Skip to main content

Quality of Life Tools to Inform Co-design in the Development of Assistive Technologies for People with Dementia and Their Carers

  • Conference paper
Ambient Assisted Living and Daily Activities (IWAAL 2014)

Part of the book series: Lecture Notes in Computer Science ((LNISA,volume 8868))

Included in the following conference series:

Abstract

A number of tools exist to measure quality of life (QoL) for people with dementia (PwD). A selection of existing measures are summarised, obtained from an online literature survey, comprising of scales administered either by healthcare professionals with the PwD (self-report) and/or their carers (proxy report) or from observation. It is suggested that a combination of such tools with user satisfaction questionnaires may provide a way to approach the problem of evaluating Assistive Technology (AT) solutions or inform co-design of technological solutions with PwD and their carers.

This is a preview of subscription content, log in via an institution to check access.

Access this chapter

Chapter
USD 29.95
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
eBook
USD 39.99
Price excludes VAT (USA)
  • Available as PDF
  • Read on any device
  • Instant download
  • Own it forever
Softcover Book
USD 54.99
Price excludes VAT (USA)
  • Compact, lightweight edition
  • Dispatched in 3 to 5 business days
  • Free shipping worldwide - see info

Tax calculation will be finalised at checkout

Purchases are for personal use only

Institutional subscriptions

Preview

Unable to display preview. Download preview PDF.

Unable to display preview. Download preview PDF.

References

  1. Scherer, M.J.: Outcomes of assistive technology use on quality of life. Disability & Rehabilitation 18(9), 439–448 (1996)

    Article  MathSciNet  Google Scholar 

  2. Lindsay, S., et al.: Empathy, participatory design and people with dementia. In: Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, pp. 521–530. ACM Press (2012)

    Google Scholar 

  3. Ettema, T.P., et al.: A review of quality of life instruments used in dementia. Quality of Life Research 14(3), 675–686 (2005)

    Article  Google Scholar 

  4. Ready, R.E., Ott, B.R.: Quality of life measures for dementia. Health and Quality of Life Outcomes 1(11), 1–9 (2003)

    Google Scholar 

  5. Orpwood, R., et al.: Designing technology to support quality of life of people with dementia. Technology and Disability 19(2), 103–112 (2007)

    Google Scholar 

  6. Peterson, C.B., Prasad, N.R., Prasad, R.: Assessing assistive technology outcomes with dementia. Gerontechnology 11(2), 259–268 (2012)

    Google Scholar 

  7. Ready, R.E., et al.: The Cornell-Brown scale for quality of life in dementia. Alzheimer Disease & Associated Disorders 16(2), 109–115 (2002)

    Article  Google Scholar 

  8. Brod, M., et al.: Conceptualization and measurement of quality of life in dementia: The dementia quality of life instrument (DQoL). The Gerontologist 39(1), 25–36 (1999)

    Article  Google Scholar 

  9. Hoe, J., et al.: Use of the QOL-AD for measuring quality of life in people with severe dementia—the LASER-AD study. Age and Ageing 34(2), 130–135 (2005)

    Article  Google Scholar 

  10. Selai, C.E., et al.: Assessing quality of life in dementia: Preliminary psychometric testing of the Quality of Life Assessment Schedule (QOLAS). Neuropsychological Rehabilitation 11(3-4), 219–243 (2001)

    Article  Google Scholar 

  11. Smith, S., et al.: Measurement of health-related quality of life for people with dementia: development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment 9(10), 1–93 (2005)

    Article  Google Scholar 

  12. Bilotta, C., et al.: Quality of life in older outpatients living alone in the community in Italy. Health & Social Care in the Community 20(1), 32–41 (2012)

    Article  MathSciNet  Google Scholar 

  13. Rabins, P.V., et al.: Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer’s disease. Journal of Mental Health and Aging 5(1), 33–48 (1999)

    Google Scholar 

  14. Weiner, M.F., et al.: The quality of life in late-stage dementia (QUALID) scale. Journal of the American Medical Directors Association 1(3), 114–116 (1999)

    MathSciNet  Google Scholar 

  15. Fossey, J., Lee, L., Ballard, C.: Dementia Care Mapping as a research tool for measuring quality of life in care settings: Psychometric pROPERTIES. International Journal of Geriatric Psychiatry 17(11), 1064–1070 (2002)

    Article  Google Scholar 

  16. Jutai, J., Day, H.: Psychosocial impact of assistive devices scale (PIADS). Technology and Disability 14(3), 107–111 (2002)

    Google Scholar 

  17. Demers, L., Weiss-Lambrou, R., Ska, B.: The Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2. 0): an overview and recent progress. Technology and Disability 14(3), 101–105 (2002)

    Google Scholar 

Download references

Author information

Authors and Affiliations

Authors

Editor information

Editors and Affiliations

Rights and permissions

Reprints and permissions

Copyright information

© 2014 Springer International Publishing Switzerland

About this paper

Cite this paper

Craven, M.P., De Filippis, M.L., Dening, T. (2014). Quality of Life Tools to Inform Co-design in the Development of Assistive Technologies for People with Dementia and Their Carers. In: Pecchia, L., Chen, L.L., Nugent, C., Bravo, J. (eds) Ambient Assisted Living and Daily Activities. IWAAL 2014. Lecture Notes in Computer Science, vol 8868. Springer, Cham. https://doi.org/10.1007/978-3-319-13105-4_57

Download citation

  • DOI: https://doi.org/10.1007/978-3-319-13105-4_57

  • Publisher Name: Springer, Cham

  • Print ISBN: 978-3-319-13104-7

  • Online ISBN: 978-3-319-13105-4

  • eBook Packages: Computer ScienceComputer Science (R0)

Publish with us

Policies and ethics