Autism Spectrum Disorder in Adolescents and Adults: An Introduction

  • Fred R. Volkmar
  • Brian Reichow
  • James C. McPartland
Chapter
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Abstract

Seventy years have passed since Leo Kanner’s classic description of autism. Although the pace of research has increased dramatically, research specifically focused on adolescents and adults remains limited in many respects. Numerous outcome studies have been conducted and suggest potential for markedly improved outcome with intervention. Unfortunately studies on adults after early adulthood are sparse indeed. This volume reviews work in multiple areas. The chapters review what is known and highlight important areas for future research. It does appear that with support more and more individuals with autism/autism spectrum disorder can be independent and self-sufficient. New models of care are needed to support these individuals as well as those who continue to need high levels of care.

Keywords

Autism Spectrum Disorder Autism Spectrum Disorder Romantic Relationship Young Adulthood Applied Behavior Analysis 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.
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References

  1. American Psychiatric Association. (1994). Diagnostic and statistical manual of mental disorder (4th ed.). Washington, DC: Author.Google Scholar
  2. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorder (5th ed.). Washington, DC: Author.Google Scholar
  3. Asperger, H. (1944). Die “autistichen Psychopathen” im Kindersalter. Archive fur psychiatrie und Nervenkrankheiten, 117, 76–136.CrossRefGoogle Scholar
  4. Billstedt, E., Gillberg, I., & Gillberg, C. (2007). Autism after adolescence: Population-based 13- to 22-year follow-up study of 120 individuals with autism diagnosed in childhood: Erratum. Journal of Autism and Developmental Disorders, 37(9), 1822.CrossRefGoogle Scholar
  5. Billstedt, E., Gillberg, I., & Gillberg, C. (2011). Aspects of quality of life in adults diagnosed with autism in childhood: A population-based study. Autism, 15(1), 7–20.PubMedCrossRefGoogle Scholar
  6. Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., et al. (2009). Twenty-year outcome for individuals with autism and average or near-average cognitive abilities. Autism Research, 2(2), 109–118.PubMedCrossRefGoogle Scholar
  7. Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatrics & Adolescent Medicine, 161(4), 343–349.CrossRefGoogle Scholar
  8. Gibbs, V., Aldridge, F., Chandler, F., Witzlsperger, E., & Smith, K. (2012). An exploratory study comparing diagnostic outcomes for autism spectrum disorders under DSM-IV-TR with the proposed DSM-5 revision. Journal of Autism and Developmental Disorders, 42(8), 1750–1756.PubMedCrossRefGoogle Scholar
  9. Gillberg, C., Billstedt, E., Sundh, V., & Gillberg, I. C. (2010). Mortality in autism: A prospective longitudinal community-based study. Journal of Autism & Developmental Disorders, 40(3), 352–357.CrossRefGoogle Scholar
  10. Howlin, P. (2013). Outcomes in adults with autism spectrum disorders. In F. Volkmar, S. Rogers, R. Paul, & K. Pelphrey (Eds.), Handbook of autism (4th ed.). Hoboken, NJ: Wiley.Google Scholar
  11. Kanner, L. (1943). Autistic disturbances of affective contact. Nervous Child, 2, 217–250.Google Scholar
  12. Kanner, L. (1971). Follow-up study of eleven autistic children originally reported in 1943. Journal of Autism & Childhood Schizophrenia, 1(2), 119–145.CrossRefGoogle Scholar
  13. Kanner, L., Rodriguez, A., & Ashenden, B. (1972). How far can autistic children go in matters of social adaptation? Journal of Autism & Childhood Schizophrenia, 2(1), 9–33.CrossRefGoogle Scholar
  14. Knapp, M., Romeo, R. E., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13(3), 317–336.PubMedCrossRefGoogle Scholar
  15. Mahjouri, S., & Lord, C. E. (2012). What the DSM-5 portends for research, diagnosis, and treatment of autism spectrum disorders. Current Psychiatry Reports, 14(6), 739–747.PubMedCrossRefGoogle Scholar
  16. Matson, J. L., Belva, B. C., Horovitz, M., Kozlowski, A. M., & Bamburg, J. W. (2012). Comparing symptoms of autism spectrum disorders in a developmentally disabled adult population using the current DSM-IV-TR diagnostic criteria and the proposed DSM-5 diagnostic criteria. Journal of Developmental and Physical Disabilities, 24(4), 403–414.CrossRefGoogle Scholar
  17. McPartland, J., Reichow, B., & Volkmar, F. (2011). Sensitivity and Specificity of proposed DSM-IV diagnostic criteria for autism spectrum disorder. Journal of the American Academy of Child & Adolescent Psychiatry, 51(4), 368–383.CrossRefGoogle Scholar
