The Definition and Use of Personas in the Design of Technologies for Informal Caregivers

  • Susanne Hensely-Schinkinger
  • Aparecido Fabiano Pinatti de Carvalho
  • Michael Glanznig
  • Hilda Tellioğlu
Conference paper
Part of the Lecture Notes in Computer Science book series (LNCS, volume 9169)

Abstract

This paper refers to the significance of defining and using personas for the design and development of technological solutions for informal care. It not only argues for the importance of carefully defining personas, but also discusses the influence that personas exert in the design decisions made throughout the process. We illustrate these two aspects with empirical results gathered in the project TOPIC – The Online Platform for Informal Caregivers – in which a series of online technological solutions are being designed and developed to integrate a CarePortfolio to provide caregivers with emotional, informational and tangible support, as they go on to handle their care responsibilities.

Keywords

Personas User-centered design Informal care Ethnographic study 

References

  1. 1.
    UNFPA.: Ageing in the Twenty-First Century: A celebration and A challenge. United Nations Population Fund (UNFPA), New York (2012)Google Scholar
  2. 2.
    Brouwer, W.B.F., van Exel, N.J.A., van de Berg, B., Dinant, H.J., Koopmanschap, M.A., van den Bos, G.A.M.: Burden of caregiving: evidence of objective burden, subjective burden, and quality of life impacts on informal caregivers of patients with rheumatoid arthritis. Arthritis Care Res. 51(4), 570–577 (2004)CrossRefGoogle Scholar
  3. 3.
    Chwalisz, K., Kisler, V.: Perceive stress: a better measure of carer burden. Measur. Eval. Couns. Dev. 28, 88–98 (1995)Google Scholar
  4. 4.
    Schneider, U., Trukeschitz, B., Mühlmann, R., Jung, R., Ponocny, I., Katzlinger, M., Österle, A.: Wiener Studie zur informellen Pflege und Betreuung älterer Menschen 2008 (Vienna Informal Carer Study - VIC2008) Wirtschaftsuniversität Wien, Forschungsinstitut für Altersökonomie, p. 98 (2009)Google Scholar
  5. 5.
    Coon, D., Evans, B.: Empirically based treatments for family carers distress: what works and where do we go from hear. Geriatr. Nurs. 30(6), 426–436 (2009)CrossRefGoogle Scholar
  6. 6.
    Emlet, C.A.: Assessing the informal caregiver: Team member or hidden patient? Home Care Provid. 1(5), 8 (1996)CrossRefGoogle Scholar
  7. 7.
    Chen, Y., Ngo, V., Park, S.Y.: Caring for caregivers: designing for integrality. In: Proceedings of the 2013 conference on Computer supported cooperative work, San Antonio, Texas, USA, pp. 91–102. ACMGoogle Scholar
  8. 8.
    Breskovic, I., de Carvalho, A.F.P., Schinkinger, S, Tellioğlu, H.: Social awareness support for meeting informal carers’ needs: early development in TOPIC. In: Adjunct Proceedings of the 13th European Conference on Computer Supported Cooperative Work (ECSCW 2013), Paphos, Cyprus. Department of Computer Science Aarhus University, Aarhus, Denmark, pp. 3–8 (2013)Google Scholar
  9. 9.
    Schinkinger, S., de Carvalho, A.F.P., Breskovic, I., Tellioğlu, H.: Exploring social support needs of informal caregivers. In: CSCW 2014 Workshop on Collaboration and Coordination in the Context of Informal Care (CCCiC 2014), Baltimore, MD, USA, February 15, 2014. TU-Wien, pp. 29–37 (2014)Google Scholar
  10. 10.
    LeRouge, C., Ma, J., Sneha, S., Tolle, K.: User profiles and personas in the design and development of consumer health technologies. Int. J. Med. Inform. 82(11), 18 (2013)CrossRefGoogle Scholar
  11. 11.
