The Ethics of Research Biobanking

  • Jan Helge Solbakk
  • Søren Holm
  • Bjørn Hofmann

Table of contents

  1. Front Matter
    Pages i-xviii
  2. Research Biobanking: The Traditional Approach

  3. Research Biobanking: Towards a New Conceptual Approach

    1. Front Matter
      Pages 143-143
    2. Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
      Pages 145-158
    3. Bjørn Hofmann, Jan Helge Solbakk, Søren Holm
      Pages 159-172
    4. Anne Hambro Alnæs
      Pages 195-218
    5. Søren Holm, Bjørn Hofmann, Jan Helge Solbakk
      Pages 255-262
    6. Jan Reinert Karlsen, Roger Strand
      Pages 315-329
    7. Jan Reinert Karlsen, Jan Helge Solbakk, Roger Strand
      Pages 331-343
  4. Back Matter
    Pages 345-357

About this book


The Ethics of Research Biobanking investigates some of the ethical, legal and social challenges raised by research biobanking. In the first part of the book the authors pursue the different regulatory options envisaged within a normative terrain dictated by different conceptions and interpretations of the informed consent doctrine. In the second part a completely new approach is explored. The authors investigate the conceptual potential of different analogies outside medical research used to depict people's change and exchange of valuables between themselves and a common institution. The book is aimed at both academic and professional audiences (biobank curators, biobank researchers, ethicists, gene-epidemiologists, health law experts, philosophers, social scientists and advanced and graduate students in the relevant disciplines) as well as health and research regulators, ministries, politicians and the general public.


Biobank DNA autonomy biobanking biological materials confidentiality ethics health health law morality plannedjc research biobanking

Editors and affiliations

  • Jan Helge Solbakk
    • 1
    • 2
  • Søren Holm
    • 3
  • Bjørn Hofmann
    • 4
    • 1
  1. 1.Fac. Medicine Section for Medical EthicsUniversity of OsloOslo, BlindernNorway
  2. 2.Centre for International HealthUniversity of BergenBergenNorway
  3. 3.Cardiff Law SchoolCardiff UniversityCardiffUnited Kingdom
  4. 4.Department of Health, Care and Nursing Section for Radiography and Health TechnologyUniversity College of GjøvikGjøvik

Bibliographic information

  • DOI
  • Copyright Information Springer Science+Business Media, LLC 2009
  • Publisher Name Springer, Boston, MA
  • eBook Packages Medicine
  • Print ISBN 978-0-387-93871-4
  • Online ISBN 978-0-387-93872-1
  • Buy this book on publisher's site