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The New Genetics: From Research into Health Care

Social and Ethical Implications for Users and Providers

  • Irmgard Nippert
  • Heidemarie Neitzel
  • Gerhard Wolff

Table of contents

  1. Front Matter
    Pages I-X
  2. Introduction: The New Genetics: From Research into Health Care — Social and Ethical Implications for Users and Providers

  3. Opening Address

    1. Karl Sperling
      Pages 7-10
  4. The Provision of the New Genetics: In Whose Best Interest?

  5. Providing the New Genetics in Primary Care: Problems and Perspectives

    1. Front Matter
      Pages 47-47
    2. Rodney Harris, Hilary J. Harris, J. A. Raeburn
      Pages 49-57
    3. Jörg Schmidtke
      Pages 59-64
  6. Can the Implementation of New Genetic Tests Be Safeguarded by Consensus Policy Recommendations?

  7. Critiques on the Provision of the New Genetics: Pros und Cons from Consumer and Provider Perspectives

  8. Appendix

About these proceedings

Introduction

ciples and recommendations on genetic service provision in a multidisciplinary way. At the workshop the main issues and principles that are presently emerging as integral parts of national and international recommendations on genetic service provision such as: - voluntary provision of services - protection of choices - patient autonomy - informed consent - nondirective counseling - confidentiality were discussed and the participants tried to assess how these principles are known, met or violated in practice according to the newest up-to-date research findings and to identify existing gaps in data provision, research and policy analy­ sis. The workshop brought together an international multidisciplinary group of well known experts including health professionals, molecular biologists, social scientists and ethicists as well as representatives of patient organizations and pol­ icy makers who presented and discussed the newest data and survey findings on selected ethical and social issues in the provision of new genetic tests. The main scientific contributors to this meeting have been awarded grants from ELSI, ESLA, BIOMED 1 and BIOMED 2 programs as well as national grants.

Keywords

Susceptibility testing autonomy confidentiality genes genetics health health care system pre-natal sex selection predictive genetic testing

Editors and affiliations

  • Irmgard Nippert
    • 1
  • Heidemarie Neitzel
    • 2
  • Gerhard Wolff
    • 3
  1. 1.Institut für HumangenetikWestfälische Wilhelms-Universität MünsterMünsterGermany
  2. 2.Rudolf-Virchow-KlinikumMedizinische Fakultät der Humboldt Universität zu BerlinBerlinGermany
  3. 3.Institut für Humangenetik und AnthropologieAlbert-Ludwigs-Universität FreiburgFreiburgGermany

Bibliographic information

  • DOI https://doi.org/10.1007/978-3-642-58486-2
  • Copyright Information Springer -Verlag Berlin Heidelberg 1999
  • Publisher Name Springer, Berlin, Heidelberg
  • eBook Packages Springer Book Archive
  • Print ISBN 978-3-540-65920-4
  • Online ISBN 978-3-642-58486-2
  • Buy this book on publisher's site