The first book about patient involvement in relation to HTA
Engages a wide range of international experts to write chapters to give academic, policy, HTA practice and patient organisation perspectives that are focussed on HTA
Arranged in 3 distinct sections - policy foundation, case studies of current experience and methods to obtain patients' perspectives - allowing readers to delve into what is of interest
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Table of contents (37 chapters)
About this book
This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences.
Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach.
With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA.
"If you’re not involving patients, you're not doing HTA!" - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA
- Health policy
- Patient experience
- Patient participation
- Patient perspectives
- Qualitative research
Editors and Affiliations
No. 9 Bioquarter, Usher Institute of Population Health Sciences and Informatics, University of Edinburgh, Edinburgh, United Kingdom
Karen M. Facey
Department of Public Health, Research Unit of General Practice, University of Southern Denmark, Institute of Public Health, Odense, Denmark
Helle Ploug Hansen
Patient and Citizen Involvement Interest, HTAi, Ashgrove, Australia
Ann N.V. Single
About the editors
Helle Ploug Hansen, PhD, MA is professor in humanistic rehabilitation research, the University of Southern Denmark, Department of Public Health, Denmark. She holds a Ph.D. degree and an extended master degree in Anthropology from the University of Copenhagen. She has been active within the field of HTA since 2001, and among other things been the author of several chapters in the Danish Handbook of HTA. Furthermore Hansen has edited a special issue in the International Journal of Technology Assessment in Health Care together with Karen Facey. She has conducted several ethnographic fieldwork studies in Denmark addressing psycho-social and rehabilitative aspects related to men and women with cancer. She has published several books and many peer-reviewed articles. She is visiting professor in nursing at a rehabilitation hospital in Oslo, Norway.
Ann Single, B.Bus (Journalism) MA (Writing), specialises in patient involvement and communication. She has been an active member of the HTAi Interest Group for Patient and Citizen Involvement in HTA for the past decade and a lay reviewer for several journals. She has previously worked as the director of communication and patient involvement at the Health Technology Board for Scotland, managed science engagement programmes in Australia, and served as secretary for a patient group. She has contributed to a variety of papers on patient involvement and tools for patient participation including compiling a glossary of HTA terms for patients. She is interested in storytelling, especially what can be learnt from the stories of patients and care-givers.
Book Title: Patient Involvement in Health Technology Assessment
Editors: Karen M. Facey, Helle Ploug Hansen, Ann N.V. Single
Publisher: Adis Singapore
Copyright Information: Springer Nature Singapore Pte Ltd. 2017
Hardcover ISBN: 978-981-10-4067-2Published: 27 May 2017
Softcover ISBN: 978-981-13-5039-9Published: 11 December 2018
eBook ISBN: 978-981-10-4068-9Published: 15 May 2017
Edition Number: 1
Number of Pages: XXVI, 434
Number of Illustrations: 5 b/w illustrations, 15 illustrations in colour