© 2019

Consumer Informatics and Digital Health

Solutions for Health and Health Care

  • Margo Edmunds
  • Christopher Hass
  • Erin Holve
  • Presents a consumer-friendly overview of technical, social, and policy issues associated with the adoption, use, and impact of consumer technologies for health and health care

  • Takes a multi-sector, integrated systems approach to help unify the field of digital health, with an emphasis on user-centered design, best practices, and building the evidence base

  • Provides a technical foundation that inspires students in computer sciences, information design, and communications to get involved in consumer health informatics


Table of contents

  1. Front Matter
    Pages i-xix
  2. Foundations of Consumer Informatics and Mobile Health

    1. Front Matter
      Pages 1-1
    2. M. Christopher Gibbons, Yahya Shaikh
      Pages 25-41
    3. Ronald L. Copeland, Winston F. Wong, Jason Jones, Margo Edmunds
      Pages 43-59
  3. A New Ecosystem for Development and Design

    1. Front Matter
      Pages 87-87
    2. Christopher Hass, Margo Edmunds
      Pages 89-105
    3. Christopher Hass
      Pages 107-124
    4. Christopher Hass
      Pages 145-162
  4. Consumer-Centered and Consumer-Generated Information

    1. Front Matter
      Pages 181-181
    2. Adriana Arcia, Jacqueline A. Merrill, Suzanne Bakken
      Pages 183-203
    3. Mordechai D. Raskas, Kari Gali, Dana Aronson Schinasi, Shayan Vyas
      Pages 205-219
    4. Ellen Beckjord, David K. Ahern, Bradford Hesse
      Pages 245-274
  5. Policy and Regulatory Issues

About this book


This unique collection synthesizes insights and evidence from innovators in consumer informatics and highlights the technical, behavioral, social, and policy issues driving digital health today and in the foreseeable future. Consumer Informatics and Digital Health presents the fundamentals of mobile health, reviews the evidence for consumer technology as a driver of health behavior change, and examines user experience and real-world technology design challenges and successes. Additionally, it , identifies key considerations for successfully engaging consumers in their own care, considers the ethics of using personal health information in research, and outlines implications for health system redesign. The editors’ integrative systems approach heralds a future of technological advances tempered by best practices drawn from today’s critical policy goals of patient engagement, community health promotion, and health equity. Here’s the inside view of consumer health informatics and key digital fields that students and professionals will find inspiring, informative, and thought-provoking. 

Included among the topics:

• Healthcare social media for consumer informatics.

• Understanding usability, accessibility, and human-centered design principles.

• Understanding the fundamentals of design for motivation and behavior change

• Digital tools for parents: innovations in pediatric urgent care.

• Behavioral medicine and informatics in the cancer community. 

• Content strategy: writing for health consumers on the web.

• Open science and the future of data analytics.

• Digital approaches to engage consumers in value-based purchasing.

Consumer Informatics and Digital Health takes an expansive view of the fields influencing consumer informatics and offers practical case-based guidance for a broad range of audiences, including students, educators, researchers, journalists, and policymakers interested in biomedical informatics, mobile health, information science, and population health. It has as much to offer readers in clinical fields such as medicine, nursing, and psychology as it does to those engaged in digital pursuits.


consumer health informatics mobile applications, social media, and health mobile health (mHealth) telehealth mobile monitoring personalized medicine quantified self communication science user-centered design user experience design (UX) patient experience genomic medicine precision medicine consumer engagement in health and health care usability and utility testing consumer-generated data ethical issues in consumer informatics and online content personal health data privacy and security technology consumer informatics

Editors and affiliations

  • Margo Edmunds
    • 1
  • Christopher Hass
    • 2
  • Erin Holve
    • 3
  1. 1.Washington, DCUSA
  2. 2.BostonUSA
  3. 3.Takoma ParkUSA

About the editors

Margo Edmunds, PhD, is vice president, Evidence Generation and Translation at AcademyHealth, where she oversees a portfolio of projects on information infrastructure, research translation, dissemination, and health communications. Her expertise includes informatics and communications technology policy, health information exchange, and web-based learning and communications tools.

Christopher Hass is a consulting UX strategist, presenter, and past president of UXPA International and its Boston Chapter. He is an expert on the subjects of human-centered design, accessibility, UX research, and the development of innovative products and services for a wide variety of commercial and government clients.

Erin Holve, PhD, MPH, MPP,is director, Health Care Reform and Innovation at the Department of Health Care Finance within the Government of the District of Columbia, where she leads the design of reform and technology projects to enhance the value of Medicaid in the District. She is a expert in learning health systems and patient centered outcomes research, and founding editor of the journal, eGEMs, a first-of-its kind publication dedicated to accelerating research and quality improvement using electronic health data. 

Bibliographic information