Was it autoethnography? The classificatory, confessional and mad politics of lived experience in sociological research
Abstract
This paper will consider the history and politics of autoethnography in relation to the activist scholarship of Mad Studies. As part of ethnographic research about ‘recovery in/from serious mental health problems’ in the UK, I accessed an NHS community “arts for mental health” service as a service-user would do, situating this data in broader socio-political debates concerning the meaning, management and lived experience of madness and distress. This paper examines the framing of this research as autoethnographic and the relationship of personal and/or lived experience to the knowledge produced. I explore the classificatory, confessional and Mad politics of experience, identity and identification, and embodiment for research subjectivities. Employing autoethnographic means, I consider the ways in which I situate myself, and am situated by others, in relation to my research, evaluating the methodological implications of the crisis of representation in anthropology, and the post-structuralist criticism of identity politics. Through an engagement Mad Studies, I seek to move beyond these two established responses to the use of personal experience and autobiography in research.
Keywords
Autoethnography Experience Mad studies Ethics Qualitative methods Social inequalitiesNotes
References
- Ahmed, S. 2002. Racialized Bodies. In Real Bodies, vol. 46–63, ed. M. Evans and E. Lee, 46–63. London: Palgrave.CrossRefGoogle Scholar
- Allison, D. 1996. Two or Three Things I Know for Sure. New York: PLUME.Google Scholar
- Beresford, P. 2004. Madness, Distress, Research and a Social Model. In Implementing the Social Model of Disability: Theory and Research, ed. C. Barnes and G. Mercer, 208–222. Leeds: The Disability Press.Google Scholar
- Beresford, P., and J. Russo. 2016. Supporting the Sustainability of Mad Studies and Preventing Its Co-option. Disability & Society 31 (2): 270–274.Google Scholar
- Bhambra, G.K. 2015. Black Thought Matters: Patricia Hill Collins and the Long Tradition of African American Sociology. Ethnic and Racial Studies 38 (13): 2315–2321.CrossRefGoogle Scholar
- Blackman, L., J. Cromby, D. Hook, D. Papadopoulos, and V. Walkerdine. 2008. Creating Subjectivities. International Journal of Critical Psychology 22 (1): 1–27.Google Scholar
- Brown, W. 1993. Wounded Attachments. Political Theory 21 (3): 390–410.CrossRefGoogle Scholar
- Campbell, P. 1996. The History of the User Movement in the United Kingdom. In Mental Health Matters: A Reader, ed. T. Heller, J. Reynolds, R. Gomm, R. Muston, and S. Pattison, 218–225. London: Macmillan.CrossRefGoogle Scholar
- Chaney, S. 2016. No “Sane” Person Would Have Any Idea’: Patients’ Involvement in Late Nineteenth-Century British Asylum Psychiatry. Medical History 60 (01): 37–53.CrossRefGoogle Scholar
- Church, K. 1995. Forbidden Narratives: Critical Autobiography as Social Science. London: Routledge.Google Scholar
- Church, Kathryn, and Danielle Landry. 2013. Mad Positive in the Academy. Online course, https://www.ryerson.ca/ds/madpositive/, Accessed 6 December 2018.
