History and Background of End-of-Life Decision-Making and Culture

  • H. Russell SearightEmail author
Part of the SpringerBriefs in Ethics book series (BRIEFSETHIC)


This admonition from members of the Navajo community arose in response to the discussions of terminal illness and a patient’s desire for life-support—both of which are implicit topics in discussions of advance directives.


  1. Beckstrand, R. L., Callister, L. C., & Kirchhoff, K. T. (2006). Providing a “good death”: critical care nurses’ suggestions for improving end-of-life care. American Journal of Critical Care, 15(1), 38–45.Google Scholar
  2. Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., & Azen, S. (1995). Ethnicity and attitudes toward patient autonomy. JAMA, 274(10), 820–825.Google Scholar
  3. Blank, R. H. (2011). End-of-life decision making across cultures. The Journal of Law, Medicine & Ethics, 39(2), 201–214.CrossRefGoogle Scholar
  4. Carrese, J. A., & Rhodes, L. A. (1995). Western bioethics on the Navajo reservation: Benefit or harm? JAMA, 826–829.Google Scholar
  5. Combs, S. A., Culp, S., Matlock, D. D., Kutner, J. S., Holley, J. L., & Moss, A. H. (2015). Update on end-of-life care training during nephrology fellowship: A cross-sectional national survey of fellows. American Journal of Kidney Diseases, 65(2), 233–239.Google Scholar
  6. Constand, M. K., MacDermid, J. C., Dal Bello-Haas, V., & Law, M. (2014). Scoping review of patient-centered care approaches in healthcare. BMC Health Services Research, 14(1), 271.Google Scholar
  7. Diem, S. J., Lantos, J. D., & Tulsky, J. A. (1996). Cardiopulmonary resuscitation on television—miracles and misinformation. New England Journal of Medicine, 334(24), 1578–1582.Google Scholar
  8. Emanuel, L. L., Barry, M. J., Stoeckle, J. D., Ettelson, L. M., & Emanuel, E. J. (1991). Advance directives for medical care—A case for greater use. New England Journal of Medicine, 324(13), 889–895.Google Scholar
  9. Frank, G., Blackhall, L. J., Michel, V., Murphy, S. T., Azen, S. P., & Park, K. (1998). A discourse of relationships in bioethics: Patient autonomy and end‐of‐life decision making among elderly Korean Americans. Medical Anthropology Quarterly, 12(4), 403–423.Google Scholar
  10. Grisso, T., & Appelbaum, P.S. (1998). Assessing competence to consent to treatment: A guide for physicians and other health professionals. New York: Oxford University Press.Google Scholar
  11. Kaufman, S. R. (2015). Ordinary medicine: Extraordinary treatments, longer lives, and where to draw the line. Duke University Press.Google Scholar
  12. Kennedy, I. M. (1976). The Karen Quinlan case: Problems and proposals. Journal of Medical Ethics, 2(1), 3.Google Scholar
  13. Markel, H. (2017). Epic failure. The Milbank Quarterly, 95(3), 451–456.CrossRefGoogle Scholar
  14. McFadden, R. D. (1985). Karen Ann Quinlin, 31 Dies, Focus of Right to Life Case, New York times, June 12.Google Scholar
  15. Pence, G. (2003). Great cases in medical ethics (4th ed.). New York: McGraw-Hill.Google Scholar
  16. Pence, G. (2016). Medical ethics: Accounts of groundbreaking cases (8th ed.). New York: McGraw Hill.Google Scholar
  17. Qazi, H. A., Chen, H., & Zhu, M. (2018). Factors influencing dialysis withdrawal: A scoping review. BMC Nephrology, 19(1), 96.Google Scholar
  18. Redberg, R., Katz, M., & Grady, D. (2011). Diagnostic tests: Another frontier for less is more: Or why talking to your patient is a safe and effective method of reassurance. Archives of Internal Medicine, 171(7), 619–619.Google Scholar
  19. Schlesinger, M. (2002). A loss of faith: the sources of reduced political legitimacy for the American medical profession. The Milbank Quarterly, 80(2), 185–235.CrossRefGoogle Scholar
  20. Searight, H. R., & Barbarash, R. A. (1994). Informed consent: clinical and legal issues in family practice. Family Medicine, 26(4), 244–249.Google Scholar
  21. Searight, H. R., & Gafford, J. (2005). “It’s like playing with your destiny”: Bosnian immigrants’ views of advance directives and end-of-life decision-making. Journal of Immigrant Health, 7(3), 195–203.Google Scholar
  22. Tomes, N. (2016). Remaking the American patient. Chapel Hill, NC: University of North Carlina Press.Google Scholar
  23. Truog, R. D. (2008). End-of-life decision-making in the United States. European Journal of Anaesthesiology, 25(S42), 43–50.CrossRefGoogle Scholar
  24. Walter, P. (1997). The doctrine of informed consent: To inform or not to inform. St. John’s Law Review, 71, 543–590.Google Scholar
  25. Yin, B., Gandhi, J., Limpisvasti, O., Mohr, K., & ElAttrache, N. S. (2015). Impact of fellowship training on clinical practice of orthopaedic sports medicine. JBJS, 97(5), e27.Google Scholar

Copyright information

© The Author(s), under exclusive license to Springer Nature Switzerland AG 2019

Authors and Affiliations

  1. 1.Department of PsychologyLake Superior State UniversitySault Sainte MarieUSA

Personalised recommendations