Using Community-Based Participatory Research to Understand and Eliminate Social Disparities in Health for Lesbian, Gay, Bisexual, and Transgender Populations

  • Mary E. Northridge
  • Brian P. McGrath
  • Sam Quan Krueger

Abstract

In the United States, public health developed to a large degree as a voluntary movement—or, more accurately, a set of different voluntary movements—each campaigning for some particular health reform. As these movements became professionalized, as the first health departments were created, and as the first schools of public health were developed, scientific education was seen as the necessary basis of rational social and health reform. Over time, and especially after World War II, pressures on schools of public health led to an ever greater emphasis on research than on practice, a tendency fueled by the funding mechanisms of the National Institutes of Health. By the 1980s it had become clear that the schools of public health and their research productivity had become ever more clearly divorced from the activities of public health departments. The movement to community-based participatory research (CBPR) was, then, an attempt to reconnect the research enterprise with the actual needs of public health as defined by the people whose health was to be affected.

Keywords

Participatory Research Sexual Minority Queer Theory LGBT Community LGBT Individual 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. AIDS Coalition to Unleash Power (ACT UP). (2005) http://www.actupny.org.Google Scholar
  2. Andriote, J-M. (1999) Victory deferred: how AIDS changed gay life in America. University of Chicago Press, Chicago.Google Scholar
  3. Asian and Pacific Islander Coalition on HIV/AIDS (APICHA). (2005) http://www.apicha.org/apicha/pages/education/lgbt/slaaap.html.Google Scholar
  4. Cornwall, A., and Jewkes, R. (1995) What is participatory research? Social Science and Medicine 41:1667–1676.PubMedCrossRefGoogle Scholar
  5. Duran, E., and Duran, B. (1995) Native American postcolonial psychology. State University of New York Press, Albany, NY.Google Scholar
  6. Friere, P. (1970) Pedagogy of the oppressed. Seabury Press, New York.Google Scholar
  7. Graziano, K.J. (2004) Oppression and resiliency in a post-apartheid South Africa: unheard voices of Black gay men and lesbians. Cultural Diversity & Ethnic Minority Psychology 10:302–316.CrossRefGoogle Scholar
  8. Green, L., George, M.A., Daniel, M., Frankish, C.J., Herbert, C.P., Bowie, W.R., and O’Neill, M. (1995) Study of participatory research in health promotion: review and recommendations for the development of participatory research in health promotion in Canada. Royal Society of Canada, Vancouver, BC.Google Scholar
  9. Green, L.W. (2001) From research to “best practices” in other settings and populations. American Journal of Health Behavior 25:165–178.PubMedGoogle Scholar
  10. Griffin, P. (1992) From hiding out to coming out: empowering lesbian and gay educators. Journal of Homosexuality 22:167–196.PubMedCrossRefGoogle Scholar
  11. Israel, B.A. (2000) The Detroit community-academic Urban Research Center: principles, rationale, challenges and lessons learned through a community-based participatory research partnership. Presented at the Summer Public Health Research Institute and Videoconference on Minority Health, Chapel Hill, NC, June 16, 2000. Available at: http://minority.unc.edu/institute/2000/materials/slides/BarbaraIsrael-2000-06-12.ppt.Google Scholar
  12. Israel, B.A., Schulz, A.J., Parker, E., and Becker, A.B. (1998) Review of community-based research: assessing partnership approaches to improve public health. Annual Review of Public Health 19:173–202.PubMedCrossRefGoogle Scholar
  13. Kegeles, S.M., Hays, R.B., and Coates, T.J. (1996) The Mpowerment Project: a community-level HIV intervention for young gay men. American Journal of Public Health 86:1129–1136.PubMedGoogle Scholar
  14. Lewin, K. (1946) Action research and minority problems. Journal of Social Issues 2:34–46.CrossRefGoogle Scholar
  15. Link, B.G., and Phelan, J.C. (1995) Social conditions as fundamental causes of disease. Journal of Health and Social Behavior 36:80–94 (extra issue).CrossRefGoogle Scholar
  16. MacQueen, K.M., McLellan, E., Metzger, D.S., Kegeles, S., Strauss, R.P., Scotti, R., Blanchard, L., and Trotter, R.T. II (2001) What is community? An evidence-based definition for participatory public health. American Journal of Public Health 91:1929–1938.PubMedGoogle Scholar