- Clifford, J., and G. E. Marcus (eds.). 1986. Writing Culture: The Poetics and Politics of Ethnography. Berkeley, Los Angeles, London: University California Press.Google Scholar
- Costa, L., J. Voronka, D. Landry, J. Reid, B. Mcfarlane, D. Reville, and K. Church. 2012. ‘Recovering Our Stories’: A Small Act of Resistance. Studies in Social Justice 6 (1): 85–101.CrossRefGoogle Scholar
- Daley, A., L. Costa, and L. Ross. 2012. (W)Righting Women: Constructions of Gender, Sexuality and Race in the Psychiatric Chart. Culture, Health & Sexuality 14 (8): 955–969.CrossRefGoogle Scholar
- Denzin, N.K. 2014. Interpretive Autoethnography, 2nd ed. Thousand Oaks: Sage.CrossRefGoogle Scholar
- Diamond, S. 2013. What Makes us a Community? In Mad Matters: A Critical Reader in Canadian Mad Studies, ed. B.A. LeFrancois, R.J. Menzies and G. Reaume, 64–78. Toronto: Canadian Scholars’ Press.Google Scholar
- Ellis, C. 2007. Telling Secrets, Revealing Lives: Relational Ethics in Research with Intimate Others. Qualitative Inquiry 13 (1): 3–29.CrossRefGoogle Scholar
- Faulkner, A. 2017. Survivor Research and Mad Studies: The Role and Value of Experiential Knowledge in Mental Health Research. Disability & Society 32 (4): 500–520.CrossRefGoogle Scholar
- Geertz, Clifford. 1996. After the Fact: Two Countries, Four Decades, One Anthropologist (New Edition). Cambridge: Harvard University Press.Google Scholar
- Gorman, R., Saini, A. Tam, L., Udegbe, O. and Usar, O. 2013. Mad People of Color: A Manifesto. Asylum Magazine 2013.Google Scholar
- Haraway, D. (1997). Modest_Witness@Second_Millenium.FemaleMan©_Meets_OncoMouseTM. Feminism and Technoscience. New York, London: Routledge.Google Scholar
- Hayano, D. 1979. Auto-Ethnography: Paradigms, Problems, and Prospects. Human Organization 38 (1): 99–104.CrossRefGoogle Scholar
- Helps, S. 2017. Remember Who You Belong to: A Story of Multiple and Temporary Belongings. In Doing Autoethnography, ed. S.L. Pensoneau-Conway, T.E. Adams, and D.M. Bolen, 139–148. Dordrecht: Sense.CrossRefGoogle Scholar
- Jones, H., S. Linn, T.E. Adams, and C. Ellis (eds.). 2015. Handbook of Autoethnography. Walnut Creek: Left Coast Press.Google Scholar
- Jones, D. 1970. Towards a Native Anthropology. Human Organization 29 (4): 251–259.CrossRefGoogle Scholar
- Jones, N., and T. Kelly. 2015. Inconvenient Complications: On the Heterogeneities of Madness and Their Relationship to Disability. In Madness, Distress and the Politics of Disablement, ed. H. Spandler, J. Anderson, and B. Sapey, 43–56. Bristol: Policy Press.CrossRefGoogle Scholar
- Kalathil, J., and N. Jones. 2016. Unsettling Disciplines: Madness, Identity, Research, Knowledge. Philosophy, Psychiatry, & Psychology 23 (3/4): 183–188.CrossRefGoogle Scholar
- Lake, J. 2015. Autoethnography and Reflective Practice: Reconstructing the Doctoral Thesis Experience. Reflective Practice 16 (5): 677–687.CrossRefGoogle Scholar
- Landry, D. 2017. Survivor Research in Canada: ‘Talking’ Recovery, Resisting Psychiatry, and Reclaiming Madness. Disability & Society 32 (9): 1437–1457.CrossRefGoogle Scholar
- LeFrançois, B.A., P. Beresford, and J. Russo. 2016. Editorial: Destination Mad Studies. Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice 5 (3): 1–10.Google Scholar
- LeFrancois, B.A., R.J. Menzies, and G. Reaume. 2013. Mad Matters : A Critical Reader in Canadian Mad Studies. Toronto: Canadian Scholars’ Press.Google Scholar
- Luvaas, Brent. 2017. Unbecoming: The aftereffects of Autoethnography. Ethnography. https://doi.org/10.1177/1466138117742674.Google Scholar
- McWade, B. 2018. Madness, Violence and Media. In Madness, Violence And Power: A Radical Anthology, ed. A. Daley, L. Costa, and P. Beresford. Toronto: University of Toronto Press.Google Scholar
- McWade, B. 2016a. Recovery-as-policy as a Form of Neoliberal State Making. Intersectionalities: A Global Journal of Social Work Analysis, Research, Polity, and Practice 5 (3): 62–81.Google Scholar
- McWade, B. 2016b. Two years of Mad Studies Organising in the UK. Asylum Magazine 23.4, http://asylummagazine.org/2016/12/what-a-difference-a-couple-of-years-makes-by-brigit-mcwade/, Accessed 6 December 2018.
