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Determinants of Quality of Healthcare for Adolescents and Young Adults

  • Nabeel Al-YateemEmail author
Chapter

Abstract

Adolescents and young adults are a dynamic population with unique healthcare needs. Although adolescents/young adults have demographic and cultural differences, prioritizing their healthcare needs is important to ensure their future wellbeing. However, there is variation within and across healthcare systems in the level of care provided for this population, and their healthcare needs may be overlooked. Definitions of quality healthcare for adolescents/young adults include consideration of factors such as evidence-based services, improved patient outcomes, and whether available services meet patients’ expectations. Important considerations in providing quality healthcare for adolescents/young adults include acknowledging the interrelationships among different aspects of healthcare and the role of other domains (e.g., education) and considering patient-oriented perspectives. Quality healthcare also includes the safety, effectiveness, efficiency, and timeliness of care, along with consideration of equity/accessibility across population subgroups and ensuring services are responsive, respectful, and coordinated. Determinants of quality healthcare for adolescents/young adults are influenced by various factors, including their age, developmental characteristics, family influences, social networks, and the customs and norms of their communities. System-level factors (e.g., service organization, funding, and costs) also impact adolescents’ and young adults’ access to services. In addition, some groups of adolescents/young adults, such as those with chronic long-term conditions, have specific needs that impact the quality of care available to them. For this group, high-quality healthcare services are necessary to support transitions within and between services and develop self-management. Effective services for adolescents/young adults (including those with long-term conditions) depend on their authentic involvement in the development, implementation, and evaluation of services. Measuring the quality of healthcare for adolescents/young adults is important to evaluate and monitor existing services, drive quality improvement, and inform future services. Understanding the elements of quality healthcare for adolescents/young adults is important for healthcare professionals who intend to engage in related areas of practice.

Keywords

Adolescent health care Adolescence Young adults Determinants of quality Transition care 

