© 2011

Biobanks and Tissue Research

The Public, the Patient and the Regulation

  • Christian Lenk
  • Judit Sándor
  • Bert Gordijn
  • Comprehensive ethical and legal perspective

  • Focus on the most important discussions in the field

  • Targeting of “hot topics” like forensic research and biobanking Unique, European perspective

  • Renowned group of international authors


Part of the The International Library of Ethics, Law and Technology book series (ELTE, volume 8)

Table of contents

  1. Front Matter
    Pages i-viii
  2. Biobanks, Tissue Research and the Public

  3. The Rights of Donors and Patients

    1. Front Matter
      Pages 79-79
    2. Eugenijus Gefenas, Vilius Dranseika, Asta Cekanauskaite, Jurate Serepkaite
      Pages 95-110
    3. Emma Bullock, Heather Widdows
      Pages 111-125
    4. Claudio Tamburrini
      Pages 127-140
  4. Regulation of Tissue Research

    1. Front Matter
      Pages 141-141
    2. Renzo Pegoraro, Alessandra Bernardi, Fabrizio Turoldo
      Pages 185-200
    3. Judit Sándor, Petra Bárd
      Pages 213-230
  5. Back Matter
    Pages 231-238

About this book


The research field of biobanks and tissue research is highly promising. Many projects around the globe are involved in the collection of human tissue and health data for research purposes. These initiatives are driven by the perspective of decisive breakthroughs in the knowledge of the genetic pathways involved in widespread diseases. However, there are considerable ethical and legal challenges to be considered as well. These challenges encompass the use of body material for research purposes, the misuse of genetic and other health data by third parties, trust in science and medicine, concerns regarding privacy, use of genetic data for forensic applications by the state and the police, and regulatory issues. This volume is divided into three parts: the inclusion of the public, the rights of donors and patients, examples and recommendations for the future of tissue research. It presents a comprehensive overview of the most important topics in the field by renowned scholars in medical ethics and biolaw.



Biobank Ethics Law Patient Rights Tissue Research

Editors and affiliations

  • Christian Lenk
    • 1
  • Judit Sándor
    • 2
  • Bert Gordijn
    • 3
  1. 1.GöttingenGermany
  2. 2.Central European UniversityBudapestHungary
  3. 3.Dublin City UniversityDublin 9Ireland

Bibliographic information

  • Book Title Biobanks and Tissue Research
  • Book Subtitle The Public, the Patient and the Regulation
  • Editors Christian Lenk
    Judit Sándor
    Bert Gordijn
  • Series Title The International Library of Ethics, Law and Technology
  • Series Abbreviated Title Int. Library of Ethics, Law
  • DOI
  • Copyright Information Springer Science+Business Media B.V. 2011
  • Publisher Name Springer, Dordrecht
  • eBook Packages Medicine Medicine (R0)
  • Hardcover ISBN 978-94-007-1672-8
  • Softcover ISBN 978-94-007-3731-0
  • eBook ISBN 978-94-007-1673-5
  • Series ISSN 1875-0044
  • Series E-ISSN 1875-0036
  • Edition Number 1
  • Number of Pages VIII, 238
  • Number of Illustrations 0 b/w illustrations, 0 illustrations in colour
  • Topics Transplant Surgery
    Cell Biology
    Biomedicine, general
  • Buy this book on publisher's site


From the reviews:

“Address the legal and policy status of biobanking and tissue research, primarily in Europe … . Since biobanking and tissue research engage such diverse disciplines as health and privacy law, biomedical and IT fields, the book’s audience is likewise diverse. … provides a unique resource for Europeans and non-Europeans … . especially important for those who work on these issues internationally, and those who may not be familiar with the diversity of approaches and insights that can be learned from the European systems.” (Stephanie Solomon, Doody’s Review Service, December, 2011)