Caregiving and Detrimental Mental and Physical Health Outcomes

  • Jamila Bookwala
  • Jennifer L. Yee
  • Richard Schulz
Part of the The Plenum Series in Social/Clinical Psychology book series (SSSC)


Depressive Symptom Adult Child Informal Caregiver Psychiatric Morbidity Care Recipient 
These keywords were added by machine and not by the authors. This process is experimental and the keywords may be updated as the learning algorithm improves.


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  1. Administration on Aging. (1997). Compassion in action: A look at caregiving in America [On-line]. Available: Scholar
  2. American Psychological Association. (1997). What practitioners should know about working with older adults. Washington, DC: Author.Google Scholar
  3. Bass, D. M., Noelker, L. S., & Rechlin, L. R. (1996). The moderating influence of service use on negative caregiving consequences. Journal of Gerontology: Social Sciences, 51B, S121–Sl31.Google Scholar
  4. Beach, S. R., Schulz, R., Yee, J. L., & Jackson, S. (in press). Negative (and positive) health effects of caring for a disabled spouse: When do they occur? Psychology and Aging.Google Scholar
  5. Beck, A. T., Ward, C. H., Mendelson, M., Mock, J,, & Erbaugh, J. (1961). An inventory for measuring depression. Archives of General Psychiatry, 4, 561–571.PubMedGoogle Scholar
  6. Blazer, D. G. (1994). Geriatric psychiatry. In R. E. Hales, S. C. Yudofsky, & J. A. Talbott (Eds.), The American Psychiatric Press textbook of psychiatry (2nd edition, pp. 1405–1421). Washington, DC: American Psychiatric Press.Google Scholar
  7. Bookwala, J., & Schulz, R. (1996). Spousal similarity in subjective well-being: The Cardiovascular Health Study. Psychology and Aging, 11, 582–590.CrossRefPubMedGoogle Scholar
  8. Bookwala, J., & Schulz, R. (1998). The role of neuroticism and mastery in spouse caregivers’ assessment of and response to a contextual stressor. Journal of Gerontology: Psychological Sciences, 53B, P155–P164.Google Scholar
  9. Burton, L. C., Newsom, J. T., Schulz, R., Hirsch, C. H., & German, P. S. (1997). Preventive health behaviors among spousal caregivers. Preventive Medicine, 26, 162–169.CrossRefPubMedGoogle Scholar
  10. Canning, R. D., Dew, M. A., & Davidson, S. (1996). Psychological distress among caregivers to heart transplant recipients. Social Science and Medicine, 42, 599–608.CrossRefPubMedGoogle Scholar
  11. Cochrane, J. J., Goering, P. N., & Rogers, J. M. (1997). The mental health of informal caregivers in Ontario: An epidemiological survey. American Journal of Public Health, 87, 2002–2007.PubMedCrossRefGoogle Scholar
  12. Collins, C. & Jones, R. (1997). Emotional distress and morbidity in dementia carers: A matched comparison of husbands and wives. International Journal of Geriatric Psychiatry, 12, 1168–1173.CrossRefPubMedGoogle Scholar
  13. Derogatis, L. R. (1983). SCL-9OR administration, scoring, and procedures manual-II (2nd edition). Towson:, MD: Clinical Psychometrics Research.Google Scholar
  14. Di Nardo, P. A., O’Brien, G. T., Barlow, D. H., Waddell, M. T., & Blanchard, E. B. (1983). Reliability of DSM-III anxiety disorder categories using a new structured interview. Archives of General Psychiatry, 40, 1070–1074.PubMedGoogle Scholar
  15. Draper, B. M., Poulos, R. G., Poulos, C. J., & Ehrlich, F. (1995). Risk factors for stress in elderly caregivers. International Journal of Geriatric Psychiatry, 11, 227–231.CrossRefGoogle Scholar
  16. Fingerman, K. L., Gallagher-Thompson, D., Lovett, S., & Rose, J. (1996). Internal resourcefulness, task demands, coping, and dysphoric affect. International Journal of Aging and Human Development, 42 (3), 229–248.PubMedGoogle Scholar
  17. Fuller-Jonap, F., & Haley, W. E. (1995). Mental and physical health of male caregivers of a spouse with Alzheimer’s disease. Journal of Aging and Health, 7 (1), 99–118.PubMedGoogle Scholar
  18. General Accounting Office. (1998). Alzheimer’s disease: Estimates of prevalence in the United States. (GAO/HEHS-98-16). Washington DC: United States General Accounting Office, Health, Education, and Human Services Division.Google Scholar
  19. Gignac, M. A. M., & Gottlieb, B. H. (1996). Caregivers’ appraisals of efficacy in coping with dementia. Psychology and Aging, 11,214–225.CrossRefPubMedGoogle Scholar