References

  1. Al Makadma AKS. Adolescent health and health care in the Arab Gulf countries: today’s needs and tomorrow’s challenges. Int J Pediatrics Adolesc Med. 2017;4:1e8.CrossRefGoogle Scholar
  2. Al-Yateem N, Docherty C, Rossiter R. Determinants of quality of care for adolescents and young adults with chronic illnesses: a mixed methods study. J Pediatr Nurs. 2016;31:255–66.CrossRefGoogle Scholar
  3. Azzopardi P, Kennedy E, Patton G. Data and indicators to measure adolescent health, social development and well-being, Innocenti Research Brief. Florence: UNICEF; 2017.Google Scholar
  4. Baribeau D, Wong J, Monga S, Pignatiello A, Ickowicz A. Selecting quality indicators in child and adolescent mental health care: a “stakeholder-driven” approach. J Participatory Med. 2016;8:e5.Google Scholar
  5. Betz CL, Cowell JM, Faulkner MS, Feeg VD, Greenberg CS, Krajicek M, Lipman T, Lobo M, Nehring W, Craft-Rosenberg M, Vessey J. Advancing the development of the guidelines for the nursing of children, adolescents and families: 2014 revision: process, development and dissemination. J Pediatr Health Care. 2016;30(3):284–8.  https://doi.org/10.1016/j.pedhc.2015.11.003.CrossRefPubMedGoogle Scholar
  6. Bradley NME, Robinson PD, Greenberg ML, Barr RD, Klassen AF, Chan L, Greenberg CM. Measuring the quality of a childhood cancer care delivery system: quality indicator development. Value Health. 2013;16:647–54.CrossRefGoogle Scholar
  7. Centers for Disease Control. CDC releases youth risk behavior survey results and trends report. 2018. https://www.cdc.gov/features/yrbs/index.html. Accessed 3 Apr 2019.
  8. Chant S, Klett-Davies M, Ramalho J. Challenges and potential solutions for adolescent girls in urban settings: a rapid evidence review. London: Overseas Development Institute; 2017.Google Scholar
  9. Committee on Adolescence American Academy of Pediatrics. Achieving quality health services for adolescents. Pediatrics. 2008;121(6):1263–70.CrossRefGoogle Scholar
  10. Community Preventive Services Task Force. The guide to community preventive services 2015. Promoting health equity through education programs and policies: school-based health centers. Task Force Finding and Rationale Statement. 2015. http://www.thecommunityguide.org/healthequity/education/schoolbasedhealthcenters.html. Accessed 1 Mar 2019.
  11. Cooper D, De Lannoy A, Rule C. Youth health and well-being: why it matters. In: South African Child Gauge. Part 2 Youth and the intergenerational transmission of poverty. Cape Town: Children’s Institute, University of Cape Town; 2015.Google Scholar
  12. Desiradero G. Characteristics of youth-friendly health care services. Baltimore: Center for Innovation and Evidence; 2014. https://www.healthyteennetwork.org/blog/characteristics-youth-friendly-health-care-services/. Accessed 17 Mar 2019.Google Scholar
  13. Dilek U, Sibel K. Cyber bullying experiences of adolescents and parental awareness: Turkish example. J Pediatr Nurs. 2019;44:e84–90.  https://doi.org/10.1016/j.pedn.2018.11.006.CrossRefGoogle Scholar
  14. Fox H, McManus M, Yurkiewicz S. Parents’ perspectives on health care for adolescents. Washington: National Alliance to Advance Adolescent Health; 2010.Google Scholar
  15. Hagan JF, Shaw JS, Duncan PM, editors. Bright futures: guidelines for health supervision of infants, children, and adolescents. 4th ed. Elk Grove Village: American Academy of Pediatrics; 2017. https://brightfutures.aap.org/Bright%20Futures%20Documents/BF4_AdolescenceVisits.pdf. Accessed 16 Mar 2019.Google Scholar
  16. Hällström M, Ranjbar V, Ascher H. Adolescent health care in a multi-cultural area: a qualitative study from adolescents’ perspective. Int J Adolesc Youth. 2017;22(1):107–21.  https://doi.org/10.1080/02673843.2015.1137777.CrossRefGoogle Scholar
  17. Hetrick SE, Bailey AP, Smith KE, Malla A, Mathias S, Singh SP, et al. Integrated (one-stop shop) youth health care: best available evidence and future directions. Med J Aust. 2017;207(10 Suppl):S5–S18.PubMedGoogle Scholar
  18. House S, Coon E, Schroeder A, Ralston S. Categorization of national pediatric quality measures. Pediatrics. 2017;139(4):e20163269.  https://doi.org/10.1542/peds.2016-3269.CrossRefPubMedGoogle Scholar
  19. Institute of Medicine. Crossing the quality chasm. A new health system for the 21st century. Washington: National Academy Press; 2001.Google Scholar
  20. Institute of Medicine. Child and adolescent health and health care quality: measuring what matters. Washington: National Academies Press; 2011.Google Scholar
  21. Kavanagh P, Adams W, Wang C. Quality indicators and quality assessment in child health. Arch Dis Child. 2009;94(6):458–63.  https://doi.org/10.1136/adc.2008.137893.CrossRefPubMedPubMedCentralGoogle Scholar
  22. Kids As Self Advocates. n.d.. http://www.fvkasa.org/index.php. Available from 1 Apr 2019.
  23. Kossarova L, Devakumar D, Edwards N. The future of child health services: new models of care. London: Nuffield Trust; 2016.Google Scholar