  18. Mukaetova-Ladinska, E., Perry, E., Baron, M., & Povey, C. (2012). Aging in people with autistic spectrum disorder. International Journal of Geriatric Psychiatry, 27(2), 109–118.PubMedCrossRefGoogle Scholar
  19. National Institute of Clinical Excellence, (2012). Autism: Recognition, referral, diagnosis, and management of adults on the autism spectrum. Manchester, England: NICE Clinical Guideline.Google Scholar
  20. National Research Council. (2001). Educating young children with autism. Washington, DC: National Academy Press.Google Scholar
  21. Perkins, E. A., & Friedman, S. L. (2012). Introduction to the special issue on aging and end of life. American Journal on Intellectual and Developmental Disabilities, 117(6), 439–441.PubMedCrossRefGoogle Scholar
  22. Piven, J., & Rabins, P. (2011). Autism spectrum disorders in older adults: Toward defining a research agenda. Journal of the American Geriatrics Society, 59(11), 2151–2155.PubMedCrossRefGoogle Scholar
  23. Reichow, B., & Volkmar, F. R. (2011). Evidence-based practices in autism: Where we started. In B. Reichow, P. Doehring, D. V. Cicchetti, & F. R. Volkmar (Eds.), Evidence-based practices and treatments for children with autism (pp. 3–24). New York: Springer.CrossRefGoogle Scholar
  24. Rutter, M. (2011). Research review: Child psychiatric diagnosis and classification: Concepts, findings, challenges and potential. Journal of Child Psychology & Psychiatry & Allied Disciplines, 52(6), 647–660.CrossRefGoogle Scholar
  25. Rutter, M., Kim-Cohen, J., & Maughan, B. (2006). Continuities and discontinuities in psychopathology between childhood and adult life. Journal of Child Psychology & Psychiatry & Allied Disciplines, 47(3–4), 276–295.CrossRefGoogle Scholar
  26. Seltzer, M. M., Krauss, M. W., Shattuck, P. T., Orsmond, G., Swe, A., & Lord, C. (2003). The symptoms of autism spectrum disorders in adolescence and adulthood. Journal of Autism & Developmental Disorders, 33(6), 565–581.CrossRefGoogle Scholar
  27. Shattuck, P. T., Roux, A. M., Hudson, L. E., Taylor, J. L., Maenner, M. J., & Trani, J.-F. (2012). Services for adults with an autism spectrum disorder. The Canadian Journal of Psychiatry/La Revue canadienne de psychiatrie, 57(5), 284–291.Google Scholar
  28. Stoddart, K. P., Burke, L., Muskat, J., Duhaime, S., Accardi, C., Burnh Riosa, P., et al. (2013). Diversity in Ontarios youth and adults with autism spectrum disorders: Complex needs in unprepared systems. Toronto, ON: The Redpath Centre.Google Scholar
  29. Tsai, L. Y. (2012). Sensitivity and specificity: DSM-IV versus DSM-5 criteria for autism spectrum disorder. American Journal of Psychiatry, 169(10), 1009–1011.PubMedCrossRefGoogle Scholar
  30. Volkmar, F. R. (2011). Understanding the social brain in autism. Developmental Psychobiology, 53(5), 428–434.PubMedCrossRefGoogle Scholar
  31. Volkmar, F. R., & Klin, A. (1994). Social development in autism: Historical and clinical perspectives. In S. Baron-Cohen & H. Tager-Flusberg (Eds.), Understanding other minds: Perspectives from autism (pp. 40–55). Oxford, England: Oxford University Press.Google Scholar
  32. Volkmar, F. R., Klin, A., Schultz, R., Bronen, R., Marans, W. D., Sparrow, S., et al. (1996). Asperger’s syndrome. Journal of the American Academy of Child & Adolescent Psychiatry, 35(1), 118–123.CrossRefGoogle Scholar
  33. Volkmar, F. R., Reichow, B., & Doehring, P. (2011). Evidence-based practices in autism: Where we are now, and where we need to go. In B. Reichow, P. Doehring, D. V. Cicchetti, & F. R. Volkmar (Eds.), Evidence-based practices and treatments for children with autism (pp. 365–391). New York: Springer.CrossRefGoogle Scholar
  34. Volkmar, F. R., Reichow, B., Westphal, A., & Mandell, D. S. (2013). Autism and the autism spectrum: Diagnostic concepts. In F. Volkmar, R. Paul, K. Pelphrey, & S. Rogers (Eds.), Handbook of autism and pervasive developmental disorders. Hoboken, NJ: Wiley, (pp. 3–27).Google Scholar
  35. Wolff, L. E., Brown, J. T., & Bork, G. R. (2009). Students with Asperger syndrome: A guide for college personnel. Shawnee Mission, KS: APC.Google Scholar
  36. World Health Organization. (1993). International classification of disease. Geneva, Switzerland: Author.Google Scholar

Copyright information

© Springer Science+Business Media New York 2014

Authors and Affiliations

  • Fred R. Volkmar
    • 1
  • Brian Reichow
    • 2
  • James C. McPartland
    • 1
  1. 1.Yale Child Study CenterYale School of MedicineNew HavenUSA
  2. 2.AJ Pappanikou Center for Excellence in Developmental DisabilitiesUniversity of Connecticut Health CenterFarmingtonUSA

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