Economics of Autism Spectrum Disorders: An Overview of Treatment and Research Funding
Without question, autism research and treatment are big business. Autism impacts multiple aspects of the lives of individuals with autism spectrum disorder (ASD), their families, and the communities in which they live, attend school, and engage socially and vocationally. With no easy cure or preventative measures on the horizon, the field of autism treatment has attracted a plethora of questionable industries, promoting everything from dolphin therapy to fad diets. While researchers around the globe endeavor to determine the etiology of ASD, the reality is that intervention based on the principles of applied behavior analysis (ABA) remains the only evidenced-based treatment for children with ASD. While fidelity and reliability are critical to its effectiveness, bad purveyors of ABA are ubiquitous, triggering government task forces and certificate programs as local, state, and federal governments struggle to regulate a growing multibillion-dollar business.
KeywordsFunding Insurance Third party payment
- Angelo, C. E. (2012). The law of HMO/PPO special needs state mandates. http://autismresearchgroup.org/resources.aspx. Accessed 08 April 2012.
- Autism Service Dogs of America. (2010). A service dog is an investment for everyone involved. http://autismservicedogsofamerica.com/for-families/costs/. Accessed 08 April 2012.
- Autism Treatment Center of America. (2012). http://www.autismtreatmentcenter.org/contents/programs_and_services/index.php. Accessed 8 April 2012.
- Birnbrauer, J. S., & Leach, D. J. (1993). The Murdoch early intervention program after 2 years. Behavior Change, 10, 63–74.Google Scholar
- Blue Cross Blue Shield Technology Evaluation Center. (2009). Special report: Early intensive behavioral intervention based on applied behavior analysis among children with autism spectrum disorders. Assessment Program, 23, 9.Google Scholar
- Broughton v. Cigna Healthplans of California, 21 Cal.4th 1066 (Cal. 1999).Google Scholar
- Center for Medicare & Medicaid Services. (2011). Report on state services to individuals with autism spectrum disorders: CMS ASD Services Project (S-10 CMS-33 No. 2). Cambridge: Abt Associates Inc. www.cms.gov/apps/files/9-State-Report.pdf. Accessed 04 March 2012.
- Center for Special Education Finance. (2004). State special education finance systems, 1999–2000. Palo Alto: Author. http://www.csef-air.org/publications/csef/state/statepart2.pdf. Accessed 13 March 2012.
- Chasson, G., Harris, G., & Neely, E. (2007). Cost comparison of early intensive behavioral intervention and special education for children with autism. Journal of Family Sciences, 16, 401–413.Google Scholar
- CoinNews Media Group LLC. US inflation calculator.http://www.coinnews.net/tools/cpi-inflation-calculator/. Accessed 23 February 2012.
- Fein, D., Barton, M., Eigsti, I., Kelley, E., Naigles, L., Schultz, R. T., Stevens, M., Helt, M., Orinstein, M., Rosenthal, M., Troyb, E., & Tyson, K. (2013). Optimal outcome in individuals with a history of autism. Journal of Child Psychology and Psychiatry, 54(2), 195–205.PubMedCrossRefPubMedCentralGoogle Scholar
- Ganz, M. L. (2006). The cost of autism. New York: CRC Press.Google Scholar
- Individuals With Disabilities Education Act, 20 U.S.C. § 1400 (2004).Google Scholar
- Jepson, B., Granpeesheh, D., Tarbox, J., Olive, M., Stott, C., Braud, S., Yoo J. H., Wakefield, A., & Allen, M. S. (2011). Controlled evaluation of the effects of hyperbaric oxygen therapy on the behavior of 16 children with autism spectrum disorders. Journal of Autism and Developmental Disorders, 41, 575–588.PubMedCrossRefGoogle Scholar
- K. G. v. Dudek., F. Supp. 25–27 (S.D. Florida. 2012).Google Scholar
- Knapp, M., Mandell, D., Buescher, A., & Cidav, Z. (2012, March). Autism: Economic impact and implications. Presented at investing in our future: The economic costs of autism conference, Hong Kong.Google Scholar
- National Autism Center. (2009). National standards project: Evidence-based practice and autism spectrum disorders. Randolph: Author.Google Scholar
- National Conference of State Legislatures. (2012). Autism legislation database. http://www.ncsl.org/issues-research/health/autism-legislation-database.aspxautism. Accessed 14 March 2012.
- Rush University Medical Center. (n.d.). Floortime DIR (Developmental, Individual, Relationship-Based Model) http://www.rush.edu/rumc/page-1234554477362.html. Accessed 09 April 2012.
- Social Security Act, 42 U.S.C. § 405 (1935).Google Scholar
- Spigel, S. (2007). Medicaid autism waivers and state agencies serving people with autism. (OLR Research Report, 2007-R-0319). Connecticut: General Assembly. http://www.cga.ct.gov/2007/rpt/2007-R-0319.htm. Accessed 17 Jan 2012.
- The Affordable Care Act. (2010). Protecting consumers and putting patients back in charge of their care. Washington, DC: U.S. Dept. of Labor, Employee Benefits Security Administration.Google Scholar
- Treatments. (2010). http://www.kylestreehouse.org/treatments.aspx. Accessed 10 April 2012.
- TRICARE Operations Manual. (2002). Washington, D.C.: U.S. Department of Defense Military Health System. http://manuals.tricare.osd.mil/DisplayManual.aspx?SeriesId=OPERATIONS&TO02=136. Accessed 22 February 2012.
- Wang, L., & Leslie, D. L. (2010). Health care expenditures for children with autism spectrum disorders in medicaid. Journal of the American Academy of Child & Adolescent Psychiatry, 49, 1165–1171.Google Scholar
- World Health Organization. (2012). http://www.who.int/about/en/. Accessed 1 April 2012.
- Zane, T., Davis, C., & Rosswurm, M. (2009). The cost of fad treatments in autism. Journal of Early and Intensive Behavior Intervention, 5, 44–51.Google Scholar