  24. Larson K, Cull WL, Racine AD, Olson LM. Trends in access to health care services for U.S. children 2000-2014. Pediatrics. 2016;138(6):e20162176.  https://doi.org/10.1542/peds.2016-2176.CrossRefPubMedGoogle Scholar
  25. Laski L. Realising the health and wellbeing of adolescents investing in adolescents’ health and development is key to improving their survival and wellbeing and critical for the success of the post-2015 development agenda. BMJ. 2015;351:h4119.CrossRefGoogle Scholar
  26. Lehman BJ, David DM, Gruber JM. Rethinking the biopsychosocial model of health: understanding health as a dynamic system. Soc Personal Psychol Compass. 2017;11:e12328.  https://doi.org/10.1111/spc3.12328.CrossRefGoogle Scholar
  27. Leyenaar, J. K., Ralston, S. L., Shieh, M.-S., Pekow, P. S., Mangione-Smith, R., M., & Lindenauer, P. K. (2016). Epidemiology of pediatric hospitalizations at general hospitals and freestanding children’s hospitals in the United States. J Hosp Med, 11(11), 743–49.Google Scholar
  28. McIntyre P. Adolescent friendly health services: an agenda for change. Geneva: WHO; 2002. https://apps.who.int/iris/bitstream/handle/10665/67923/WHO_FCH_CAH_02.14.pdf;jsessionid=AB29C7641BB419E7D4C327700BF2D169?sequence=1. Accessed 18 Mar 2019.Google Scholar
  29. Nair M, Baltag V, Bose K, Boschi-Pinto C, Lambrechts L, Mathai M. Improving the quality of health care services for adolescents, globally: a standards-driven approach. J Adolesc Health. 2015;57:288–98.  https://doi.org/10.1016/j.jadohealth.2015.05.011.CrossRefPubMedPubMedCentralGoogle Scholar
  30. National Alliance to Advance Adolescent Health. n.d.. https://www.thenationalalliance.org/. Accessed 1 Apr 2019.
  31. National Institute for Health and Care Excellence (NICE). Depression in children and young people. 2013. https://www.nice.org.uk/guidance/qs48. Accessed 11 Nov 2019.
  32. National Institute for Health and Care Excellence (NICE). Cancer services for children and young people. 2014a. www.nice.org.uk/guidance/qs5, https://www.nice.org.uk/guidance/qs55. Accessed 11 Nov 2019.
  33. National Institute for Health and Care Excellence (NICE). Contraceptive services for under 25s. 2014b. https://www.nice.org.uk/guidance/ph51. Accessed 11 Nov 2019.
  34. National Institute for Health and Care Excellence (NICE). Child abuse and neglect. 2019. https://www.nice.org.uk/guidance/qs179. Accessed 11 Nov 2019.
  35. National Research Council. Child and adolescent health and health care quality: measuring what matters. Washington: National Academies Press; 2011.  https://doi.org/10.17226/13084.CrossRefGoogle Scholar
  36. Ntoburi S, Hutchings A, Sanderson C, Carpenter J, Weber M, English M. Development of paediatric quality of inpatient care indicators for low-income countries - a Delphi study. BMC Pediatr. 2010;10:90. http://www.biomedcentral.com/1471-2431/10/90.CrossRefGoogle Scholar
  37. Panahi S. Impact of modernization on development of adolescents: the media, culture, technology. Unique J Pharm Biol Sci. 2015;3:15–22. Retrieved from https://www.researchgate.net/publication/308892205
  38. Patton G, Ross D, Santelli J, Sawyer S, Viner R, Kleinert S. Next steps for adolescent health: a lancet commission. Lancet. 2014;383(9915):385–6.CrossRefGoogle Scholar
  39. Patton GC, Sawyer SM, Santelli JS, Ross DA, Afifi R, Allen NB, et al. Our future: a Lancet commission on adolescent health and wellbeing. Lancet. 2016;387:2423–78.CrossRefGoogle Scholar
  40. Petroni S, Patel V, Patton G. Why is suicide the leading killer of older adolescent girls? Lancet. 2015;386:2031.CrossRefGoogle Scholar
  41. Rivara F, Ennis S, Mangione-Smith R, MacKenzie E, Jaffe K. Variation in adherence to new quality of care indicators for the acute rehabilitation of children with traumatic brain injury. Arch Phys Med Rehabil. 2012;93(8):1371–6.  https://doi.org/10.1016/j.apmr.2012.02.031.CrossRefPubMedPubMedCentralGoogle Scholar
  42. Ryan G. Review of the evidence for adolescent and young person specific, community-based health services for NHS managers. J Child Serv. 2015;10(1):57–75.CrossRefGoogle Scholar
  43. Sawyer S, Ambresin A, Bennett K, Patton G. A measurement framework for quality health care for adolescents in hospital. J Adolesc Health. 2014;55(4):484–90.  https://doi.org/10.1016/j.jadohealth.2014.01.023.CrossRefPubMedGoogle Scholar
  44. Shah R, Hagell A, Cheung R. International comparisons of health and wellbeing in adolescence and early adulthood [internet]. London: Nuttfield Trust and Association for Young People’s Health; 2019. https://www.nuffieldtrust.org.uk/files/2019-02/1550657729_nt-ayph-adolescent-health-report-web.pdf. Accessed 3 Mar 2019.Google Scholar
  45. Sheehan P, Sweeny K, Rasmussen B, Wils A, Friedman HS, Mahon J, Patton GC, et al. Building the foundations for sustainable development: a case for global investment in the capabilities of adolescents. Lancet. 2017;390:1792–806.CrossRefGoogle Scholar
