Patient Involvement in Health Technology Assessment

  • Karen M. Facey
  • Helle Ploug Hansen
  • Ann N.V. Single

Table of contents

  1. Front Matter
    Pages i-xxvi
  2. Conceptualisation

    1. Front Matter
      Pages 1-1
    2. Karen M. Facey
      Pages 3-16
    3. Lars Sandman, Kenneth Bond, Björn Hofmann
      Pages 17-29
    4. Helle Ploug Hansen, Jackie Street
      Pages 31-42
    5. Sophie Staniszewska, Sophie Werkö
      Pages 43-50
    6. Karen M. Facey, Ann N. V. Single
      Pages 67-79
    7. Vikki A. Entwistle, Stacy M. Carter
      Pages 81-86
  3. Methodologies

    1. Front Matter
      Pages 87-87
    2. Kirstie L Haywood, Maarten de Wit, Sophie Staniszewska, Thomas Morel, Sam Salek
      Pages 103-120
    3. Antje Tockhorn-Heidenreich, Mandy Ryan, Rodolfo Hernández
      Pages 121-133
    4. Marion Danner, Andreas Gerber-Grote
      Pages 135-147
    5. Tine Tjørnhøj-Thomsen, Helle Ploug Hansen
      Pages 149-163
    6. Jackie M. Street, Edilene Lopes
      Pages 165-173
    7. Jackie Street, Lucy Farrell
      Pages 175-185
    8. Andrew Booth
      Pages 187-199
    9. Marie-Pierre Gagnon, Mylène Tantchou Dipankui, Deirdre DeJean
      Pages 201-213
    10. John F. P. Bridges, Ellen M. Janssen
      Pages 225-233
  4. Country Approaches and Stakeholder Views

    1. Front Matter
      Pages 235-235
    2. Sally Wortley, Janet L. Wale
      Pages 237-242
    3. Aline Silveira Silva, Clarice Alegre Petramale, Roberta Buarque Rabelo, Vania Cristina Canuto Santos
      Pages 243-246
    4. Laura Weeks, Elaine MacPhail, Sarah Berglas, Michelle Mujoomdar
      Pages 247-263
    5. Camilla Palmhøj Nielsen, Ulla Væggemose
      Pages 265-273
    6. Victoria Thomas, Heidi Livingstone, Laura Norburn, Lizzie Thomas, Gillian Leng
      Pages 275-288
    7. Lisbeth Ørtenblad, Lotte Groth Jensen, Alessandra Lo Scalzo
      Pages 289-298
    8. Sabine Haefner, Martin Danner
      Pages 299-312
    9. Alessandra Lo Scalzo
      Pages 313-319
    10. Ann N. V. Single, Karen Macpherson, Naomi Fearns, Jennifer Dickson, Karen M. Facey
      Pages 321-331
    11. Sophie Werkö, Christin Andersson
      Pages 333-346
    12. Yen-Huei (Tony) Tarn
      Pages 347-351
    13. Jaye Bea Smalley, Michelle Johnston-Fleece, Suzanne Schrandt, Lisa Stewart, Sue Sheridan
      Pages 353-363
    14. Victoria Wurcel, Sophie Cros, Sebastian Gaiser, Lisse-Lotte Hermansson, Katherine Jeays-Ward, Laura Norburn et al.
      Pages 391-399
    15. Nicola Bedlington, Jan Geissler, François Houyez, Alison Lightbourne, Deborah Maskens, Valentina Strammiello
      Pages 401-410
    16. Karen M. Facey, Neil Bertelsen, Janet L. Wale, Ann N. V. Single
      Pages 419-427
  5. Back Matter
    Pages 429-434

About this book


‘If you’re not involving patients, you're not doing HTA!’ - Dr. Brian O’Rourke, President and CEO of CADTH, Chair of INAHTA

This is the first book to offer a comprehensive guide to involving patients in health technology assessment (HTA). Defining patient involvement as patient participation in the HTA process and research into patient aspects, this book includes detailed explanations of approaches to participation and research, as well as case studies. Patient Involvement in HTA enables researchers, postgraduate students, HTA professionals and experts in the HTA community to study these complementary ways of taking account of patients’ knowledge, experiences, needs and preferences.

Part I includes chapters discussing the ethical rationale, terminology, patient-based evidence, participation and patient input. Part II sets out methodology including: Qualitative Evidence Synthesis, Discrete Choice Experiments, Analytical Hierarchy Processes, Ethnographic Fieldwork, Deliberative Methods, Social Media Analysis, Patient-Reported Outcome Measures, patients as collaborative research partners and evaluation. Part III contains 15 case studies setting out current activities by HTA bodies on five continents, health technology developers and patient organisations. Each part includes discussion chapters from leading experts in patient involvement. A final chapter reflects on the need to clearly define the goals for patient involvement within the context of the HTA to identify the optimal approach.

With cohesive contributions from more than 80 authors from a variety of disciplines around the globe, it is hoped this book will serve as a catalyst for collaboration to further develop patient involvement to improve HTA.


Health policy Patient experience Patient participation Patient perspectives Pharmacoeconomics Qualitative research

Editors and affiliations

  • Karen M. Facey
    • 1
  • Helle Ploug Hansen
    • 2
  • Ann N.V. Single
    • 3
  1. 1.No. 9 BioquarterUsher Institute of Population Health Sciences and Informatics, University of EdinburghEdinburghUnited Kingdom
  2. 2.Department of Public HealthResearch Unit of General Practice, University of Southern Denmark, Institute of Public HealthOdenseDenmark
  3. 3.Patient and Citizen Involvement InterestHTAiAshgroveAustralia

Bibliographic information

  • DOI
  • Copyright Information Springer Nature Singapore Pte Ltd. 2017
  • Publisher Name Adis, Singapore
  • eBook Packages Medicine Medicine (R0)
  • Print ISBN 978-981-10-4067-2
  • Online ISBN 978-981-10-4068-9
  • Buy this book on publisher's site