Living Donor Advocacy

1. Front Matter

   Pages i-xv

   PDF

2. Living Donation

   1. Front Matter

      Pages 1-1

      PDF

   2. The Medical Selection of Live Donors

      • Christine Wu, Henkie P. Tan

      Pages 3-15

   3. Kidney Paired Donation Programs for Incompatible Living Kidney Donors and Recipients

      • Sommer E. Gentry, Ron Shapiro, Dorry L. Segev

      Pages 17-27

   4. Living Donor Liver Transplantation

      • Vikraman Gunabushanam, Abhideep Chaudhary, Abhinav Humar

      Pages 29-40

   5. Intestinal Transplantation from Living Donors

      • Massimiliano Tuveri, Salvatore Pisu, Luca Cicalese

      Pages 41-74

   6. Living Donor Lung Transplantation

      • Robbin G. Cohen, Mark L. Barr, Vaughn A. Starnes

      Pages 75-89

   7. Live Donor Pancreas Transplantation

      • Miguel Tan

      Pages 91-100

3. Living Donor Advocacy

   1. Front Matter

      Pages 101-101

      PDF

   2. The History of Living Donor Advocacy in Living Donor Transplantation

      • Talia B. Baker, Helen G. Spicer

      Pages 103-117

   3. Findings from a National Survey of Living Donor Advocates

      • Jennifer L. Steel, Andrea Dunlavy, Maranda Friday, Mark Unruh, Chanelle Labash, Kendal Kingsley et al.

      Pages 119-130

   4. The Independent Donor Advocate and the Independent Donor Advocate Team

      • Dianne LaPointe Rudow

      Pages 131-138

   5. Classification of Living Organ Donors

      • Andrew W. Webb

      Pages 139-147

   6. Unrelated Donors

      • Mary Amanda Dew, Ginger Boneysteele, Andrea F. DiMartini

      Pages 149-167

   7. Education of the Donor by the ILDA (Psychosocial Aspects)

      • Marjorie A. Clay

      Pages 169-195

   8. Components and Timing of the ILDA Evaluation

      • Kathleen Swartz

      Pages 197-204

   9. Contraindications to Living Donation from an ILDA Perspective

      • Rebecca Hays

      Pages 205-219

   10. Management of Conflict Between the Independent Living Donor Advocate and the Transplant Team

       • Roxanne M. Taylor

       Pages 221-229

   11. Story Behind the Story

       • Barbara L. Rutt

       Pages 231-251

   12. Living Donor Experience

       • Donna M. Kinzler

       Pages 253-258

The inadequate supply of organs in the United States and other countries continues to drive the reliance on living donor transplantation. In 2000, representatives of the transplant community convened for a meeting on living donation in an effort to provide guidelines to promote the welfare of living donors. The consensus statement that resulted from this meeting recommended that transplant centers retain an Independent Living Donor Advocate (ILDA) to focus on the best interest of the donor. A decade later, nearly every transplant center in the United States, performing living donor surgeries, has incorporated an ILDA into their living donor screening and/or evaluation process Living Donor Advocate provides an overview of living donation and its risks, ethical challenges and future developments​, as well as details about the role a Living Donor Advocate plays in the transplantation process. This book will interest health professionals across various disciplines and patients undergoing transplantation or living donor surgery.    

• Ethics
• IDLA
• Independent Living Donor Advocate
• Kidney
• Liver
• Living Donation, Transplantation
• Risks
• hepatology

From the reviews:

“This is a well written, thorough review of the role that independent living donor advocates (ILDAs) play in evaluating and counseling potential donors. … The book is well written with interesting case studies. … This will be a very useful resource in most transplant centers.” (Anitha Vijaan, Doody’s Book Reviews, March, 2014)

• University of Pittsburgh STARZL TRANSPLAN INST, PITTSBURGH, USA

  JENNIFER STEEL

Jennifer Steel is an Independent Living Donor Advocate (ILDA) at the University of Pittsburgh Medical Center’s Transplant Center. She is also on the executive committee of ILDAs for the National Kidney Foundation, and recently published the results of a national survey of ILDAs in the American Journal of Transplantation and completed a webinar for the Department of Health and Human Services concerning living donor advocacy.

Policies and ethics