Abstract
Personal Health Records (PHRs), patient-controlled information systems, are believed to be a key to transform healthcare. We argue that a single system, no matter how it is designed, is highly unlikely to have the power to reconfigure a whole sectors. PHRs are not merely technical objects that exist on their own but they should be considered as socio-technical arrangements of systems and users situated and adapted to the specific context of use. We argue that the design process should follow an analysis of this context with particular regard to healthcare system and local health institutions, e-health infrastructures and the strategies used by laypeople to manage their health. Our reflections are the result of our experience in a research/innovation project aimed at prototyping and testing a PHR for the whole population of an Italian region.
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References
Markle Foundation: Connecting for Health: the Personal Health Working Group. Final report (July 1, 2003), http://www.connectingforhealth.org/resources/final_phwg_report1.pdf
Gearon C.J.: Perspectives on the future of personal health records, http://www.chcf.org/~/media/Files/PDF/P/PHRPerspectives.pdf
Berg, M., Langenberg, C., vd Berg, I., Kwakkernaat, J.: Considerations for sociotechnical design: experiences with an electronic patient record in a clinical context. Int. J. Med. Inform. 52(1-3), 243–251 (1998)
Berg, M.: Patient care information systems and health care work: a sociotechnical approach. Int. J. Med. Inform. 55(2), 87–101 (1999)
American Health Information Management Association, American Medical Informatics Association: The value of personal health records. A joint position statement for consumers of healthcare. J. AHIMA 78(4), 22, 24 (2007)
Tang, P.C., Lansky, D.: The missing link: bridging the patient-provider health information gap. Health Affairs (Millwood) 24(5), 1290–1295 (2005)
Lansky, D., Brennan, P.F.: NHII 04 Personal Health Record Track (2004), http://aspe.hhs.gov/sp/nhii/Conference04/personal_health_paper.pdf
Markle Foundation. Connecting for Health: Americans Overwhelmingly Believe Electronic Personal Health Records Could Improve Their Health (2008), http://www.connectingforhealth.org/resources/ResearchBrief-200806.pdf
Johnston, D., Kaelber, D., Pan, E.C., Bu, D., Shah, S., Hook, J.M., Middleton, B.: A framework and approach for assessing the value of personal health records (PHRs). In: AMIA Annu. Symp. Proc., vol. 11, pp. 374–378 (2007)
Bodily, N.J., Carlston, D.A., Rocha, R.A.: Personal health records: key features within existing applications. In: AMIA Annu. Symp. Proc., vol. 11, p. 875 (2007)
Tang, P.C., Ash, J.S., Bates, D.W., Overhage, J.M., Sands, D.Z.: Personal health records: definitions, benefits, and strategies for overcoming barriers to adoption. J. Am. Med. Inform. Assoc. 13(2), 121–126 (2006)
Piras, E.M., Purin, B., Stenico, M., Forti, S.: Prototyping a personal health record taking social and usability perspectives into account. In: Kostkova, P. (ed.) eHealth 2009. LNICST, vol. 27, pp. 35–42. Springer, Heidelberg (2010)
Piras, E.M., Zanutto, A.: Prescriptions, x-rays and grocery lists. Designing a Personal Health Record to support (the invisible work of) health information management in the household. Computer Supported Cooperative Work 19(6), 585–613 (2010)
Project Health Design, http://www.projecthealthdesign.org
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© 2011 ICST Institute for Computer Science, Social Informatics and Telecommunications Engineering
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Purin, B., Piras, E.M. (2011). Personal Health Records among Institutions, Medical Records, and Patient Wisdom: A Socio-technical Approach. In: Szomszor, M., Kostkova, P. (eds) Electronic Healthcare. eHealth 2010. Lecture Notes of the Institute for Computer Sciences, Social Informatics and Telecommunications Engineering, vol 69. Springer, Berlin, Heidelberg. https://doi.org/10.1007/978-3-642-23635-8_19
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DOI: https://doi.org/10.1007/978-3-642-23635-8_19
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