  46. Stang A, Straus S, Crotts J, Johnson D, Guttmann A. Quality indicators for high acuity pediatric conditions. Pediatrics. 2013;132(4):752–62.  https://doi.org/10.1542/peds.2013-0854.CrossRefPubMedGoogle Scholar
  47. Strickland B, Jones J, Newacheck P, Bethell C, Blumberg S, Kogan M. Assessing systems quality in a changing health care environment: the 2009–10 National Survey of Children with Special Health Care Needs. Matern Child Health J. 2015;19(2):353–61.  https://doi.org/10.1007/s10995-014-1517-9.CrossRefPubMedPubMedCentralGoogle Scholar
  48. Szilagyi MA, Rosen DS, Rubin D, Zlotnik S, Council on Foster Care Adoption and Kinship Care, Committee on Adolescence, Childhood, C. O. E. Health care issues for children and adolescents in foster care and kinship care. Pediatrics. 2015;136(4):e1142–66.  https://doi.org/10.1542/peds.2015-2656.CrossRefPubMedGoogle Scholar
  49. Tylee A, Haller D, Graham T, Churchill R, Sanci L. Youth-friendly primary-care services: how are we doing and what more needs to be done? Lancet. 2007;369(9572):1565–73.  https://doi.org/10.1016/S0140-6736(07)60371-7.CrossRefPubMedGoogle Scholar
  50. UNICEF. Youth and health issues. World youth report. UNICEF; 2003.Google Scholar
  51. UNICEF. Adolescents overview [internet]. 2018. https://data.unicef.org/topic/adolescents/overview/. Accessed 3 Apr 2019.
  52. United Nations Department of Economic and Social Affairs Youth. (n.d) Frequently asked questions: What does the UN mean by ‘youth’ and how does this definition differ from that given to children? Accessed on November 7, 2019 from: https://www.un.org/development/desa/youth/what-we-do/faq.html.Google Scholar
  53. Wood D, Geoghegan S, Ramnarayan P, Davis PJ, Pappachan JV, Goodwin S, Wray J. Eliciting the experiences of the adolescent-parent dyad following critical care admission: a pilot study. Eur J Pediatr. 2018;177:747–52.  https://doi.org/10.1007/s00431-018-3117-y.CrossRefPubMedPubMedCentralGoogle Scholar
  54. World Health Organization. Preamble to the constitution of WHO as adopted by the International Health Conference, New York, 19 June–22 July 1946; signed on 22 July 1946 by the representatives of 61 States (Official Records of WHO, no. 2, p. 100) and entered into force on 7 April 1948. The definition has not been amended since 1948; 1948.Google Scholar
  55. World Health Organization. Urbanization and health. Bulletin of the World Health Organization. 2010.Google Scholar
  56. World Health Organization. Making health services adolescent friendly: developing national quality standards for adolescent friendly health services. World Health Organization; 2012. http://www.who.int/iris/handle/10665/75217. Accessed 19 Mar 2019.
  57. World Health Organization. Preventing suicide: a global imperative. Geneva: WHO Press; 2014.Google Scholar
  58. World Health Organization. Global standards for quality health-care services for adolescents: a guide to implement a standards-driven approach to improve the quality of health care services for adolescents. Volume 1: standards and criteria. Geneva: World Health Organization; 2015.Google Scholar
  59. World Health Organization. Health topics: disabilities. 2019. https://www.who.int/topics/disabilities/en/. Accessed 18 Mar 2019.
  60. World Health Organization. Implementation in countries of Global standards for quality of health-care services for adolescents. n.d.. https://www.who.int/maternal_child_adolescent/adolescence/global-standards-implementation/en/.
  61. World Health Organization and UNAIDS. Global standards for quality health-care services for adolescents: a guide to implement a standards-driven approach to improve the quality of health care services for adolescents. Volume 1: Standards and criteria. Geneva: World Health Organization; 2015.Google Scholar
  62. World Health Organization (WHO). Standards for improving the quality of care for children and young adolescents in health. Geneva: WHO; 2018. https://apps.who.int/iris/bitstream/handle/10665/272346/9789241565554-eng.pdf?ua=1. Accessed 11 Nov 2019.
  63. Zumsteg JM, Ennis SK, Jaffe KM, Mangione-Smith R, MacKenzie EJ, Rivara FP, National Expert Panel for the Development of Pediatric Rehabilitation Quality of Care Indicators. Quality of care indicators for the structure and organization of inpatient rehabilitation care of children with traumatic brain injury. Arch Phys Med Rehab. 2012;93(3):386–93.CrossRefGoogle Scholar

Copyright information

© Springer Nature Switzerland AG 2020

Authors and Affiliations

  1. 1.Department of NursingCollege of Health Sciences, University of SharjahSharjahUnited Arab Emirates
  2. 2.Faculty of ScienceSchool of Nursing and Midwifery and Indigenous Health, Charles Sturt UniversitySydneyAustralia
  3. 3.Research Institute of Medical and Health Sciences (RIMHS)SharjahUnited Arab Emirates

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