Pediatric Palliative Care: Global Perspectives

  • Caprice Knapp
  • Vanessa Madden
  • Susan Fowler-Kerry

Table of contents

  1. Front Matter
    Pages i-xxv
  2. Overview

    1. Front Matter
      Pages 1-1
    2. Caprice Knapp, Vanessa Madden, Lindsey Woodworth, Susan Fowler-Kerry
      Pages 3-13
  3. Africa

    1. Front Matter
      Pages 15-15
    2. Fred Chiputula, Zoe Palmer
      Pages 17-26
    3. Joan Marston, Busi Nkosi, Annanda Bothma
      Pages 27-39
    4. Julia Downing, Jane Nakawesi, Rose Kiwanuka
      Pages 41-64
    5. Jenny Hunt, Eunice Garanganga
      Pages 65-78
  4. Asia

    1. Front Matter
      Pages 79-79
    2. Colette Cunningham, Gayane Tovmasyan, Narine Movsisyan
      Pages 81-90
    3. Lulu Mathews, K. Suresh Kumar
      Pages 91-108
    4. Ednin Hamzah, Geok Lan Kuan
      Pages 109-126
    5. Michael Silbermann, Maha Arnaout, Hany Abdel Rahman Sayed, Mohamed Sedky, Mohammad El-Shami, Myriam Ben-Arush et al.
      Pages 127-159
    6. Saleh Al-Alaiyan, Mohammad Zafir Al-Shahri
      Pages 161-168
    7. Mei-Yoke Chan, Noor Aishah Abdul Rashid
      Pages 169-183
    8. Srivieng Pairojkul
      Pages 185-205
  5. Europe

    1. Front Matter
      Pages 207-207
    2. Christian Loffing, Dina Loffing, Sabine Kraft, Martina Göß, Melanie van Dijk, Tobias Schellenberg et al.
      Pages 209-237
    3. Colette Cunningham, Philip J. Larkin
      Pages 239-250
    4. Marek W. Karwacki
      Pages 251-268
    5. Megumi Baba, Richard Hain
      Pages 269-298
  6. North America

    1. Front Matter
      Pages 299-299
    2. Kimberley Widger, Susan Cadell, Betty Davies, Harold Siden, Rose Steele
      Pages 301-321
    3. Lisbeth Quesada-Tristán, Daniel Masís-Quesada
      Pages 323-344
    4. Regina Okhuysen-Cawley, Armando Garduño Espinosa, Sandra Paez Aguirre, Yuriko Nakashima Paniagua, Marylou Cardenas-Turanzas, María Cristina Reyes Lucas et al.
      Pages 345-357
  7. Oceania

    1. Front Matter
      Pages 377-377
    2. Jenny Hynson, Ross Drake
      Pages 379-402
  8. South America

    1. Front Matter
      Pages 403-403
    2. Rosa M. Germ, Stella Marys Binelli, Marcela Pose
      Pages 405-416
    3. Patrícia Lago, Jefferson Piva
      Pages 417-430
    4. Chery Palma Torres, Natalie Rodríguez Zamora, Lea Derio Palacios
      Pages 431-446
  9. Conclusion

    1. Front Matter
      Pages 447-447
  10. Back Matter
    Pages 453-457

About this book


The first of its kind, this book describes pediatric palliative care in more than 23 countries. Each region in the world is covered and countries included are both resource poor and rich. Authors are multidisciplinary and regarded nationally and internationally in their field. Clinicians, advocates, policymakers, funders, and researchers will learn how programs were developed and implemented in each country. Authors describe children for whom pediatric palliative care is needed and provided for in their country. When applicable, a brief history of pediatric palliative care is included noting especially policy changes and legislative acts. For example, the chapter on Poland describes how pediatric palliative care grew from the Catholic church into a national movement spearheaded by several health care workers. The Pole national spirit that brought them through a change in political regime has also been a driving force in the pediatric palliative care movement. The chapter on South Africa, for example, illustrates how a resource poor country has been able to leverage philanthropic and government funding to make its dream of having an infrastructure of pediatric palliative care a reality. These are just a few examples of the inspiring stories that are included in this book. Readers from countries who wish to start a pediatric palliative care program, or advance an existing program, will learn valuable lessons from others who have faced similar barriers. Introduction and concluding chapters highlight the strengths and weaknesses of the modern pediatric palliative care movement.


Palliative care children end-of-life hospice international

Editors and affiliations

  • Caprice Knapp
    • 1
  • Vanessa Madden
    • 2
  • Susan Fowler-Kerry
    • 3
  1. 1., Department of Health Outcomes and PolicyUniversity of FloridaGainesvilleUSA
  2. 2., Department of Health Outcomes and PolicyUniversity of FloridaGainesvilleUSA
  3. 3., College of NursingUniversity of SaskatchewanSaskatoonCanada

Bibliographic information