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Conclusion: Continuing Changes in Marriage and Family; Supporting Diverse Perspectives on End-of-Life Decision-Making

  • H. Russell SearightEmail author
Chapter
Part of the SpringerBriefs in Ethics book series (BRIEFSETHIC)

Abstract

As is evident in the case of Mrs. Kim from Chap.  1, when confronted with serious illness, family relationships are a key element of patient decision-making. While clinicians, including the author, have encountered situations where the family and the patient are at odds with one another about optimal treatment, it is important that healthcare providers not necessarily assume that active family involvement is a type of corrupting influence on individual patient autonomy.

References

  1. Brown, E. A., Bekker, H. L., Davison, S. N., Koffman, J., & Schell, J. O. (2016). Supportive care: Communication strategies to improve cultural competence in shared decision making. Clinical Journal of the American Society of Nephrology, 11(10), 1902–1908.Google Scholar
  2. Cheng, S. Y., Suh, S. Y., Morita, T., Oyama, Y., Chiu, T. Y., Koh, S. J., … & Tsuneto, S. (2015). A cross-cultural study on behaviors when death is approaching in east asian countries: What are the physician-perceived common beliefs and practices? Medicine, 94(39), 1–5.Google Scholar
  3. Epstein, R. M., Korones, D. N., & Quill, T. E. (2010). Withholding information from patients—when less is more. New England Journal of Medicine, 362(5), 380.Google Scholar
  4. Gillon, R. (2003). Ethics needs principles—four can encompass the rest—and respect for autonomy should be “first among equals”. Journal of Medical Ethics, 29(5), 307–312.CrossRefGoogle Scholar
  5. Hardwig, J. (1990). What about the family? Hastings Center Report, 20(2), 5–10.CrossRefGoogle Scholar
  6. Hardwig, J. (2000). Is there a duty to die?: And other essays in bioethics. Routledge.Google Scholar
  7. Larkin, C., & Searight, H. R. (2014). A systematic review of cultural preferences for receiving medical “bad news” in the United States. Health, 6(16), 2162.Google Scholar
  8. Macklin, R. (1987). Mortal choices: Ethical dilemmas in modern medicine.Google Scholar
  9. Moazam, F. (2000). Families, patients, and physicians in medical decision making: A Pakistani perspective. Hastings Center Report, 30(6), 28–37.CrossRefGoogle Scholar
  10. Padela, A. I., Malik, A. Y., Curlin, F., & De Vries, R. (2015). [R e] considering respect for persons in a globalizing world. Developing World Bioethics, 15(2), 98–106.Google Scholar
  11. Searight, H. R. (1992). Assessing patient competence for medical decision making. American Family Physician, 45(2), 751–759.Google Scholar
  12. Searight, H. R., & Gafford, J. (2005). “It’s like playing with your destiny”: Bosnian immigrants’ views of advance directives and end-of-life decision-making. Journal of Immigrant Health, 7(3), 195–203.Google Scholar
  13. Shahidi, J. (2010). Not telling the truth: Circumstances leading to concealment of diagnosis and prognosis from cancer patients. European Journal of Cancer Care, 19(5), 589–593.CrossRefGoogle Scholar
  14. Yang, Y. (2015). A family oriented confucian approach to advance directives in end-of-life decision-making for incompetent elderly patients. In R. Fan (Ed.), Family-oriented informed consent: East Asian and American perspectives (pp. 257–270). New York: Springer.Google Scholar

Bibliography

  1. Arraras, J. I., Illarramendi, J. J., Valerdi, J. J., & Wright, S. J. (1995). Truth‐telling to the patient in advanced cancer: Family information filtering and prospects for change. Psycho‐Oncology, 4(3), 191–196.Google Scholar
  2. Battin, M. P., Van der Heide, A., Ganzini, L., Van der Wal, G., & Onwuteaka-Philipsen, B. D. (2007). Legal physician-assisted dying in Oregon and the Netherlands: Evidence concerning the impact on patients in “vulnerable” groups. Journal of Medical Ethics, 33(10), 591–597.Google Scholar
  3. Blendon, R. J., Hyams, T. S., & Benson, J. M. (1993). Bridging the gap between expert and public views on health care reform. JAMA, 269(19), 2573–2578.Google Scholar
  4. Bowman, K. W., & Hui, E. C. (2000). Bioethics for clinicians: 20. Chinese bioethics. Canadian Medical Association Journal, 163(11), 1481–1485.Google Scholar
  5. Bradley, E. H., Wetle, T., & Horwitz, S. M. (1998). The patient self determination act and advance directive completion in nursing homes. Archives of Family Medicine, 7(5), 417.Google Scholar
  6. Finkelstein, E. A., Bilger, M., Flynn, T. N., & Malhotra, C. (2015). Preferences for end-of-life care among community-dwelling older adults and patients with advanced cancer: A discrete choice experiment. Health Policy, 119(11), 1482–1489.Google Scholar
  7. Kaiser, K., Rauscher, G. H., Jacobs, E. A., Strenski, T. A., Ferrans, C. E., & Warnecke, R. B. (2011). The import of trust in regular providers to trust in cancer physicians among white, African American, and Hispanic breast cancer patients. Journal of General Internal Medicine, 26(1), 51–57.Google Scholar
  8. Kapadia, F., Singh, M., Divatia, J., Vaidyanathan, P., Udwadia, F. E., Raisinghaney, S. J., … & Karnad, D. R. (2005). Limitation and withdrawal of intensive therapy at the end of life: Practices in intensive care units in Mumbai, India. Critical Care Medicine, 33(6), 1272–1275.Google Scholar
  9. Kelton vs. Washington DC Court of Appeals (April, 1980). 413 A.2d 919 (D.C. 1980).Google Scholar
  10. Ko, E., Roh, S., & Higgins, D. (2013). Do older Korean immigrants engage in end-of-life communication? Educational Gerontology, 39(8), 613–622.Google Scholar
  11. Makino, J., Fujitani, S., Twohig, B., Krasnica, S., & Oropello, J. (2014). End-of-life considerations in the ICU in Japan: Ethical and legal perspectives. Journal of Intensive Care, 2(1), 9.Google Scholar
  12. Searight, H. R. (2017). Clinical and ethical issues in working with a foreign language interpreter. Journal of Health Service Psychology, Fall. Retrieved from https://www.nationalregister.org/pub/the-national-register-report-pub/journal-of-health-service-psychology-fall-2017/clinical-and-ethical-issues-in-working-with-a-foreign-language-interpreter.
  13. Seoane, A. ( 2011). Advance directives in Spain. In S. Negri (Ed.), Self-determination, dignity and end-of-life care (pp. 299–330). Leiden: Martius Nijhoff.Google Scholar
  14. Wachterman, M. W., McCarthy, E. P., Marcantonio, E. R., & Ersek, M. (2015). Mistrust, misperceptions, and miscommunication: A qualitative study of preferences about kidney transplantation among African Americans. Transplantation proceedings, 47(2), 240–246.Google Scholar

Copyright information

© The Author(s), under exclusive license to Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Department of PsychologyLake Superior State UniversitySault Sainte MarieUSA

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