  17. Maguire, P. (1987) Doing participatory research: a feminist approach. Center for International Education, Amherst, MA.Google Scholar
  18. Mayer, K., Appelbaum, J., Rogers, T., Lo, W., Bradford, J., and Boswell, S. (2001) The evolution of the Fenway Community Health model. American Journal of Public Health 91:892–894.PubMedGoogle Scholar
  19. McGrath, B., Watkins, M., and Lee, M-J. (1994) In Queer space. Exhibition pamphlet, Store Front for Art and Architecture, New York, June 1994, unpaginated.Google Scholar
  20. Meyer, I.H. (2001) Why lesbian, gay, bisexual, and transgender public health? American Journal of Public Health 91:856–859.PubMedGoogle Scholar
  21. Minkler, M. (2005) Community-based research partnerships: challenges and opportunities. Journal of Urban Health 82(Suppl 2):ii3–ii12.PubMedGoogle Scholar
  22. Mulvey, A., Terenzio, M., Hill, J., Bond, M.A., Huygens, I., Hamerton, H.R., and Cahill, S. (2000) Stories of relative privilege: power and social change in feminist community psychology. American Journal of Community Psychology 28:883–911.PubMedCrossRefGoogle Scholar
  23. Northridge, M.E., and Sclar, E. (2003) A joint urban planning and public health framework: contributions to health impact assessment. American Journal of Public Health 93:118–121.PubMedCrossRefGoogle Scholar
  24. Northridge, M.E., Meyer, I.H., and Dunn, L. (2002) Overlooked and underserved in Harlem: a population-based survey of adults with asthma. Environmental Health Perspectives 110(Suppl 2):217–220.PubMedGoogle Scholar
  25. Northridge, M.E., Sclar, E.D., and Biswas, P. (2003) Sorting out the connections between the built environment and health: a conceptual framework for navigating pathways and planning healthy cities. Journal of Urban Health 80:556–568.PubMedGoogle Scholar
  26. Northridge, M.E., Shoemaker, K., Jean-Louis, B., Ortiz, B., Swaner, R., Vaughan, R.D., Cushman, L.F., Hutchinson, V.E., and Nicholas, S.W. (2005) What matters to communities? Using community-based participatory research to ask and answer questions regarding the environment and health; essays on the future of environmental health research: a tribute to Dr. Kenneth Olden. Environmental Health Perspectives 113(Suppl 1):34–41.Google Scholar
  27. Reed, C. (1996) Imminent domain: queer space in the built environment—we’re here: gay and lesbian presence in art and art history. Art Journal (Winter 1996). Available at: http://www.findarticles.com/p/articles/mi_m0425/is_n4_v55/ai_19101786.Google Scholar
  28. Schulz, A., and Northridge, M.E. (2004) Social determinants of health: implications for environmental health promotion. Health Education & Behavior 31:455–471.CrossRefGoogle Scholar
  29. Sclar, E.D., Northridge, M.E., and Karpel, E.M. (2005) Promoting interdisciplinary curricula and training in transportation, land use, physical activity, and health. Commissioned by the Transportation Research Board and the Institute of Medicine Committee on Physical Activity, Health, Transportation and Land Use. In: Does the built environment influence physical activity? Examining the evidence. Transportation Research Board Special Report 282. Washington, DC (November 20, 2005). Available at: http://www.trb.org/downloads/sr282papers/sr282paperstoc.pdf.Google Scholar
  30. Svendsen, E.S., and Campbell, L.K., (2005) Living Memorials Project—year 1 social and site assessment. General technical report NE-333. Newtown Square, PA. U.S. Department of Agriculture, Forest Service, Northeastern Research Station.Google Scholar
  31. USDA Forest Service, Northeastern Research Station. (2005) Living Memorials Project (November 20, 1995). Available at: http://www.livingmemorialsproject.net/index.htm.Google Scholar
  32. Wang, C., and Burris, M.A. (1997) Photovoice: concept, methodology, and use for participatory needs assessment. Health Education and Behavior 24:369–387.PubMedCrossRefGoogle Scholar

Copyright information

© Springer Science+Business Media, LLC 2007

Authors and Affiliations

  • Mary E. Northridge
    • 1
  • Brian P. McGrath
    • 2
  • Sam Quan Krueger
    • 3
  1. 1.Mailman School of Public HealthColumbia UniversityNew YorkUSA
  2. 2.Graduate School of Architecture, Planning and PreservationColumbia UniversityNew YorkUSA
  3. 3.United Way of New YorkNew YorkUSA

Personalised recommendations