Advertisement

Social Level Interventions: Enhancing Peer Support and Coping in Pediatric Diabetes Populations

  • Margaret GreyEmail author
  • Kevin Joiner
Chapter

Abstract

In this entry, the authors review the literature on peer support and coping skills training for children and adolescents with type 1 and type 2 diabetes to develop a comprehensive review and make recommendations for practice and research. The search was limited to articles published from 2000 to 2018. A total of ten studies met the inclusion criteria and were included in the review. Peer support was defined as the provision of emotional, appraisal, and informational assistance by a created social network member who possesses experiential knowledge of a specific behavior or stressor and similar characteristics as the target population, to address a health-related issue of a potentially or actually stressed focal person. Coping skills training is a psychosocial self-management support intervention focused on improving the coping skills of social problem-solving, communication skills, cognitive-behavioral modification, and stress management. The majority of the studies focused on adolescents. Recommendations for implementation and dissemination research are made.

Keywords

Diabetes Children Adolescents Peer support Coping skills 

References

  1. Ambrosino, J. M., Fennie, K., Whittemore, R., Jaser, S., Dowd, M. F., & Grey, M. (2008). Short-term effects of coping skills training in school-age children with type 1 diabetes. Pediatric Diabetes, 9, 74–82.PubMedPubMedCentralCrossRefGoogle Scholar
  2. American Academy of Pediatrics. (2002). Policy statement: The medical home. Pediatrics, 110, 184–186.CrossRefGoogle Scholar
  3. American Diabetes Association. (2016). Children and adolescents. Diabetes Care, 39(Suppl. 1), S86–S93.Google Scholar
  4. Amiel, S. A., Sherwin, R. S., Simonson, D. C., Lauritano, A. A., & Tamborlane, W. V. (1986). Impaired insulin action in puberty. A contributing factor to poor glycemic control in adolescents with diabetes. New England Journal of Medicine, 315, 215–219.PubMedCrossRefPubMedCentralGoogle Scholar
  5. Anderson, B. J., Brackett, J., Ho, J., & Laffel, L. M. (1999). An office-based intervention to maintain parent-adolescent teamwork in diabetes management. Impact on parent involvement, family conflict, and subsequent glycemic control. Diabetes Care, 22, 713–721.PubMedCrossRefGoogle Scholar
  6. Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Englewood Cliffs, N.J: Prentice Hall.Google Scholar
  7. Bandura, A. (1997). Self-efficacy: The exercise of control. New York, NY: W.H. Freeman.Google Scholar
  8. Bell, R. A., Mayer-Davis, E. J., Beyer, J. W., D’Agostino, R. B., Jr., Lawrence, J. M., Linder, B., … Dabelea, D. (2009). Diabetes in non-Hispanic white youth: Prevalence, incidence, and clinical characteristics: The SEARCH for Diabetes in Youth Study. Diabetes Care, 32(Suppl. 2), S102–S111.PubMedPubMedCentralCrossRefGoogle Scholar
  9. Brownson, C. A., & Heisler, M. (2009). The role of peer support in diabetes care and self-management. Patient, 2(1), 5–17.PubMedCrossRefGoogle Scholar
  10. Chiang, J. L., Kirkman, M. S., Laffel, L. M., & Peters, A. L. (2014). Type 1 diabetes through the life span: A position statement of the American Diabetes Association. Diabetes Care, 37, 2034–2054.PubMedPubMedCentralCrossRefGoogle Scholar
  11. Cook, S., Herold, K., & Edidin, D. V. (2002). Increasing problem solving in adolescents with type 1 diabetes: The choices diabetes program. Diabetes Educator, 28, 115–124.PubMedCrossRefPubMedCentralGoogle Scholar
  12. Davidson, M., Boland, E. A., & Grey, M. (1997). Teaching teens to cope: Coping skills training for adolescents with insulin-dependent diabetes mellitus. Journal of the Society of Pediatric Nurses, 2, 65–72.PubMedCrossRefGoogle Scholar
  13. Davis, L. M., & Vitagliano, C. P. (2015). Shared medical appointments for adolescents with type 1 diabetes mellitus: Important learning communities. Journal of Pediatric Nursing, 30, 632–634.PubMedCrossRefGoogle Scholar
