Economics of Autism Spectrum Disorders: An Overview of Treatment and Research Funding

  • Julie KornackEmail author
  • Angela Persicke
  • Paige Cervantes
  • Jina Jang
  • Dennis Dixon
Part of the Autism and Child Psychopathology Series book series (ACPS)


Without question, autism research and treatment are big business. Autism impacts multiple aspects of the lives of individuals with autism spectrum disorder (ASD), their families, and the communities in which they live, attend school, and engage socially and vocationally. With no easy cure or preventative measures on the horizon, the field of autism treatment has attracted a plethora of questionable industries, promoting everything from dolphin therapy to fad diets. While researchers around the globe endeavor to determine the etiology of ASD, the reality is that intervention based on the principles of applied behavior analysis (ABA) remains the only evidenced-based treatment for children with ASD. While fidelity and reliability are critical to its effectiveness, bad purveyors of ABA are ubiquitous, triggering government task forces and certificate programs as local, state, and federal governments struggle to regulate a growing multibillion-dollar business.


Funding Insurance Third party payment 


  1. Angelo, C. E. (2012). The law of HMO/PPO special needs state mandates. Accessed 08 April 2012.
  2. Autism Service Dogs of America. (2010). A service dog is an investment for everyone involved. Accessed 08 April 2012.
  3. Autism Treatment Center of America. (2012). Accessed 8 April 2012.
  4. Birnbrauer, J. S., & Leach, D. J. (1993). The Murdoch early intervention program after 2 years. Behavior Change, 10, 63–74.Google Scholar
  5. Blue Cross Blue Shield Technology Evaluation Center. (2009). Special report: Early intensive behavioral intervention based on applied behavior analysis among children with autism spectrum disorders. Assessment Program, 23, 9.Google Scholar
  6. Boyd, R. D., & Corley, M. J. (2001). Outcome survey of early intensive behavioral intervention for young children with autism in a community setting. Autism, 5, 430–441.PubMedCrossRefGoogle Scholar
  7. Broughton v. Cigna Healthplans of California, 21 Cal.4th 1066 (Cal. 1999).Google Scholar
  8. Center for Medicare & Medicaid Services. (2011). Report on state services to individuals with autism spectrum disorders: CMS ASD Services Project (S-10 CMS-33 No. 2). Cambridge: Abt Associates Inc. Accessed 04 March 2012.
  9. Center for Special Education Finance. (2004). State special education finance systems, 1999–2000. Palo Alto: Author. Accessed 13 March 2012.
  10. Chasson, G., Harris, G., & Neely, E. (2007). Cost comparison of early intensive behavioral intervention and special education for children with autism. Journal of Family Sciences, 16, 401–413.Google Scholar
  11. Chez, M. G., Buchanan, C. P., Bagan, B. T., Hammer, M. S., McCarthy, K. S., Ovrutskaya, I., Nowinski, C. V., & Cohen, Z. S. (2000). Secretin and autism: A two-part clinical investigation. Journal of Autism and Developmental Disorders, 30, 87–94.PubMedCrossRefGoogle Scholar
  12. Clark, E., & Zhou, Z. (2005). Autism in China: From acupuncture to applied behavior analysis. Psychology in the Schools, 42, 285–295.CrossRefGoogle Scholar
  13. Cohen, H., Amerine-Dickens, M., & Smith, T. (2006). Early intensive behavioral treatment: Replication of the UCLA model in a community setting. Journal of Development and Behavioral Pediatrics, 27, 145–155.CrossRefGoogle Scholar
  14. CoinNews Media Group LLC. US inflation calculator. Accessed 23 February 2012.
  15. Devlin, S., Healy, O., Leader, G., & Hughes, B. M. (2010). Comparison of behavioral intervention and sensory-integration therapy in the treatment of challenging behavior. Journal of Autism and Developmental Disorders, 41, 1303–1320.CrossRefGoogle Scholar
  16. Fein, D., Barton, M., Eigsti, I., Kelley, E., Naigles, L., Schultz, R. T., Stevens, M., Helt, M., Orinstein, M., Rosenthal, M., Troyb, E., & Tyson, K. (2013). Optimal outcome in individuals with a history of autism. Journal of Child Psychology and Psychiatry, 54(2), 195–205.PubMedCrossRefPubMedCentralGoogle Scholar
  17. Ganz, M. L. (2006). The cost of autism. New York: CRC Press.Google Scholar
  18. Ganz, M. L. (2007). The lifetime distribution of the incremental societal costs of autism. Archives of Pediatric and Adolescent Medicine, 161, 343–349.CrossRefGoogle Scholar
  19. Granpeesheh, D., Tarbox, J., Dixon, D. R., Wilke, A. E., Allen, M. S., & Bradstreet, J. J. (2010). Randomized trial of hyperbaric oxygen therapy for children with autism. Research in Autism Spectrum Disorders, 4, 268–275.CrossRefGoogle Scholar
  20. Howard, J. S., Sparkman, C. R., Cohen, H. G., Green, G., & Stanislaw, H. (2005). A comparison of intensive behavior analytic and eclectic treatments for young children with autism. Research in Developmental Disabilities, 26, 359–383.PubMedCrossRefGoogle Scholar
  21. Individuals With Disabilities Education Act, 20 U.S.C. § 1400 (2004).Google Scholar