  20. Glaser, R., & Kiecolt-Glaser, J. K. (1997). Chronic stress modulates the virus-specific immune response to latent herpes simplex virus type 1. Annals of Behavioral Medicine, 19, 78–82.PubMedGoogle Scholar
  21. Goldberg, D. P., & Hillier, V. F. (1979). A scaled version of the General Health Questionnaire. Psychological Medicine, 9, 139–145.PubMedCrossRefGoogle Scholar
  22. Haley, W. E., West, C. A., Wadley, V. G., Ford, G. R., White, F. A., Barrett, J. J., Harrell, L. E., & Roth, D. L. (1995). Psychological, social, and health impact of caregiving: A comparison of black and white dementia caregivers and noncaregivers. Psychology and Aging, 10(4), 540–552.CrossRefPubMedGoogle Scholar
  23. Hamilton, M. (1967). Development of a rating scale for primary depressive illness. British Journal of Social and Clinical Psychology, 6, 278–296.PubMedGoogle Scholar
  24. Hooker, K., Monahan, D. J., Bowman, S. R., Frazier, L. D., & Shifren, K. (1998). Personality counts for a lot: Predictors of mental and physical health of spouse caregivers in two disease groups. Journal of Gerontology: Psychological Sciences, 53B, P73–P85.Google Scholar
  25. Irwin, M., Hauger, R., Patterson, T. L., Semple, S., Ziegler, M., & Grant, I. (1997). Alzheimer caregiver stress: Basal natural killer cell activity, pituitary-adrenal-cortical function, and sympathetic tone. Annals of Behavioral Medicine, 19, 83–90.PubMedGoogle Scholar
  26. Jutras, S., & Lavoie, J. P. (1995). Living with an impaired elderly person: The informal caregivers’ physical and mental health. Journal of Aging and Health, 7(1), 46–73.PubMedGoogle Scholar
  27. Kiecolt-Glaser, J. K., Glaser, R., Gravenstein, S., Malarkey, W. B., & Sheridan, J. (1996). Chronic stress alters the immune response to influenza virus vaccine in older adults. Proceedings of the National Academy of Sciences, USA, 93(7), 3043–3047.Google Scholar
  28. King, A. C., & Brassington, G. (1997). Enhancing physical and psychological functioning in older family caregivers: The role of regular activity. Annals of Behavioral Medicine, 29(2), 91–100.Google Scholar
  29. Kramer, B. J. (1997). Gain in the caregiving experience: Where are we? What next? The Gerontologist, 37, 218–232.PubMedGoogle Scholar
  30. Lawrence, R. H., Tennstedt, S. L., & Assmann, S. F. (1998). Quality of the caregiver-care recipient relation-ship: Does it offset negative consequences of caregiving for family caregivers? Psychology and Aging, 13, 150–158.CrossRefPubMedGoogle Scholar
  31. Li, L. W., Seltzer, M. M., & Greenberg, J. S. (1997). Social support and depressive symptoms: Differential patterns in wife and daughter caregivers. Journal of Gerontology: Social Sciences, 52B, S200–S211.Google Scholar
  32. Majerovitz, S. D. (1995). Role of family adaptability in the psychological adjustment of spouse caregivers to patients with dementia. Psychology and Aging, 20, 447–457.CrossRefGoogle Scholar
  33. Malone Beach, E. E., & Zarit, S. H. (1995). Dimensions of social support and social conflict as predictors of caregiver depression. International Psychogeriatrics, 7, 25–38.CrossRefGoogle Scholar
  34. Martire, L. M., Stephens, M. A. P., & Atienza, A. A. (1997). The interplay of work and caregiving: Relation-ships between role satisfaction, role involvement, and caregivers’ well-being. Journal of Gerontology: Social Sciences, 52B, S279–S289.Google Scholar
  35. Meshefedjian, G., McCusker, J., Bellavance, F., & Baumgarten, M. (1998). Factors associated with symptoms of depression among informal caregivers of demented elders in the community. Gerontologist, 38, 247–253.PubMedGoogle Scholar
  36. Miller, B., Campbell, R. T., Farran, C. J., Kaufman, J. R., & Davis, L. (1995). Race, control, mastery, and caregiver distress. Journal of Gerontology: Social Sciences, 50B, S374–S382.Google Scholar
  37. Miller, B., & Lawton, M. P. (1997). Introduction: Finding balance in caregiving research. Gerontologist, 37, 216–217.Google Scholar
  38. Moritz, D. J., Kasl, S. V., & Berkman, L. F. (1989). The health impact of living with a cognitively impaired spouse: Depressive symptoms and functioning. Journal of Gerontology: Social Sciences, 44, S17–S27.Google Scholar