  14. Delamater, A. M., Jacobson, A. M., Anderson, B., Cox, D., Fisher, L., Lustman, P., … Wysocki, T. (2001). Psychosocial therapies in diabetes – Report of the psychosocial therapies working group. Diabetes Care, 24, 1286–1292.PubMedPubMedCentralCrossRefGoogle Scholar
  15. Dennis, C. L. (2003). Peer support within a health care context: A concept analysis. International Journal of Nursing Studies, 40, 321–332.PubMedCrossRefGoogle Scholar
  16. Diabetes Control and Complications Trial (DCCT) Research Group. (1993). The effect of intensive treatment of diabetes on the development and progression of long-term complications in insulin-dependent diabetes mellitus. The Diabetes Control and Complications Trial. New England Journal of Medicine, 329, 977–986.CrossRefGoogle Scholar
  17. Floyd, B. D., Block, J. M., Buckingham, B. B., Ly, T., Foster, N., Wright, R., … Shah, A. C. (2016). Stabilization of glycemic control and improved quality of life using a shared medical appointment model in adolescents with type 1 diabetes in suboptimal control. Pediatric Diabetes.  https://doi.org/10.1111/pedi.12373PubMedCrossRefGoogle Scholar
  18. Greco, P., Pendley, J. S., McDonell, K., & Reeves, G. (2001). A peer group intervention for adolescents with type 1 diabetes and their best friends. Journal of Pediatric Psychology, 26, 485–490.PubMedPubMedCentralCrossRefGoogle Scholar
  19. Grey, M., Boland, E. A., Davidson, M., Li, J., & Tamborlane, W. V. (2000). Coping skills training for youth with diabetes mellitus has long-lasting effects on metabolic control and quality of life. Journal of Pediatrics, 137, 107–113.PubMedCrossRefGoogle Scholar
  20. Grey, M., Boland, E. A., Davidson, M., Yu, C., Sullivan-Bolyai, S., & Tamborlane, W. V. (1998). Short-term effects of coping skills training as adjunct to intensive therapy in adolescents. Diabetes Care, 21, 902–908.PubMedCrossRefGoogle Scholar
  21. Grey, M., Boland, E. A., Davidson, M., Yu, C., & Tamborlane, W. V. (1999). Coping skills training for youths with diabetes on intensive therapy. Applied Nursing Research, 12(1), 3–12.PubMedCrossRefGoogle Scholar
  22. Grey, M., Jaser, S. S., Holl, M. G., Jefferson, V., Dziura, J., & Northrup, V. (2009). A multifaceted school-based intervention to reduce risk for type 2 diabetes in at-risk youth. Preventive Medicine, 49, 122–128.PubMedPubMedCentralCrossRefGoogle Scholar
  23. Grey, M., Jaser, S. S., Whittemore, R., Jeon, S., & Lindemann, E. (2011). Coping skills training for parents of children with type 1 diabetes: 12-month outcomes. Nursing Research, 60, 173–181.PubMedPubMedCentralCrossRefGoogle Scholar
  24. Grey, M., Whittemore, R., Jaser, S., Ambrosino, J., Lindemann, E., Liberti, L., … Dziura, J. (2009). Effects of coping skills training in school-age children with type 1 diabetes. Research in Nursing & Health, 32, 405–418.CrossRefGoogle Scholar
  25. Grey, M., Whittemore, R., Jeon, S., Murphy, K., Faulkner, M. S., Delamater, A., & for the TeenCope Study Group. (2013). Internet psycho-education programs improve outcomes in youth with type 1 diabetes. Diabetes Care, 36, 2475–2482.PubMedPubMedCentralCrossRefGoogle Scholar
  26. Grey, M., Whittemore, R., Liberti, L., Delamater, A., Murphy, K., & Faulkner, M. S. (2012). A comparison of two internet programs for adolescents with type 1 diabetes: Design and methods. Contemporary Clinical Trials, 33, 769–776.PubMedPubMedCentralCrossRefGoogle Scholar
  27. Haas, L., Maryniuk, M., Beck, J., Cox, C. E., Duker, P., Edwards, L., … Youssef, G. (2014). National standards for diabetes self-management education and support. Diabetes Care, 37(Suppl. 1), S144–S153.PubMedCrossRefPubMedCentralGoogle Scholar
  28. Heisler, M. (2010). Different models to mobilize peer support to improve diabetes self-management and clinical outcomes: Evidence, logistics, evaluation considerations and needs for future research. Family Practice, 27, I23–I32.PubMedCrossRefPubMedCentralGoogle Scholar
  29. Holmes, C. S., Chen, R., Mackey, E., Grey, M., & Streisand, R. (2014). Randomized clinical trial of clinic-integrated, low-intensity treatment to prevent deterioration of disease care in adolescents with type 1 diabetes. Diabetes Care, 37, 1535–1543.PubMedPubMedCentralCrossRefGoogle Scholar