  22. Jacobson, J. W., Mulick, J. A., & Green, G. (1998). Cost–benefit estimates for early intensive behavioral intervention for young children with autism—general model and single state case. Behavioral Interventions, 13, 201–226.CrossRefGoogle Scholar
  23. Jepson, B., Granpeesheh, D., Tarbox, J., Olive, M., Stott, C., Braud, S., Yoo J. H., Wakefield, A., & Allen, M. S. (2011). Controlled evaluation of the effects of hyperbaric oxygen therapy on the behavior of 16 children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 575–588.PubMedCrossRefGoogle Scholar
  24. K. G. v. Dudek., F. Supp. 25–27 (S.D. Florida. 2012).Google Scholar
  25. Knapp, M., Romeo, R., & Beecham, J. (2009). Economic cost of autism in the UK. Autism, 13, 317–336.PubMedCrossRefGoogle Scholar
  26. Knapp, M., Mandell, D., Buescher, A., & Cidav, Z. (2012, March). Autism: Economic impact and implications. Presented at investing in our future: The economic costs of autism conference, Hong Kong.Google Scholar
  27. Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008). National profile of the health care experiences and family impact of autism spectrum disorder among children in the United States, 2005–2006. Pediatrics, 122, 1149–1158.CrossRefGoogle Scholar
  28. Liptak, G. S., Stuart, T., & Auinger, P. (2006). Health care utilization and expenditures for children with autism: Data from US national samples. Journal of Autism and Developmental Disorders, 36, 871–879.PubMedCrossRefGoogle Scholar
  29. Lovaas, O. I. (1987). Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of Consulting and Clinical Psychology, 55, 3–9.PubMedCrossRefGoogle Scholar
  30. McEachin, J. J., Smith, T., & Lovaas, O. I. (1993). Long-term outcome for children with autism who received early intensive behavioral treatment. American Journal on Mental Retardation, 97, 359–372.PubMedGoogle Scholar
  31. Mendoza, R. L. (2010). The economics of autism in Egypt. American Journal of Economics and Business Administration, 2, 12–19.CrossRefGoogle Scholar
  32. Mudford, O. C., Cross, B. A., Breen, S., Cullen, C., Reeves, D., Gould, J., & Douglas, J. (2000). Auditory integration training for children with autism: No behavioral benefits detected. American Journal on Mental Retardation, 105, 118–129.PubMedCrossRefGoogle Scholar
  33. National Autism Center. (2009). National standards project: Evidence-based practice and autism spectrum disorders. Randolph: Author.Google Scholar
  34. National Conference of State Legislatures. (2012). Autism legislation database. Accessed 14 March 2012.
  35. Remington, B., Hastings, R. P., Kovshoff, H., Espinosa, F., Jahr, E., Brown, T., et al. (2007). Early intensive behavioral intervention: Outcomes for children with autism and their parents after two years. American Journal on Mental Retardation, 112, 418–438.PubMedCrossRefGoogle Scholar
  36. Rush University Medical Center. (n.d.). Floortime DIR (Developmental, Individual, Relationship-Based Model) Accessed 09 April 2012.
  37. Sallows, G. O., & Graupner, T. D. (2005). Intensive behavioral treatment for children with autism: Four-year outcome and predictors. American Journal of Mental Retardation, 110, 417–438.PubMedCrossRefGoogle Scholar
  38. Smith, T., Groen, A., & Wynn, J. (2000). Randomized trial of intensive early intervention for children with pervasive developmental disorder. American Journal of Mental Retardation, 105, 269–285.PubMedCrossRefGoogle Scholar
  39. Social Security Act, 42 U.S.C. § 405 (1935).Google Scholar
  40. Spigel, S. (2007). Medicaid autism waivers and state agencies serving people with autism. (OLR Research Report, 2007-R-0319). Connecticut: General Assembly. Accessed 17 Jan 2012.
  41. The Affordable Care Act. (2010). Protecting consumers and putting patients back in charge of their care. Washington, DC: U.S. Dept. of Labor, Employee Benefits Security Administration.Google Scholar
  42. Treatments. (2010). Accessed 10 April 2012.
  43. TRICARE Operations Manual. (2002). Washington, D.C.: U.S. Department of Defense Military Health System. Accessed 22 February 2012.
  44. Wang, L., & Leslie, D. L. (2010). Health care expenditures for children with autism spectrum disorders in medicaid. Journal of the American Academy of Child & Adolescent Psychiatry, 49, 1165–1171.Google Scholar
  45. World Health Organization. (2012). Accessed 1 April 2012.
  46. Xiong, N., Yang, L., Yu, Y., Hou, J., Li, J., Li, Y., Liu, H., Zhang, Y., & Jiao, Z. (2011). Investigation of raising burden of children with autism, physical disability and mental disability in China. Research in Developmental Disabilities, 32, 306–311.PubMedCrossRefGoogle Scholar
  47. Zane, T., Davis, C., & Rosswurm, M. (2009). The cost of fad treatments in autism. Journal of Early and Intensive Behavior Intervention, 5, 44–51.Google Scholar

Copyright information

© Springer Science+Business Media New York 2014

Authors and Affiliations

  • Julie Kornack
    • 1
    Email author
  • Angela Persicke
    • 1
  • Paige Cervantes
    • 2
  • Jina Jang
    • 2
  • Dennis Dixon
    • 1
  1. 1.Center for Autism and Related DisordersTarzanaUSA
  2. 2.Louisiana State UniversityBaton RougeUSA

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