Advertisement

Coping with Crisis and Handicap

  • Aubrey Milunsky

Table of contents

  1. Front Matter
    Pages i-xv
  2. Genevieve V. Foley
    Pages 1-10
  3. Ida M. Martinson
    Pages 11-22
  4. Harriet Sarnoff Schiff
    Pages 23-36
  5. Harold S. Kushner
    Pages 37-49
  6. Earl A. Grollman
    Pages 51-59
  7. Aubrey Milunsky
    Pages 61-77
  8. Earl A. Grollman
    Pages 79-100
  9. J. William Worden
    Pages 101-111
  10. Ned H. Cassem
    Pages 113-159
  11. George J. Annas
    Pages 177-188
  12. John A. Carr
    Pages 189-204
  13. Walter P. Christian
    Pages 229-248
  14. Alan J. Brightman
    Pages 269-280
  15. Margaret A. O’Connor
    Pages 281-286
  16. Henry A. Beyer
    Pages 299-306
  17. Gunnar Dybwad
    Pages 307-316
  18. Back Matter
    Pages 317-358

About this book

Introduction

For over 20 years I have accepted the challenge and had the privilege of caring for sick children, agonizing with their parents during periods of serious illness, which were sometimes fatal. Because of my particular interest in and concern about birth defects and genetic disease, many of these children had severe disabling handicaps, which were often genetic and included mental retardation. Hence care of these children and their families was often complicated by the presence of serious or profound genetic defects. The initial realization of the nature of the disorder invariably led to emotional . difficulties and inevitably later spawned chronic distress. For some children inexorable deterioration led to untimely deaths, while the parents agonized over their handi­ capped, chronically ill, or defective-but nevertheless loved---

Keywords

autism children counseling crisis nature

Editors and affiliations

  • Aubrey Milunsky
    • 1
    • 2
    • 3
  1. 1.Harvard Medical SchoolBostonUSA
  2. 2.Eunice Kennedy Shriver CenterBostonUSA
  3. 3.Massachusetts General HospitalBostonUSA

Bibliographic information