- McWade, B. 2015. Temporalities of Mental Health Recovery. Subjectivity 8 (3): 243–260.Google Scholar
- McWade, B., D. Milton, and P. Beresford. 2015. ‘Mad Studies & Neurodiversity: A Dialogue’. Disability & Society 30 (2): 305–309.CrossRefGoogle Scholar
- Metzl, J. 2009. The Protest Psychosis: How Schizophrenia Became a Black Disease. Boston: Beacon Press.Google Scholar
- Mol, A. 2002. The Body Multiple: Ontology in Medical Practice. Durham: Duke University Press.CrossRefGoogle Scholar
- Moser, I. 2008. Making Alzheimer’s Disease Matter. Enacting, Interfering and Doing Politics of Nature. Geoforum, Environmental Economic Geography 39 (1): 98–110.Google Scholar
- Perry, E. 2016. Reclaiming, Challenging and Reviving Mental Health Survivor Research. https://www.thesociologicalreview.com/blog/reclaiming-challenging-and-reviving-mental-health-survivor-research.html. Accessed 11 Feb 2019.
- Psychiatric Disabilities Anti-violence Coalition. 2015. Clearing a Path: A Psychiatric Survivor Anti-violence Framework. Toronto: The Empowerment Council. https://www.academia.edu/20268560/Clearing_a_Path_A_Psychiatric_Survivor_Anti-Violence_Framework, accessed 6 December 2018.
- Rose, D., S. Carr, and P. Beresford. 2018. ‘Widening Cross-Disciplinary Research for Mental Health’: What Is Missing from the Research Councils UK Mental Health Agenda? Disability & Society 33 (3): 476–481.CrossRefGoogle Scholar
- Russo, J. 2016a. In Dialogue with Conventional Narrative Research in Psychiatry and Mental Health. Philosophy, Psychiatry, & Psychology 23 (3): 215–228.CrossRefGoogle Scholar
- Russo, J. 2016b. Towards Our Own Framework, or Reclaiming Madness Part Two. In Searching for a Rose Garden: Challenging Psychiatry, Fostering Mad Studies, ed. J. Russo and A. Sweeney, 59–68. Ross-on-Wye: PCCS Books.Google Scholar
- Russo, J., and P. Beresford. 2015. Between Exclusion and Colonisation: Seeking a Place for Mad People’s Knowledge in Academia. Disability & Society 30 (1): 153–157.CrossRefGoogle Scholar
- Ryan-Flood, R., and R. Gill (eds.). 2009. Secrecy and Silence in the Research Process: Feminist Reflections. Abingdon: Routledge.Google Scholar
- Scott, J. W. 1992. “Experience”. In Feminists Theorize the Political, ed. J. Butler and J. W. Scott, 22–40. New York, London: Routledge.Google Scholar
- Sedgwick, P. 1982. Psycho Politics. London: Pluto Press.Google Scholar
- Sweeney, A., P. Beresford, A. Faulkner, M. Nettle, and D. Rose (eds.). 2009. This is Survivor Research. Ross-on-Wye: PCCS Books.Google Scholar
- Tyler, I. 2015. Classificatory Struggles: Class, Culture and Inequality in Neoliberal Times. The Sociological Review 63 (2): 493–511.CrossRefGoogle Scholar
- Tyler, I. 2018. Resituating Goffman: From Stigma Power to Black Power. The Sociological Review 66 (4): 744–765.CrossRefGoogle Scholar
- Voronka, J. (in press) Storytelling through the psychiatric gaze: Resisting resilience and recovery narratives. Canadian Journal of Disability Studies.Google Scholar
- Voronka, J. 2017. Turning Mad Knowledge into Affective Labor: The Case of the Peer Support Worker. American Quarterly 69 (2): 333–338.CrossRefGoogle Scholar
- Voronka, J. 2016. The Politics of ‘People with Lived Experience’ Experiential Authority and the Risks of Strategic Essentialism. Philosophy, Psychiatry, & Psychology 23 (3): 189–201.CrossRefGoogle Scholar
- Weheliye, A.G. 2014. Habeas Viscus: Racializing Assemblages, Biopolitics, and Black Feminist Theories of the Human. Durham: Duke University Press.CrossRefGoogle Scholar