  39. Mui, A. C. (1995). Perceived health and functional status among spouse caregivers of frail older persons. Journal of Aging and Health, 7(2), 283–300.PubMedGoogle Scholar
  40. National Alliance for Caregiving and the American Association for Retired Persons (1997). Family caregiving in the U.S.: Findings from a national survey: Final report. Bethesda, MD: National Alliance for Caregiving.Google Scholar
  41. Newsom, J. T., & Schulz, R. (1996). Social support as a mediator in the relation between functional status and quality of life in older adults. Psychology and Aging, 11, 34–44.CrossRefPubMedGoogle Scholar
  42. Newsom, J. T., & Schulz, R. (1998). Caregiving from the recipient’s perspective: Negative reactions to being helped. Health Psychology, 17, 172–181.CrossRefPubMedGoogle Scholar
  43. Pariante, C. M., Carpiniello, B., Orru, M. G., Sitzia, R., Piras, A., Farci, A. M. G., DelGiacco, G. S., Piludu, G., & Miller, A. H. (1997). Chronic caregiving stress alters peripheral blood immune parameters: The role of age and severity of stress. Psychotherapy and Psychosomatics, 66(4), 199–207.PubMedCrossRefGoogle Scholar
  44. Penning, M. J. (1998). In the middle: Parental caregiving in the context of other roles. Journal of Gerontology: Social Sciences, 53B, S188–S197.Google Scholar
  45. Pruchno, R. A., Burant, C. J. & Peters, N. D. (1997). Typologies of caregiving families: Family congruence and individual well-being. Gerontologist, 37, 157–168.PubMedGoogle Scholar
  46. Pruchno, R. A., Kleban, M. H., Michaels, J. E., & Dempsey, N. P. (1990). Mental and physical health of caregiving spouses: Development of a causal model. Journal of Gerontology: Psychological Sciences, 45, P192–P199.Google Scholar
  47. Pruchno, R., Patrick, J. H., & Burant, C. J. (1996). Mental health of aging women with children who are chronically disabled: Examination of a two-factor model. Journal of Gerontology: Social Sciences, 52, S284–S296.Google Scholar
  48. Pruchno, R., Peters, N. D., & Burant, C. J. (1995). Mental health of coresident family caregivers: Examination of a two-factor model. Journal of Gerontology: Psychological Sciences, 50B, P247–P256.Google Scholar
  49. Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385–401.Google Scholar
  50. Rauktis, M. E., Koeske, G. F., & Tershko, O. (1995). Negative social interactions, distress, and depression among those caring for a serious and persistently mentally ill relative. American Journal of Community Psychology, 23(2), 279–299.PubMedGoogle Scholar
  51. Redinbaugh, E. M., MacCullum, R. C., & Kiecolt-Glaser, J. K. (1995). Recurrent syndromal depression in caregivers. Psychology and Aging, 10(3), 358–368.CrossRefPubMedGoogle Scholar
  52. Rose-Rego, S. K., Strauss, M. E., & Smyth, K. A. (1998). Differences in the perceived well-being of wives and husbands caring for persons with Alzheimer’s disease. Gerontologist, 38, 224–230.PubMedGoogle Scholar
  53. Schulz, R., Mittelmark, M., Kronmal, R., Polak, J. F., Hirsch, C. H., German, P., & Bookwala, J. (1994). Predictors of perceived health status in elderly men and women: The Cardiovascular Health Study. Journal of Aging and Health, 6,419–447.PubMedGoogle Scholar
  54. Schulz, R., Newsom, J. T., Mittelmark, M., Burton, L., Hirsch, C., &Jackson, S. (1997). Health effects of caregiving: The Caregiver Health Effects Study: An ancillary study of the Cardiovascular Health Study. Annals of Behavioral Medicine, 19, 110–116.PubMedGoogle Scholar
  55. Schulz, R., O’ Brien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates, and causes. Gerontologist, 35, 771–791.PubMedGoogle Scholar
  56. Schulz, R., Visintainer, P., & Williamson, G. M. (1990). Psychiatric and physical morbidity effects of caregiving. Journal of Gerontology: Psychological Sciences, 45, P181–P191.Google Scholar
  57. Seltzer, M. M., Greenberg, J. S., Krauss, M. W. (1995). A comparison of coping strategies of aging mothers of adults with mental illness or mental retardation. Psychology and Aging, 10(1), 64–75.CrossRefPubMedGoogle Scholar
  58. Shaw, W. S., Patterson, T. L., Semple, Grant, I., Yu, E. S., Zhang, M. Y. He, Y., & Wu W. Y. (1997). A cross-cultural validation of coping strategies and their associations with caregiving distress. Gerontologist, 37, 490–504.PubMedGoogle Scholar
