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© 2015

Informed Consent in Predictive Genetic Testing

A Revised Model

Book

Table of contents

  1. Front Matter
    Pages i-vii
  2. Jessica Minor
    Pages 1-20
  3. Jessica Minor
    Pages 21-56
  4. Jessica Minor
    Pages 109-163
  5. Jessica Minor
    Pages 165-220
  6. Jessica Minor
    Pages 221-230
  7. Back Matter
    Pages 231-232

About this book

Introduction

This important book proposes revising the current informed consent protocol for predictive genetic testing to reflect the trend toward patient-centered medicine. Emphasizing the predictive aspect of testing, the author analyzes the state of informed consent procedure in terms of three components: comprehension of risk assessment, disclosure to select appropriate treatment, and voluntariness. The book's revised model revisits these cornerstones, restructuring the consent process to allow for expanded comprehension time, enhanced patient safety, greater patient involvement and autonomy, and reduced chance of coercion by family or others. A comparison of the current and revised versions and case studies showing the new model in real-world applications add extra usefulness to this resource.

 

Included in the coverage:

 

  • The science behind PGT.
  • Understanding genetic risks and probability.
  • The history of informed consent.
  • Revised model of informed consent: comprehension, disclosure, voluntariness, patient safety.
  • Applications of the model in DTC and pleiotropic genetic testing.
  • Implementation of the revised model, and assessing its effectiveness.

 

A milestone in the bioethics literature, Informed Consent in Predictive Genetic Testing will be of considerable interest to genetic counselors, medical and bioethicists, and public health professionals.

Keywords

family-related genetic information genetic risks and probabilities health-related testing informed consent in genetic counseling informed consent in predictive genetic testing revised model of informed consent

Authors and affiliations

  1. 1.GreenvilleUSA

About the authors

Jessica Minor is an assistant professor of health sciences at Bob Jones University, where she teaches public health, global health, and medical ethics. She received her doctoral degree in health care ethics from Duquesne University. Previously, she was a member of the ethics committee at the University of Connecticut Health Center and an adjunct faculty member of Medical Ethics for UConn’s medical school. Dr. Minor's main focus is genetic ethics, medical ethics, and patient understanding of the genetic testing and counseling process.

Bibliographic information

Reviews

“This book focuses on the ethics of predictive genetic testing, a salient issue given the rapid nature of medical advances. … The primary audience is professionals working in the field of genetic testing. The book raises many interesting ethical and legal questions surrounding this growing method of testing.” (Ruaim A. Muaygil, Doody’s Book Reviews, November, 2015)