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Health Care Transition

Building a Program for Adolescents and Young Adults with Chronic Illness and Disability

  • Albert C. Hergenroeder
  • Constance M. Wiemann

Table of contents

  1. Front Matter
    Pages i-xvii
  2. Introduction

  3. The Adolescent and Young Adult: A Developmental Perspective

  4. Personal and Professional Perspectives on Healthcare Transition

    1. Front Matter
      Pages 31-31
    2. Isabel Yuriko Stenzel Byrnes
      Pages 33-42
    3. Nathan Samras, Janet Ma, Stacey Weinstein, Alice A. Kuo
      Pages 65-74
    4. Beth Sufian, James Passamano, Amy Sopchak
      Pages 75-83
  5. Developing a Healthcare Transition Program

    1. Front Matter
      Pages 85-85
    2. Kathy Sanabria, James Harisiades, Rebecca Boudos, Parag Shah
      Pages 99-105
    3. Roberta G. Williams, Ellen F. Iverson
      Pages 107-112
    4. Lisa A. Schwartz, Alexandra M. Psihogios, Emily M. Fredericks
      Pages 119-128
    5. Constance M. Wiemann, Albert C. Hergenroeder
      Pages 129-138
    6. Megumi J. Okumura, Ian S. Harris, Mary Ellen Kleinhenz
      Pages 139-148
    7. Marybeth R. Jones, Marilyn Augustine, Brett W. Robbins
      Pages 157-161
    8. Niraj Sharma, Kitty O’Hare, Ahmet Uluer
      Pages 163-169
  6. Defining Successful Transition

    1. Front Matter
      Pages 171-171
    2. Teresa Nguyen, Mallory Cyr
      Pages 173-180
    3. Rosemary Alexander, Laura J. Warren
      Pages 181-189
    4. Cynthia Fair, Sophie Rupp, Laura C. Hart, Ana Catalina Alvarez-Elias, Martha Perry, Maria Ferris
      Pages 191-200
    5. Angelo P. Giardino
      Pages 207-219
  7. Financing Healthcare Transition

    1. Front Matter
      Pages 221-221
    2. Angelo P. Giardino
      Pages 223-232
    3. Margaret A. McManus, Patience H. White, David Kanter
      Pages 233-238
  8. Special Issues in Healthcare Transition

    1. Front Matter
      Pages 239-239
    2. Jennifer Lail
      Pages 241-254
    3. Ryan J. Coller, Sarah Ahrens, Debra Lotstein
      Pages 255-267
    4. Beth E. Anderson, Swaran P. Singh, Claire Stansfield, Kristin Liabo
      Pages 269-278
    5. Nicola J. Gray, Jonathan Burton, Roisin Campbell, Janet E. McDonagh
      Pages 279-292
    6. Beth Sufian, James Passamano, Amy Sopchak
      Pages 293-299
    7. Jill Ann Jarrell, Ellen Roy Elias, Tammy I. Kang
      Pages 329-337
    8. Kimberly Espinoza
      Pages 339-349
  9. Models of Healthcare Transition Programs

    1. Front Matter
      Pages 351-351
    2. Khush Amaria, Miriam Kaufman
      Pages 353-362
    3. Cecily L. Betz
      Pages 363-377
  10. Conclusions

    1. Front Matter
      Pages 379-379
    2. Constance M. Wiemann, Albert C. Hergenroeder
      Pages 381-382
  11. Back Matter
    Pages 383-394

About this book

Introduction

This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives.

Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study.

Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.


Keywords

Adolescent Chronic Illness Disability young adults systems of care health care transition

Editors and affiliations

  • Albert C. Hergenroeder
    • 1
  • Constance M. Wiemann
    • 2
  1. 1.Associate Professor, Director of Research, Section of Adolescent Medicine and Sports Medicine, Department of PediatricsBaylor College of Medicine, Texas Children’s HospitalHoustonUSA
  2. 2.Professor, Chief of Adolescent Medicine, Section of Adolescent Medicine and Sports Medicine, Department of PediatricsBaylor College of Medicine, Texas Children’s HospitalHoustonUSA

Bibliographic information

  • DOI https://doi.org/10.1007/978-3-319-72868-1
  • Copyright Information Springer International Publishing AG, part of Springer Nature 2018
  • Publisher Name Springer, Cham
  • eBook Packages Medicine
  • Print ISBN 978-3-319-72867-4
  • Online ISBN 978-3-319-72868-1
  • Buy this book on publisher's site