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What Ethics Is, What It Is Not, and How We Are Going to Proceed

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Ethical Challenges in Genomics Research
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Abstract

This chapter gives an introductory account of ethics which at the same time starts to discuss particular issues that arise in genomics research ethics. The difference between ethics and the more focussed concerns and the methods of research ethics committees is explained in detail. The danger of confining ethical considerations to a committee or to one part of a project, including to the area of ethical legal and social implications of genomics is discussed, as are possible problems that might arise in the efforts to raise standards. Features of ethics discussed include: the link of ethics with universality, moral relativism, the aims of ethics and human well-being, the practical goals of ethics, moral motivation, the scope of ethics and precision in ethical argument, and the relation between ethics and other values especially the value of knowledge. A brief account is given of both reasoning in ethics and the relation between ethics and empirical work.

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References

  • Aristotle (1999) Nicomachean ethics (trans: Irwin T), 2nd edn. Hackett Publishing Company Inc., Indianapolis

    Google Scholar 

  • Aristotle (2011) The Eudemian ethics (trans: Kenny A). Oxford University Press, Oxford

    Google Scholar 

  • Bentham J (1823) An introduction to the principles of morals and legislation. London

    Google Scholar 

  • Boddington P (1998) Self-deception, vol 4, Encyclopedia of applied ethics. Academic, San Diego

    Google Scholar 

  • Carroli R, Gilmore I (2010) Miracle found as rescue teams ordered to stand down. The Guardian

    Google Scholar 

  • Centre for Genetics and Society. http://www.geneticsandsociety.org/

  • Dodd V, Hill A (2011) ‘Night stalker’ sexually assaulted elderly for 10 years after police blunder. The Guardian

    Google Scholar 

  • Festinger L (1962) A theory of cognitive dissonance. Stanford University Press, Stanford, CA

    Google Scholar 

  • Foundation for genomics and population health. http://www.phgfoundation.org/

  • Genetic Alliance. http://www.geneticalliance.org/

  • Genewatch UK. http://www.genewatch.org

  • Glasziou P, Chalmers I (2004) Ethics review roulette: what can we learn? Br Med J 328:121–122

    Article  Google Scholar 

  • Glover J (1977) Causing death and saving lives. Penguin, Harmondworth

    Google Scholar 

  • Haidt J (2001) The emotional dog and its rational tail: a social intuitionist approach to moral judgment. Psychol Rev 108(4):814–834. doi:10.1037/0033-295x.108.4.814

    Article  PubMed  CAS  Google Scholar 

  • Hare RM (1972) The language of morals. Clarendon, Oxford

    Google Scholar 

  • House of Lords Select Committee on Science and Technology (2009) Genomic medicine. The Stationary Office, London

    Google Scholar 

  • Human Genetics Commission. http://www.hgc.gov.uk/

  • Hume D (1957) An inquiry concerning the principles of morals. Bobbs Merril, Indianapolis

    Google Scholar 

  • Kant I (1948) Groundwork of the metaphysic of morals. Hutchinson University Library, London

    Google Scholar 

  • Kaufman D, Murphy J, Scott J, Hudson K (2008) Subjects matter: a survey of public opinions about a large genetic cohort study. Genet Med 10(11):831–839

    Article  PubMed  Google Scholar 

  • Mascalzoni D, Hicks A, Pramstaller P, Wjst M (2008) Informed consent in the genomics era. PLoS Med 5(9):e192

    Article  PubMed  Google Scholar 

  • Pearn J (1995) Publication: an ethical imperative. BMJ 310(6990):1313–1315

    Article  PubMed  CAS  Google Scholar 

  • Plato (1956) Protagoras and meno (trans: Guthrie WKC). Penguin, Harmondsworth

    Google Scholar 

  • Progress Educational Trust. http://www.progress.org.uk/home

  • Rawls J (1972) A theory of justice. Oxford University Press, London

    Google Scholar 

  • Roberts I, Prieto-Merino D, Shakur H, Chalmers I, Nicholl J (2011) Effect of consent rituals on mortality in emergency care research. Lancet 377(9771):1071–1072. doi:10.1016/s0140-6736(11)60317-6

    Article  PubMed  Google Scholar 

  • Sartre J-P (1973) Existentialism and humanism (trans: Mairet P). Eyre Methuen, London

    Google Scholar 

  • Wittgenstein L (1980) Culture and value (trans: Winch P). Basil Blackwell, Oxford

    Google Scholar 

  • WMA Declaration of Helsinki – Ethical Principles for Medical Research Involving Human Subjects (1964, updated 2008). Helsinki

    Google Scholar 

Download references

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Correspondence to Paula Boddington .

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Boddington, P. (2012). What Ethics Is, What It Is Not, and How We Are Going to Proceed. In: Ethical Challenges in Genomics Research. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-23699-0_3

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