Citizen Involvement: What Does It Mean?
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In this chapter we address issues around patient and service user involvement asking why it has become best practice to widen the body of those involved with the design and delivery of healthcare. In particular, we reflect on the manner in which the individual seems to have taken precedence over the community, and why this has led to the growth of citizen involvement in the management of health and well-being. We recognise that organisations have a role to play in facilitating citizen involvement. We suggest that there are challenges in taking this approach as well as opportunity costs, and we query whether the benefits outweigh these costs.
KeywordsPerson-centred Citizen-centred Co-production Patient and Public Involvement (PPI) Healthcare Citizen Science Shared decision-making Human factors
- Beresford, P. (2013). Beyond the usual suspects. London: Shaping Our Lives.Google Scholar
- Coulter, A., & Ellins, J. (2006). Patient focused interventions: A review of the evidence. London: The Health Foundation.Google Scholar
- Den Broeder, L., Van Oers, H., Schuit, A., & Wagemakers, A. (2018). Citizen science for public health. Health Promotion International, 33, 505–514.Google Scholar
- Department of Health. (2019). The NHS Constitution 2019. Available at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/770675/The_Handbook_to_the_NHS_Constitution_-_2019.pdf. Accessed 18 Jan 2019.
- Dewey, J. (1969). Experience and education. London: Collier-Macmillan.Google Scholar
- Drolet, B. C., & White, C. L. (2012). Selective Paternalism. AMA Journal of Ethics, 84(3), 582–588.Google Scholar
- Harries, P., Barron, D., & Ballinger, C. (2019). Developments in public involvement and co-production in research: Embracing our values and those of our service users and carers. British Journal of Occupational Therapy, First Published May 27, 2019 Editorial. Available at: https://doi.org/10.1177/0308022619844143. Accessed 28 July 2019.CrossRefGoogle Scholar
- Health Education England, Skills for Health, Skills for Care. (2017). New framework to promote person-centred approaches in healthcare. Available at http://tinyurl.com/y89gvzzr. Accessed 5 Aug 2019.
- INVOLVE. (2012). Briefing notes for researchers: Public involvement in NHS, public health and social care research. Available at: www.invo.org.uk/wp-content/uploads/2014/11/9938_INVOLVE_Briefing_Notes_WEB.pdf. Accessed 17 July 2019.
- INVOLVE. (2018). Guidance on co-producing a research project. Available at: www.invo.org.uk/wp-content/uploads/2018/03/Copro_Guidance_Mar18.pdf. Accessed 17 July 2019.
- INVOLVE. (2019). Welcome to INVOLVE. Available at: www.invo.org.uk/. Accessed 19 July 2019.
- Lichten, C., Ioppolo, R. D., Angelo, C., Simmons, R., & Morgan Jones, M. (2018). Citizen science: Crowdsourcing for research. Cambridge: The Health Improvement Studies Institute. Available at https://www.thisinstitute.cam.ac.uk/wp-content/uploads/2018/05/THIS-Institute-Crowdsourcing-for-research-978-1-9996539-0-3.pdf. Accessed 5 Aug 2019.
- NHS England. (2014). NHS five year forward view. Available at www.england.nhs.uk/wp-content/uploads/2014/10/5yfv-web.pdf. Accessed 5 Aug 2019.
- Pandya-Wood, R., Elliott, J., & Barron, D. S. (2019). Service user and lay involvement in healthcare. In C. Llewellyn (Ed.), Cambridge handbook of psychology, health and medicine (3rd ed., pp. 347–352). Cambridge: Cambridge University Press.Google Scholar
- Polanyi, M. (1967). The tacit dimension. London: Tavistock.Google Scholar
- Vygotsky, L. (1978). Mind in society. Cambridge, MA: Harvard Business Press.Google Scholar
- Ward, J. K., McEachan, R. R. C., Lawton, R., Armitage, G., Watt, I., Wright, J., & The Yorkshire Quality Safety Research Group. (2011). Patient involvement in patient safety: Protocol for developing an intervention using patient reports of organisational safety and patient incident reporting. BMC Health Services Research, 11, 130 Available online at: http://www.biomedcentral.com/1472-6963/11/130
- Weber, M. (1964). The theory of social and economic organisation (trans: Henderson, A. M., & Parsons, T.). New York: Free Press.Google Scholar
- Wenger, E. (1998). Communities of practice: Learning as a social system. Available at http://www.co-i-l.com/coil/knowledge-garden/cop/lss.shtml. Accessed 4 Aug 2019.
- Woolley, J., McGowan, M., Teare, H., Coathup, V., Fishman, J., Settersten, R., Sterckx, S., Kaye, J., & Juengst, E. (2016). Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives. BMC Medical Ethics, 17, 33–50.CrossRefGoogle Scholar
- World Health Organization. (1978). Declaration of Alma-Ata, International Conference on Primary Health Care, Alma-Ata, USSR, 6–12, September. Available at: www.who.int/publications/almaata_declaration_en.pdf. Accessed 22 July 2019.