Ethical issues in research involving victims of terror
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Although research after an episode of terror can provide important information to improve the health and well-being of present and future victims, there are unique ethical challenges that need to be addressed. Man-made disasters have profound effects on victims, rescue workers, and their families and on others in the community; this may impair their ability to provide voluntary and uncoerced decisions about research participation. Because such potential participants in research may be vulnerable and also subject to being overburdened with redundant research, they deserve special consideration. We propose specific recommendations to assist investigators, institutional review boards (IRBs), public health officials, and political leaders to help serve the interests of future participants in terror-related research.
KeywordsResearch Proposal Public Health Official Rescue Worker Local IRBs Procedural Safeguard
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- 2.Murray Parkes C. A typology of disasters. In: Black D, Newman M, Harris-Hendriks J, Mezey G, eds. Psychological Trauma: a Developmental Approach. Glasgow, Scotland: Bell & Bain Ltd; 1997:81–93.Google Scholar
- 4.Camino G, Bravo M, Rubin-Stipee M, Woodbury M. The impact of disaster on mental health: prospective and retrospective analyses. Int J Ment Health. 1990;19:51–69.Google Scholar
- 6.Pfefferbaum B. The Oklahoma City bombing: organizing the mental health response [American Academy of Experts in Traumatic Stress, Inc., Web site]. 1996. Available at: www.aaets.org/arts.art5.html. Date accessed: March 13, 2002.Google Scholar
- 9.Richman N. Ethical issues in disaster and other extreme situations. In: Black D, Newman M, Harris-Hendriks J, Mezey G, eds. Psychological Trauma: a Developmental Approach. Glasgow, Scotland: Bell & Bain Ltd; 1997:374–382.Google Scholar
- 13.Norris FH. 50,000 disaster vietims speak: an empirical review of the emprrical literature, 1981–2001. Part 1 of a three-part series; range, magnitude and duration of effects. Prepared for the National Center for PTSD and the Center for Mental Health Services (SAMHSA); September 2001.Google Scholar
- 14.45 CFR §46.111(a) (3): 21 CFR 56.111(a) (3) (1991).Google Scholar
- 15.Moreno J. Protectionism in research involving human subjects. Background paper prepared for the National Bioethics Advisory Commission, Volume 2 of Ethical and Policy Issues in Research Involving Human Participants; Bethesda, MD; 2001.Google Scholar
- 17.Norris FH. 50,000 disaster victims speak: an empirical review of the empirical literature, 1981–2001. Part III of a three-part series; psychosocial resources in the aftermath of disasters. Prepared for the National Center for PTSD and the Center for Mental Health Services (SAMHSA); September 2001.Google Scholar
- 18.Protecting Human Research Subjects: Institutional Review Board Guidebook. Office for Protection from Research Risk, DHHS. Office for Human Research Protections web site. Avialable at: http://ohrp.osophs.dhhs.gov/irb/irb chapter3.htm. Date accessed: June 18, 2002.Google Scholar