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Impact of Childhood Glaucoma and Glaucoma Surgery on Quality of Life

  • Shveta Bali
  • Tanuj Dada
Chapter

Abstract

There has been a fundamental shift in pediatric medicine toward patient- and family-centered care to develop collaborative partnership between patients, families, and their health-care providers. Literature, albeit limited, shows that childhood glaucoma has a significant negative effect on quality of life (QoL) of affected children. As the affected children are usually younger and require intensive long-term medical care with frequent interventions and follow-up, this may lead to significant stress in the personnel responsible for primary caregiving to these young individuals (parents or caregivers). Surgical intervention for childhood glaucoma has been found to improve the QoL of affected children and their caregivers. However, there is an unmet need to develop glaucoma-specific child-reported outcome questionnaires and to develop large studies with robust methodology which include QoL measures to help identify and further understand this pertinent aspect for holistic management of this sight-threatening condition. In the management of childhood glaucoma, ophthalmologists need to incorporate QoL tools to investigate and better understand the psychological effects in both the affected population and their caregivers. There is also a need to adapt and offer various psychological therapeutic measures to the affected population to help them cope with an important but relatively overlooked facet of this vision-threatening illness.

Keywords

Quality of life Childhood glaucoma Caregiver stress Caregiver burden Patient-reported outcomes Mindfulness Functional vision 

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Copyright information

© Springer Nature Switzerland AG 2018

Authors and Affiliations

  • Shveta Bali
    • 1
  • Tanuj Dada
    • 2
  1. 1.Department of OphthalmologyThe Ottawa Hospital, University of OttawaOttawaCanada
  2. 2.Glaucoma Services, Department of OphthalmologyDr. Rajendra Prasad Centre for Ophthalmic Sciences, All India Institute of Medical SciencesNew DelhiIndia

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