  30. Institute of Medicine. (2003). Priority areas for national action: Transforming health care quality. Washington, DC: The National Academies Press.Google Scholar
  31. Ireys, H. T., Chernoff, R., DeVet, K. A., & Kim, Y. (2001). Maternal outcomes of a randomized controlled trial of a community-based support program for families of children with chronic illnesses. Archives of Pediatric and Adolescent Medicine, 155, 771–777.CrossRefGoogle Scholar
  32. Ireys, H. T., Sills, E. M., Kolodner, K. B., & Walsh, B. B. (1996). A social support intervention for parents of children with juvenile rheumatoid arthritis: Results of a randomized trial. Journal of Pediatric Psychology, 21, 633–641.PubMedCrossRefPubMedCentralGoogle Scholar
  33. Jaacks, L. M., Bell, R. A., Dabelea, D., D’Agostino, R. B., Jr., Dolan, L. M., Imperatore, G., … Mayer-Davis, E. J. (2014). Diabetes self-management education patterns in a US population-based cohort of youth with type 1 diabetes. The Diabetes Educator, 40(1), 29–39.PubMedCrossRefPubMedCentralGoogle Scholar
  34. Jaser, S. S., Whittemore, R., Chao, A., Jeon, S., Faulkner, M. S., & Grey, M. (2014). Mediators of 12-month outcomes of two Internet interventions for youth with type 1 diabetes. Journal of Pediatric Psychology, 39, 306–315.PubMedCrossRefPubMedCentralGoogle Scholar
  35. Jaser, S. S., Yates, H., Dumser, S., & Whittemore, R. (2011). Risky business: Risk behaviors in adolescents with type 1 diabetes. The Diabetes Educator, 37, 756–764.PubMedPubMedCentralCrossRefGoogle Scholar
  36. Laffel, L. M., Vangsness, L., Connell, A., Goebel-Fabbri, A., Butler, D., & Anderson, B. J. (2003). Impact of ambulatory, family-focused teamwork intervention on glycemic control in youth with type 1 diabetes. Journal of Pediatrics, 142, 409–416.PubMedCrossRefPubMedCentralGoogle Scholar
  37. Lorig, K. R., Ritter, P., Stewart, A. L., Sobel, D. S., Brown, B. W., Jr., Bandura, A., … Holman, H. R. (2001). Chronic disease self-management program: 2-year health status and health care utilization outcomes. Medical Care, 39, 1217–1223.PubMedCrossRefPubMedCentralGoogle Scholar
  38. Marrero, D. G., Ard, J., Delamater, A. M., Peragallo-Dittko, V., Mayer-Davis, E. J., Nwankwo, R., & Fisher, E. B. (2013). Twenty-first century behavioral medicine: A context for empowering clinicians and patients with diabetes: A consensus report. Diabetes Care, 36, 463–470.PubMedPubMedCentralCrossRefGoogle Scholar
  39. Modi, A. C., Pai, A. L., Hommel, K. A., Hood, K. K., Cortina, S., Hilliard, M. E., … Drotar, D. (2012). Pediatric self-management: A framework for research, practice, and policy. Pediatrics, 129, e473–e485.CrossRefGoogle Scholar
  40. Mohr, D. C., Ho, J., Duffecy, J., Reifler, D., Sokol, L., Burns, M. N., … Siddique, J. (2012). Effect of telephone-administered vs face-to-face cognitive behavioral therapy on adherence to therapy and depression outcomes among primary care patients: A randomized trial. Journal of the American Medical Association, 307, 2278–2285.PubMedGoogle Scholar
  41. Mulvaney, S. A., Mudasiru, E., Schlundt, D. G., Baughman, C. L., Fleming, M., VanderWoude, A., … Rothman, R. (2008). Self-management in type 2 diabetes: The adolescent perspective. The Diabetes Educator, 34, 674–682.PubMedPubMedCentralCrossRefGoogle Scholar
  42. Mulvaney, S. A., Rothman, R. L., Wallston, K. A., Lybarger, C., & Dietrich, M. S. (2010). An internet-based program to improve self-management in adolescents with type 1 diabetes. Diabetes Care, 33, 602–604.PubMedPubMedCentralCrossRefGoogle Scholar
  43. Naranjo, D., Schwartz, D. D., & Delamater, A. M. (2015). Diabetes in ethnically diverse youth: Disparate burden and intervention approaches. Current Diabetes Reviews, 11, 251–260.CrossRefGoogle Scholar
  44. Raphael, J. L., Rueda, A., Lion, K. C., & Giordano, T. P. (2013). The role of lay health workers in pediatric chronic disease: A systematic review. Academic Pediatrics, 13, 408–420.PubMedPubMedCentralCrossRefGoogle Scholar
  45. Sims, L. M., & Haines, S. L. (2011). Challenges of a pharmacist-directed peer support program among adolescents with diabetes. Journal of the American Pharmacists Association, 51, 766–769.PubMedCrossRefGoogle Scholar
