Pediatric Palliative Care: Global Perspectives

1. Front Matter

   Pages i-xxv

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2. Overview

   1. Front Matter

      Pages 1-1

      PDF

   2. An Overview of Pediatric Palliative Care

      • Caprice Knapp, Vanessa Madden, Lindsey Woodworth, Susan Fowler-Kerry

      Pages 3-13

3. Africa

   1. Front Matter

      Pages 15-15

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   2. Pediatric Palliative Care in Malawi

      • Fred Chiputula, Zoe Palmer

      Pages 17-26

   3. Paediatric Palliative Care in South Africa

      • Joan Marston, Busi Nkosi, Annanda Bothma

      Pages 27-39

   4. Paediatric Palliative Care in Uganda

      • Julia Downing, Jane Nakawesi, Rose Kiwanuka

      Pages 41-64

   5. Pediatric Palliative Care in Zimbabwe

      • Jenny Hunt, Eunice Garanganga

      Pages 65-78

4. Asia

   1. Front Matter

      Pages 79-79

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   2. Pediatric Palliative Care in Armenia

      • Colette Cunningham, Gayane Tovmasyan, Narine Movsisyan

      Pages 81-90

   3. Pediatric Palliative Care in India

      • Lulu Mathews, K. Suresh Kumar

      Pages 91-108

   4. Pediatric Palliative Care in Malaysia

      • Ednin Hamzah, Geok Lan Kuan

      Pages 109-126

   5. Pediatric Palliative Care in the Middle East

      • Michael Silbermann, Maha Arnaout, Hany Abdel Rahman Sayed, Mohamed Sedky, Mohammad El-Shami, Myriam Ben-Arush et al.

      Pages 127-159

   6. Pediatric Palliative Care in Saudi Arabia

      • Saleh Al-Alaiyan, Mohammad Zafir Al-Shahri

      Pages 161-168

   7. Paediatric Palliative Care in Singapore

      • Mei-Yoke Chan, Noor Aishah Abdul Rashid

      Pages 169-183

   8. Pediatric Palliative Care in Thailand

      • Srivieng Pairojkul

      Pages 185-205

5. Europe

   1. Front Matter

      Pages 207-207

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   2. Pediatric Palliative Care in Germany

      • Christian Loffing, Dina Loffing, Sabine Kraft, Martina Göß, Melanie van Dijk, Tobias Schellenberg et al.

      Pages 209-237

   3. Pediatric Palliative Care in Ireland

      • Colette Cunningham, Philip J. Larkin

      Pages 239-250

   4. Pediatric Palliative Care in Poland

      • Marek W. Karwacki

      Pages 251-268

The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.

• Palliative care
• children
• end-of-life
• hospice
• international
• maternal and child health

• , Department of Health Outcomes and Policy, University of Florida, Gainesville, USA

  Caprice Knapp, Vanessa Madden

• , College of Nursing, University of Saskatchewan, Saskatoon, Canada

  Susan Fowler-Kerry

Policies and ethics