was an opportunity for participants to share their digital stories with loved ones and the public.

Data was collected through observational field notes and audio recorded workshop sessions and interviews. The recordings were transcribed and analyzed using NVivo 10 software and using a thematic analysis protocol.

Findings showed that overall participants enjoyed the process of creating digital stories, despite some challenges with communication, memory and using technology. Findings also provided insight into the best practices for a digital storytelling workshop as expressed by the storytellers with dementia. Digital storytelling has the potential for persons with dementia to share and preserve stories in a meaningful and rewarding way.

Keywords

Digital storytelling Persons with dementia Qualitative research 

References

  1. 1.
    Chambers, L.W., Bancej, C., McDowell, I.: Prevalence and monetary costs of dementia in Canada: population health expert panel. Alzheimer Society of Canada (2016)Google Scholar
  2. 2.
    Alm, N., Dye, R., Gowans, G., Campbell, J., Astell, A., Ellis, M.A.: Communication support system for older people with dementia. Computer 40, 35–41 (2007)CrossRefGoogle Scholar
  3. 3.
    Gray, B., Young, A., Blomfield, T.: Altered lives: assessing the effectiveness of digital storytelling as a form of communication design. Continuum 29(4), 635–649 (2015). doi: 10.1080/10304312.2015.1025359 CrossRefGoogle Scholar
  4. 4.
    Frank, A.: The Wounded Storyteller: Body, Illness, Ethics. University of Chicago Press, Chicago (1995)CrossRefGoogle Scholar
  5. 5.
    Capstick, A., Ludwin, K., Chatwin, J., Walters, E.R.: Participatory video and well-being in long-term care. J. Dement. Care 24(1), 26–29 (2016)Google Scholar
  6. 6.
    Massimi, M., Berry, E., Browne, G., Smyth, G., Watson, P., Baecker, R.M.: An exploratory case study of the impact of ambient biographical displays on identity in a patient with Alzheimer’s disease. Neuropsychological Rehabil. 18, 742–765 (2008). doi: 10.1080/09602010802130924 CrossRefGoogle Scholar
  7. 7.
    Stenhouse, R., Tait, J., Hardy, P., Sumner, T.: Dangling conversations: reflections on the process of creating digital stories during a workshop with people with early-stage dementia. J. Psychiatr. Ment. Health Nurs. 20, 134–141 (2013). doi: 10.1111/j.1365-2850.2012.01900.x CrossRefGoogle Scholar
  8. 8.
    Crete-Nishihata, M., Baecker, R.M., Massimi, M., et al.: Reconstructing the past: personal memory technologies are not just personal and not just for memory. Hum. Comput. Interact. 27, 92–123 (2012). doi: 10.1080/07370024.2012.656062 Google Scholar
  9. 9.
    Savundranayagam, M.Y., Dilley, L.J., Basting, A.: StoryCorps’ memory loss initiative: enhancing personhood for storytellers with memory loss. Dementia 10, 415–433 (2011). doi: 10.1177/1471301211408123 CrossRefGoogle Scholar
  10. 10.
    Rule, L.: Digital storytelling has never been so easy or so powerful. Knowl. Quest 38(4), 56–57 (2010)Google Scholar
  11. 11.
    Rossiter, M., Garcia, P.A.: Digital storytelling: a new player on the narrative field. New Dir. Adult Continuing Educ. 126, 37–48 (2010)CrossRefGoogle Scholar
  12. 12.
    Nygård, L., Starkhammar, S.: The use of everyday technology by people with dementia living alone: mapping out the difficulties. Aging Ment. Health 11, 144–155 (2007)CrossRefGoogle Scholar
  13. 13.
    Hausknecht, S., Vanchu-Orosco, M., Kaufman, D.: Sharing life stories: design and evaluation of a digital storytelling workshop for older adults (2016). Manuscript submitted for publicationGoogle Scholar
  14. 14.
    Hausknecht, S., Kaufman, D., Vanchu-Orosco, M. (n.d.): Digitizing the wisdom of our elders: Connecting life learning through digital storytelling. Manuscript in preparationGoogle Scholar
  15. 15.
    Bruner, J.: Making Stories: Law, Literature, Life. Farrar, Straus and Giroux, New York (2002)Google Scholar
  16. 16.
    Baxter, P., Jack, S.: Qualitative case study methodology: study design and implementation for novice researchers. Qual. Rep. 13(4), 544–559 (2008)Google Scholar
  17. 17.
    Stake, R.E.: The Art of Case Study Research. Sage Publications, New York (1995)Google Scholar
  18. 18.
    Yin, R.K.: The case study crisis: some answers. Adm. Sci. Q. 26, 58–65 (1981)CrossRefGoogle Scholar
  19. 19.
    Hancock, D.R., Algozzine, B.: Doing Case Study Research: A Practical Guide for Beginning Researchers. Teachers College Press, New York (2015)Google Scholar
  20. 20.
    Molloy, D.W., Standish, T.I.: A guide to the standardized Mini-Mental State Examination. Int. Psychogeriatr. 9(1), 87–94 (1997)CrossRefGoogle Scholar
  21. 21.
    Mitchell, Alex J.: The Mini-Mental State Examination (MMSE): update on its diagnostic accuracy and clinical utility for cognitive disorders. In: Larner, A.J. (ed.) Cognitive Screening Instruments, pp. 37–48. Springer, Cham (2017). doi: 10.1007/978-3-319-44775-9_3 CrossRefGoogle Scholar
  22. 22.
    Perneczky, R., Wagenpfeil, S., Komossa, K., Grimmer, T., Diehl, J., Kurz, A.: Mapping scores onto stages: mini-mental state examination and clinical dementia rating. American J. Geriatr. Psychiatry 14(2), 139–144 (2006)CrossRefGoogle Scholar
  23. 23.
    Braun, V., Clarke, V.: Using thematic analysis in psychology. Qual. Res. Psychol. 3, 77–101 (2006)CrossRefGoogle Scholar

Copyright information

© Springer International Publishing AG 2017

Authors and Affiliations

  • Elly Park
    • 1
  • Hollis Owens
    • 2
  • David Kaufman
    • 2
  • Lili Liu
    • 1
  1. 1.Department of Occupational TherapyUniversity of AlbertaEdmontonCanada
  2. 2.Faculty of EducationSimon Fraser UniversityBurnabyCanada

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