Patient Involvement in Health Technology Assessment

  • Karen M. Facey
  • Helle Ploug Hansen
  • Ann N.V. Single

Table of contents

  1. Front Matter
    Pages i-xxvi
  2. Conceptualisation

    1. Front Matter
      Pages 1-1
    2. Karen M. Facey
      Pages 3-16
    3. Lars Sandman, Kenneth Bond, Björn Hofmann
      Pages 17-29
    4. Helle Ploug Hansen, Jackie Street
      Pages 31-42
    5. Sophie Staniszewska, Sophie Werkö
      Pages 43-50
    6. Karen M. Facey, Ann N. V. Single
      Pages 67-79
    7. Vikki A. Entwistle, Stacy M. Carter
      Pages 81-86
  3. Methodologies

    1. Front Matter
      Pages 87-87
    2. Kirstie L Haywood, Maarten de Wit, Sophie Staniszewska, Thomas Morel, Sam Salek
      Pages 103-120
    3. Antje Tockhorn-Heidenreich, Mandy Ryan, Rodolfo Hernández
      Pages 121-133
    4. Marion Danner, Andreas Gerber-Grote
      Pages 135-147
    5. Tine Tjørnhøj-Thomsen, Helle Ploug Hansen
      Pages 149-163
    6. Jackie M. Street, Edilene Lopes
      Pages 165-173
    7. Jackie Street, Lucy Farrell
      Pages 175-185
    8. Andrew Booth
      Pages 187-199
    9. Marie-Pierre Gagnon, Mylène Tantchou Dipankui, Deirdre DeJean
      Pages 201-213

About this book


‘If you’re not involving patients, you're not doing HTA!’ - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA

This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences.

Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach.

With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA.


Health policy Patient experience Patient participation Patient perspectives Pharmacoeconomics Qualitative research

Editors and affiliations

  • Karen M. Facey
    • 1
  • Helle Ploug Hansen
    • 2
  • Ann N.V. Single
    • 3
  1. 1.No. 9 BioquarterUsher Institute of Population Health Sciences and Informatics, University of EdinburghEdinburghUnited Kingdom
  2. 2.Department of Public HealthResearch Unit of General Practice, University of Southern Denmark, Institute of Public HealthOdenseDenmark
  3. 3.Patient and Citizen Involvement InterestHTAiAshgroveAustralia

Bibliographic information

  • DOI
  • Copyright Information Springer Nature Singapore Pte Ltd. 2017
  • Publisher Name Adis, Singapore
  • eBook Packages Medicine
  • Print ISBN 978-981-10-4067-2
  • Online ISBN 978-981-10-4068-9
  • About this book