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Table of contents (19 chapters)
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Property and Privacy in Biobanking
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Intellectual Property and Biobanks
Keywords
About this book
In the last few years, the boom in biobanking has prompted a lively debate on a host of interrelated legal issues, such as the Gordian knot of the ownership of biological materials, as well as privacy concerns. The latter are due to the difficulty of accepting that biological samples must be completely anonymous without making it practically impossible to exploit their information potential. The issues also include the delicate role and the changing content of the donor’s “informed consent” as the main legal tool that may serve to link the privacy and property interests of donors with the research interests and the set of principles that should be at the core of the biobanking practice. Lastly, the IP issues and the patentability of biological samples as well as the protection of databases storing genetic information obtained from the samples are covered. Collecting eighteen essays written by eminent scholars from Italy, the US, the UK and Canada, this book provides new solutions to these problems. From a comparative viewpoint, it explores the extent to which digital technology may assist in tackling the numerous regulatory issues raised by the practice of biobanking for research purposes. These issues may be considered and analyzed under the traditional paradigms of Property, Privacy, Informed Consent and Intellectual Property.
Editors and Affiliations
Bibliographic Information
Book Title: Comparative Issues in the Governance of Research Biobanks
Book Subtitle: Property, Privacy, Intellectual Property, and the Role of Technology
Editors: Giovanni Pascuzzi, Umberto Izzo, Matteo Macilotti
DOI: https://doi.org/10.1007/978-3-642-33116-9
Publisher: Springer Berlin, Heidelberg
eBook Packages: Humanities, Social Sciences and Law, Law and Criminology (R0)
Copyright Information: Springer-Verlag Berlin Heidelberg 2013
Hardcover ISBN: 978-3-642-33115-2Published: 07 February 2013
Softcover ISBN: 978-3-642-43933-9Published: 07 March 2015
eBook ISBN: 978-3-642-33116-9Published: 30 January 2013
Edition Number: 1
Number of Pages: VIII, 339
Number of Illustrations: 7 b/w illustrations
Topics: IT Law, Media Law, Intellectual Property, Biomedicine general, Computational Biology/Bioinformatics, Medical Law