  59. Shaw, W. S., Patterson, T. L., Semple, S. J., Ho, S., Irwin, M. R., Hauger, R. L., & Grant, I. (1997). Longitudinal analysis of multiple indicators of health decline among spacial caregivers. Annals of Behavioral Medicine, 29(2), 101–109.CrossRefGoogle Scholar
  60. Skaff, M. M., Pearlin, L. I., & Mullan, J. T. (1996). Transitions in the caregiving career: Effects on sense of mastery. Psychology and Aging, 22, 247–257.CrossRefGoogle Scholar
  61. Smerglia, V. L., & Demling, G. T. (1997). Care-related decision-making satisfaction and caregiver well-being in families caring for older members. Gerontologist, 37(5), 658–665.PubMedGoogle Scholar
  62. Smith, G. C. (1996). Caregiving outcomes for older mothers of adults with mental retardation: A test of the two-factor model. Psychology and Aging, 11, 353–361.CrossRefPubMedGoogle Scholar
  63. Spitzer, R. L., Williams, J. B. W., Gibbon, M., & First, M. B. (1992). The structured clinical interview for DSM-III-R (SCID): History, rationale, and description. Archives of General Psychiatry, 49, 624–629.PubMedGoogle Scholar
  64. St.-Onge, M., & Lavoie, F. (1997). The experience of caregiving among mothers of adults suffering from psychotic disorders: Factors associated with their psychological distress. American Journal of Community Psychology, 25, 73–94.CrossRefPubMedGoogle Scholar
  65. Stephens, S., & Christianson, J. B. (1986). Informal care of the elderly. Lexington, MA: Lexington Books.Google Scholar
  66. Stephens, M. A. P., Franks, M. F., & Atienza, A. A. (1997). Where two roles intersect: Spillover between parent care and employment. Psychology and Aging, 22, 30–37.CrossRefGoogle Scholar
  67. Stephens, M. A. P., & Townsend A. L. (1997). Stress of parent care: Positive and negative effects of women’s other roles. Psychology and Aging, 12, 376–386.CrossRefPubMedGoogle Scholar
  68. Stone, R., Cafferata, G. L., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile. Gerontologist, 27, 616–626.PubMedGoogle Scholar
  69. Strawbridge, W. J., Wallhagen, M. I., Shema, S. J., & Kaplan, G. A. (1997). New burdens or more of the same? Comparing grandparent, spouse, and adult-child caregivers. Gerontologist, 37, 505–510.PubMedGoogle Scholar
  70. Tower, R. B., Kasl, S. V., & Moritz, D. J. (1997). The influence of spouse cognitive impairment on respondents’ depressive symptoms: The moderating role of marital closeness. Journal of Gerontology: Social Sciences, 52B, S259–S269.Google Scholar
  71. United States Bureau of the Census. (1995). Statistical brief 65+ in the United States. Washington, DC: Department of Commerce.Google Scholar
  72. Vitaliano, P. P., Russo, J., Scanlan, J. M., & Greeno, C. G. (1996). Weight changes in caregivers of Alzheimer’s care recipients: Psychobehavioral predictors. Psychology and Aging, 11, 155–163.CrossRefPubMedGoogle Scholar
  73. Vitaliano, P. P., Scanlan, J. M., Krenz, C., & Fujimoto, W. (1996). Insulin and glucose: Relationships with hassles, anger, and hostility in nondiabetic older adults. Psychosomatic Medicine, 58, 489–499.PubMedGoogle Scholar
  74. Vitaliano, P. P., Scanlan, J. M., Krenz, C., Schwartz, R. S., & Marcovina, S. M. (1996). Psychological distress, caregiving, and metabolic variables. Journal of Gerontology: Psychological Sciences, 52B, P290–P299.Google Scholar
  75. Williamson, G. M., & Schulz, R. (1995). Caring for a family member with cancer: Past communal behavior and affective reactions. Journal of Applied Social Psychology, 25, 93–116.Google Scholar
  76. Wright, L. K., Clipp, E. C., & George, L. K. (1993). Health consequences of caregiver stress. Medicine, Exercise, Nutrition, and Health, 2, 181–195.Google Scholar
  77. Zung, W. K. (1965). A self-rating depression scale. Archives of General Psychiatry, 22, 63–70.Google Scholar
  78. Zung, W. K. (1975). The measurement of depression. Columbus, OH: Merrill.Google Scholar

Copyright information

© Kluwer Academic Publishers 2002

Authors and Affiliations

  • Jamila Bookwala
    • 1
  • Jennifer L. Yee
    • 2
  • Richard Schulz
    • 3
  1. 1.Department of Psychology, Abington CollegePennsylvania State UniversityAbington
  2. 2.Center for Social and Urban ResearchUniversity of PittsburghPittsburgh
  3. 3.Department of Psychiatry and Center for Social and Urban ResearchUniversity of PittsburgPittsburg

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