  46. Smaldone, A., & Ritholz, M. D. (2011). Perceptions of parenting children with type 1 diabetes diagnosed in early childhood. Journal of Pediatric Health Care, 25, 87–95.PubMedCrossRefGoogle Scholar
  47. Sullivan-Bolyai, S., Bova, C., Lee, M., & Gruppuso, P. A. (2011). Mentoring fathers of children newly diagnosed with T1DM. MCN: American Journal of Maternal Child Nursing, 36, 224–231.PubMedGoogle Scholar
  48. Sullivan-Bolyai, S., Bova, C., Leung, K., Trudeau, A., Lee, M., & Gruppuso, P. (2010). Social Support to Empower Parents (STEP): An intervention for parents of young children newly diagnosed with type 1 diabetes. The Diabetes Educator, 36(1), 88–97.PubMedCrossRefGoogle Scholar
  49. Sullivan-Bolyai, S., Deatrick, J., Gruppuso, P., Tamborlane, W., & Grey, M. (2003). Constant vigilance: Mothers’ work parenting young children with type 1 diabetes. Journal of Pediatric Nursing, 18(1), 21–29.PubMedPubMedCentralCrossRefGoogle Scholar
  50. Sullivan-Bolyai, S., Grey, M., Deatrick, J., Gruppuso, P., Giraitis, P., & Tamborlane, W. (2004). Helping other mothers effectively work at raising young children with type 1 diabetes. The Diabetes Educator, 30, 476–484.PubMedCrossRefPubMedCentralGoogle Scholar
  51. Swift, P. G. F. (2009). Diabetes education in children and adolescents. Pediatric Diabetes, 10(Suppl. 12), 51–57.PubMedCrossRefPubMedCentralGoogle Scholar
  52. Tang, T. S. T., Ayala, G. X., Cherrington, A., & Rana, G. (2011). A review of volunteer-based peer support interventions in diabetes. Diabetes Spectrum, 24, 85–98.CrossRefGoogle Scholar
  53. United Kingdom Prospective Diabetes Study (UKPDS) Group. (1998). Intensive blood-glucose control with sulphonylureas or insulin compared with conventional treatment and risk of complications in patients with type 2 diabetes. Lancet, 352(9131), 837–853.CrossRefGoogle Scholar
  54. Wagner, E. H., Austin, B. T., Davis, C., Hindmarsh, M., Schaefer, J., & Bonomi, A. (2001). Improving chronic illness care: Translating evidence into action. Health Affairs, 20(6), 64–78.PubMedCrossRefPubMedCentralGoogle Scholar
  55. Whittemore, R., Chao, A., Jang, M., Jeon, S., Liptak, T., Popick, R., & Grey, M. (2013). Implementation of a school-based internet obesity prevention program for adolescents. Journal of Nutrition Education and Behavior, 45, 586–594.PubMedCrossRefPubMedCentralGoogle Scholar
  56. Whittemore, R., Grey, M., Lindemann, E., Ambrosino, J., & Jaser, S. (2010). Development of an internet coping skills training program for teenagers with type 1 diabetes. CIN: Computers, Informatics, & Nursing, 28, 103–111.Google Scholar
  57. Whittemore, R., Jeon, S., & Grey, M. (2013). An internet obesity prevention program for adolescents. Journal of Adolescent Health, 52, 439–447.PubMedCrossRefGoogle Scholar
  58. Whittemore, R., Liberti, L. S., Jeon, S., Chao, A., Minges, K. E., Murphy, K., & Grey, M. (2015). Efficacy and implementation of an Internet psychoeducational program for teens with type 1 diabetes. Pediatric Diabetes.  https://doi.org/10.1111/pedi.12338PubMedPubMedCentralCrossRefGoogle Scholar
  59. Wood, J. R., Miller, K. M., Maahs, D. M., Beck, R. W., DiMeglio, L. A., Libman, I. M., … Woerner, S. E. (2013). Most youth with type 1 diabetes in the T1D Exchange Clinic Registry do not meet American Diabetes Association or International Society for Pediatric and Adolescent Diabetes clinical guidelines. Diabetes Care, 36(7), 2035–2037.PubMedPubMedCentralCrossRefGoogle Scholar
  60. Zeitler, P., Epstein, L., Grey, M., Hirst, K., Kaufman, F., Tamborlane, W., & Wilfley, D. (2007). Treatment options for type 2 diabetes in adolescents and youth: A study of the comparative efficacy of metformin alone or in combination with rosiglitazone or lifestyle intervention in adolescents with type 2 diabetes. Pediatric Diabetes, 8, 74–87.PubMedCrossRefGoogle Scholar
  61. Zeitler, P., Hirst, K., Pyle, L., Linder, B., Copeland, K., Arslanian, S., … Kaufman, F. (2012). A clinical trial to maintain glycemic control in youth with type 2 diabetes. New England Journal of Medicine, 366, 2247–2256.CrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  1. 1.Yale University School of NursingOrangeUSA
  2. 2.University of Michigan School of NursingAnn ArborUSA

Personalised recommendations