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  • © 2016

Big Picture Bioethics: Developing Democratic Policy in Contested Domains

  • Provides international relevance by comparing two welfare-state liberal democratic societies

  • Analyses and evaluates democratic policy processes both in theory and as actual policy making examples

  • Authored by public engagement practitioners and contributors to policy making as well as theorists

  • Includes supplementary material: sn.pub/extras

Part of the book series: The International Library of Ethics, Law and Technology (ELTE, volume 16)

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eBook EUR 85.59
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  • ISBN: 978-3-319-32240-7
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  • Readable on all devices
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  • Tax calculation will be finalised during checkout
Softcover Book EUR 109.99
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Hardcover Book EUR 109.99
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Table of contents (13 chapters)

  1. Front Matter

    Pages i-xiv
  2. Introduction

    • Susan Dodds, Rachel A. Ankeny
    Pages 1-8
  3. Seeing the Big Picture: Democratically Defensible Policy Development in Liberal Democracies

    1. Front Matter

      Pages 9-9
    2. Conscience Votes in Australia: Deliberation and Representation

      • Kerry Ross, Susan Dodds, Rachel A. Ankeny
      Pages 37-58
    3. Deliberative Processes in Practice

      • Cobi Smith, Gene Rowe
      Pages 59-70
  4. Regulation of Embryo Research

    1. Front Matter

      Pages 71-71
    2. Policy Design for Human Embryo Research in Canada: 1989–2015

      • Françoise Baylis, Matthew Herder
      Pages 73-105
  5. Human Research Ethics Guidelines

    1. Front Matter

      Pages 131-131
    2. Human Research Ethics Guidelines in Australia

      • Colin Thomson, Kerry J. Breen, Donald Chalmers
      Pages 165-190
  6. Deliberating About Emerging Health Policy

    1. Front Matter

      Pages 225-225
    2. Seeking Community Views on Allocation of Scarce Resources in a Pandemic in Australia: Two Methods, Two Answers

      • Jackie M. Street, Helen Marshall, Annette J. Braunack-Mayer, Wendy A. Rogers, Philip Ryan, FluViews Team
      Pages 245-261
    3. Assessing Deliberative Design of Public Input on British Columbia Biobanks

      • Michael M. Burgess, Holly Longstaff, Kieran O’Doherty
      Pages 263-278

About this book

This book addresses the problem of how to make democratically-legitimate public policy on issues of contentious bioethical debate. It focuses on ethical contests about research and their legitimate resolution, while addressing questions of political legitimacy. How should states make public policy on issues where there is ethical disagreement, not only about appropriate outcomes, but even what values are at stake? What constitutes justified, democratic policy in such conflicted domains? Case studies from Canada and Australia demonstrate that two countries sharing historical and institutional characteristics can reach different policy responses.


This book is of interest to policymakers, bioethicists, and philosophers, and will deepen our understanding of the interactions between large-scale socio-political forces and detailed policy problems in bioethics.

Keywords

  • policy development in liberal democracies
  • consience votes
  • legislating bioethics
  • democratic theory
  • regulation of embryo research
  • embryo research in Canada
  • human research ethics guidelines
  • consultation and deliberation
  • emerging health policies
  • clinical practice guidelines
  • chronic fatigue syndrome
  • deliberative processes
  • biobanks
  • deliberation and representation

Editors and Affiliations

  • Faculty of Arts and Social Sciences, School of Humanities, UNSW Australia, University of Tasmania, Hobart, Australia

    Susan Dodds

  • School of Humanities, University of Adelaide, Adelaide, Australia

    Rachel A. Ankeny

Bibliographic Information

Buying options

eBook EUR 85.59
Price includes VAT (Finland)
  • ISBN: 978-3-319-32240-7
  • Instant PDF download
  • Readable on all devices
  • Own it forever
  • Exclusive offer for individuals only
  • Tax calculation will be finalised during checkout
Softcover Book EUR 109.99
Price includes VAT (Finland)
Hardcover Book EUR 109.99
Price includes VAT (Finland)