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Genetics and Ethics in Global Perspective

  • Dorothy C. Wertz
  • John C. Fletcher

Part of the International Library of Ethics, Law, and the New Medicine book series (LIME, volume 17)

Table of contents

  1. Front Matter
    Pages i-x
  2. The Survey and Its Results

    1. Front Matter
      Pages 1-1
    2. Dorothy C. Wertz, John C. Fletcher
      Pages 3-13
    3. Dorothy C. Wertz, John C. Fletcher
      Pages 14-18
    4. Dorothy C. Wertz, John C. Fletcher
      Pages 19-35
    5. Dorothy C. Wertz, John C. Fletcher
      Pages 36-43
    6. Dorothy C. Wertz, John C. Fletcher
      Pages 44-50
    7. Dorothy C. Wertz, John C. Fletcher
      Pages 51-62
    8. Dorothy C. Wertz, John C. Fletcher
      Pages 63-74
    9. Dorothy C. Wertz, John C. Fletcher
      Pages 75-84
    10. Back Matter
      Pages 85-89
  3. Reports from Our Colleagues: Genetics and Ethics in Individual Nations

    1. Front Matter
      Pages 91-94
    2. Dorothy C. Wertz, John C. Fletcher
      Pages 95-105
    3. Dorothy C. Wertz, John C. Fletcher
      Pages 106-164
    4. Dorothy C. Wertz, John C. Fletcher
      Pages 165-186
    5. Ren-Zong Qiu
      Pages 187-207
    6. Xin Mao
      Pages 208-222
    7. Irmgard Nippert, Gerhard Wolff
      Pages 223-234
    8. Andrew E. Czeizel, Laslo Timár
      Pages 235-241
    9. I. C. Verma, Kusum Verma
      Pages 242-250
    10. Ichiro Matsuda
      Pages 251-261
    11. Teresa Perez
      Pages 262-266
  4. Reports from Our Colleagues: Genetics and Ethics in Individual Nations

    1. Front Matter
      Pages 267-267
    2. Dorothy C. Wertz, John C. Fletcher
      Pages 269-280
    3. Dorothy C. Wertz, John C. Fletcher
      Pages 281-306
  5. Back Matter
    Pages 307-475

About this book

Introduction

Dorothy Wertz and John Fletcher pioneered the first international study of ethical and social issues in genetics in 18 nations. This book reports and discusses their second and more representative study in 36 nations. The survey focused on actual situations that occur in the practice of medical genetics, presented as case vignettes that can also be used in teaching and policy discussion. Among the issues discussed are privacy, prenatal diagnosis, patient autonomy, directiveness in counseling, sex selection, forensic DNA banking, "genetic discrimination," and "eugenics".
This is Dorothy Wertz's final book, as she died in April, 2003. It is a one of a kind cross-cultural study of complex ethical issues in the uses of genetic information. No one else has attempted to look at the international aspects of medical genetics on such a broad scale. The results provide a resource for discussion both within and among nations. Much bioethical and policy discussion now occurs in an information vacuum. The survey showed that what people would do, and their reasons for doing it, differed considerably from what ethicists think they "should" do. Many will be surprised at the results, especially in nations where bioethical discussion is just beginning.
Genetics and Ethics in Global Perspective is of interest to medical geneticists, genetic counselors, social scientists and anthropologists who study cross-cultural issues, bioethicists and bioethics centers and health policy makers.

Keywords

DNA Ethical Issues Ethics Nation autonomy bioethics diagnosis eugenics genetics health morality

Authors and affiliations

  • Dorothy C. Wertz
    • 1
  • John C. Fletcher
    • 2
  1. 1.University of Massachusetts Medical School and Shriver CenterWalthamUSA
  2. 2.University of Virginia School of MedicineCharlottesvilleUSA

Bibliographic information

  • DOI https://doi.org/10.1007/978-94-007-0981-2
  • Copyright Information Kluwer Academic Publishers 2004
  • Publisher Name Springer, Dordrecht
  • eBook Packages Springer Book Archive
  • Print ISBN 978-1-4020-2880-9
  • Online ISBN 978-94-007-0981-2
  • Series Print ISSN 1567-8008
  • Buy this book on publisher's site