Benefit Sharing

From Biodiversity to Human Genetics

  • Doris Schroeder
  • Julie Cook Lucas

Table of contents

  1. Front Matter
    Pages i-xxvii
  2. Pamela Andanda, Doris Schroeder, Sachin Chaturvedi, Emezat Mengesha, Tim Hodges
    Pages 33-64
  3. Julie Cook Lucas, Doris Schroeder, Roger Chennells, Sachin Chaturvedi, Dafna Feinholz
    Pages 65-93
  4. Julie Cook Lucas, Doris Schroeder, Gardar Arnason, Pamela Andanda, Joshua Kimani, Veronique Fournier et al.
    Pages 95-127
  5. Julie Cook Lucas, Fatima Alvarez Castillo
    Pages 129-151
  6. Sachin Chaturvedi, Sara Crager, Miltos Ladikas, Vasantha Muthuswami, Yeyang Su, Huanming Yang
    Pages 153-177
  7. Doris Schroeder, Eugenijus Gefenas, Roger Chennells, Veronique Fournier, Dafna Feinholz, Giorgio Sirugo
    Pages 179-201
  8. Aidan Hollis, Thomas Pogge, Doris Schroeder
    Pages 203-216
  9. Back Matter
    Pages 231-234

About this book

Introduction

Biomedical research is increasingly carried out in low- and middle-income countries. International consensus has largely been achieved around the importance of valid consent and protecting research participants from harm. But what are the responsibilities of researchers and funders to share the benefits of their research with research participants and their communities? After setting out the legal, ethical and conceptual frameworks for benefit sharing, this collection analyses seven historical cases to identify the ethical and policy challenges that arise in relation to benefit sharing. A series of recommendations address possible ways forward to achieve justice for research participants in low- and middle-income countries.

 

Benefit sharing is a highly important topic and this publication is a welcome contribution to an under-researched field. Doris Schroeder is one of the world’s leading bio-ethicists and has an outstanding reputation in the area of benefit sharing and ethics. Many of the other authors are also of excellent standing. The book is invaluable in bringing together a body of knowledge, theory and practice that has hitherto been fragmented and patchy.

 

Rachel Wynberg, Professor and Deputy Director, Environmental Evaluation Unit, University of Cape Town, South Africa

 

Benefit sharing is becoming a salient issue in the fields of bioethics, medical research, development, and the patenting of genes. This book will provide useful insights helping to design more effective benefit sharing regimes. I am deeply impressed by the book's comprehensiveness and the interesting and remarkable range of contributors.

 

Graham Dutfield, Professor of International Governance, University of Leeds, UK and author of Intellectual Property Rights and the Life Science Industries

 

Doris Schroeder's work has played an unmatched role in setting the international benefit-sharing agenda. In this impressive collection, which analyses examples of innovative benefit-sharing practice and provides a wide-ranging critical analysis of current thinking on benefit sharing, Doris Schroeder and Julie Cook Lucas offer an acute and perceptive assessment of the major and pressing challenges that need to be addressed in this area.

 

Michael Parker, Professor of Bioethics and Director of the Ethox Centre, University of Oxford, UK

 

 

Keywords

Benefit Sharing Biodiversity Genetic resources Indigenous peoples Justice

Editors and affiliations

  • Doris Schroeder
    • 1
  • Julie Cook Lucas
    • 2
  1. 1.Centre for Professional EthicsUniversity of Central LancashirePrestonUnited Kingdom
  2. 2.Centre for Professional EthicsUniversity of Central LancashirePrestonUnited Kingdom

Bibliographic information

  • DOI https://doi.org/10.1007/978-94-007-6205-3
  • Copyright Information Springer Science+Business Media Dordrecht 2013
  • Publisher Name Springer, Dordrecht
  • eBook Packages Earth and Environmental Science
  • Print ISBN 978-94-007-6204-6
  • Online ISBN 978-94-007-6205-3
  • About this book