School and leisure activities in adolescents and young adults with chronic digestive disorders: Impact of burden of disease

  • Hiske CalsbeekEmail author
  • Mieke Rijken
  • Marc J. T. M. Bekkers
  • Joost Dekker
  • Gerard P. van Berge Henegouwen


First, we compared the nature of burden of disease (i.e., manifestations of the disease in daily life) in adolescents and young adults with various chronic digestive disorders with controls. After that, we investigated whether burden of disease is associated with difficulties in school and leisure activities of adolescents and young adults with various digestive disorders. For this purpose, we performed a multicenter study in 5 diagnostic groups (total N = 758; ages 12 to 25 years) including inflammatory bowel diseases (IBD), chronic liver diseases, congenital disorders, celiac disease, and food allergy and a population based control group (N = 306) using a self-report questionnaire. Especially adolescents and young adults with a chronic liver disease, IBD, and food allergy were found to experience daily manifestations of their disease. Several disease burden characteristics, of which especially depression, could be identified as important contributors to difficulties in school performance and leisure activities.

Key words

burden of disease chronic digestive disorders adolescents and young adults school performance leisure activities 


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Copyright information

© International Society of Behavioral Medicine 2006

Authors and Affiliations

  • Hiske Calsbeek
    • 1
    Email author
  • Mieke Rijken
    • 1
  • Marc J. T. M. Bekkers
    • 2
  • Joost Dekker
    • 3
  • Gerard P. van Berge Henegouwen
    • 4
  1. 1.Netherlands Institute for Health Services Research (Nivel)NivelThe Netherlands
  2. 2.PON Institute for Social Research en DevelopmentThe Netherlands
  3. 3.Department of Rehabilitation MedicineVU University Medical Centre AmsterdamThe Netherlands
  4. 4.Department of GastroenterologyUniversity Medical Centre UtrechtThe Netherlands

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