    Cooper, A., Reimann, R., Cronin, D.: About Face 3: The Essentials of Interaction Design, 3rd edn. Wiley, USA (2007)Google Scholar
  12. 12.
    Moser, C., Fuchsberger, V., Neureiter, K., Sellner, W., Tscheligi, M.: Revisiting personas: the making-of for special user groups. In: CHI 2012 Extended Abstracts on Human Factors in Computing Systems Austin, Texas, USA, pp.453–468. ACM (2012)Google Scholar
  13. 13.
    CURE 2011: Results of Multivariate Analysis and CURE-Elderly-persona. Project DeliverableGoogle Scholar
  14. 14.
    Pruitt, J., Grudin, J.: Personas: practice and theory. In: DUX 2003 - Designing for User Experiences, p. 1–15. ACM (2003)Google Scholar
  15. 15.
    Bredies, K.: Using system analysis and personas for e-Health interaction design. In: Undisciplined Design Research Society Conference 2008, Sheffield Hallam University, Sheffield, UK (2009)Google Scholar
  16. 16.
    Benyon, D.: Designing Interactive Systems: A Comprehensive Guide to HCI and Interaction Design, 2nd edn, p. 712. Addison Wesley, USA (2010)Google Scholar
  17. 17.
    Klaver, C.C.W., Wolfs, R.C.W., Vingerling, J.R., Hofman, A., de Jong, P.T.V.M.: Age-specific prevalence and causes of blindness and visual impairment in an older population. Arch. Ophthalmol. 116(5), 6 (1998)CrossRefGoogle Scholar
  18. 18.
    Burmedi, D., Becker, S., Heyl, V., Wahl, H.-W., Himmelsbach, I.: Behavioral consequences of age-related low vision. Vis. Impair. Res. 4(1), 30 (2002)Google Scholar
  19. 19.
    Picking, R., Robinet, A., Grout, V., McGinn, J., Roy, A., Ellis, S., Oram, D.: A case study using a methodological approach to developing user interfaces for elderly and disabled people. Comput. J. 53(6), 842–859 (2010)CrossRefGoogle Scholar
  20. 20.
    del Río-Lozano, M., del Mar García-Calvente, M., Marcos-Marcos, J., Entrena-Durán, F., Maroto-Navarro, G.: Gender identity in informal care impact on health in spannish caregivers. Qual. Health Res. 23(11), 1506–1520 (2013)CrossRefGoogle Scholar
  21. 21.
    Chepngeno-Langat, G., Madise, N., Evandrou, M., Falkingham, J.: Gender differentials on the health consequences of caregiving people with AIDS-related illness among older informal carers in two slums in Nairobi, Kenya. AIDS Care 23(12), 1586–1594 (2011)CrossRefGoogle Scholar
  22. 22.
    Iezzoni, L.I., McCarthy, E.P., Davis, R.B., Siebens, H.: Mobility difficulties are not only a problem of old age. J. Gen. Intern. Med. 16(4), 9 (2001)CrossRefGoogle Scholar
  23. 23.
    Neal, M.B., Ingersoll-Dayton, B., Starrels, M.E.: Gender and relationship differences in caregiving patterns and consequences among employed caregivers. Gerontol. 37(6), 13 (1997)CrossRefGoogle Scholar
  24. 24.
    Robison, J., Fortinsky, R., Kleppinger, A., Shugrue, N., Porter, M.: A broader view of family caregiving: effects of caregiving and caregiver conditions on depressive symptoms, health, work, and social isolation. J. Gerontol.: Soc. Sci. 64B(6), 788–798 (2009)CrossRefGoogle Scholar
  25. 25.
    White, H., McConnell, E., Clipp, E., Bynum, L., Teague, C., Navas, L., Craven, S., Halbrecht, H.: Surfing the net in later life: a review of the literature and pilot study of computer use and quality of life. J. Appl. Gerontol. 18, 21 (1999)CrossRefGoogle Scholar

Copyright information

© Springer International Publishing Switzerland 2015

Authors and Affiliations

  • Susanne Hensely-Schinkinger
    • 1
  • Aparecido Fabiano Pinatti de Carvalho
    • 1
  • Michael Glanznig
    • 1
  • Hilda Tellioğlu
    • 1
  1. 1.Multidisciplinary Design GroupVienna University of TechnologyViennaAustria

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