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Development of the Short Form Endometriosis Health Profile Questionnaire: The EHP-5

Abstract

Objective: To develop and validate a short form version of the Endometriosis Health Profile-30 questionnaire which consists of a 30-item core questionnaire and a 23 item modular questionnaire. Methods: Three studies were carried out to develop the Endometriosis Health Profile-5. Study 1: a short form version of the Endometriosis Health Profile-30 core questionnaire was developed. Study 2: the results were verified in a new data set. Study 3: a short form version of the 23 item modular questionnaire was produced. The modular questionnaire contains six dimensions which may not be applicable to every woman with endometriosis and is used to supplement the five scales on the core questionnaire when required. Results: The final instrument contained 11 items: five items from the core questionnaire and six items from the modular questionnaire. The 95% confidence intervals for Study 1 indicated that the scale scores overlapped with each item score and were confirmed in the second analysis (study 2). Each item was most highly correlated to its parent scale and less with the remaining four core questionnaire scales which was verified in study 2. In both studies all correlations were significant at the 0.01 level (two tailed test). Conclusion: The Endometriosis Health Profile-5 is a reliable and valid short form questionnaire which can also be supplemented with a short form version of the modular questionnaire when required. It will be especially useful in clinical settings where a short and economical endometriosis health status measure is required.

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References

  1. Colwell H, Mathias SD, Pasta DJ, Henning JM, Steege JF. A health-related quality of life instrument for symptomatic patients with endometriosis: A validation study. Am J Obstet Gynaecol 1998; 179: 47-55.

    Google Scholar 

  2. Jones G, Kennedy S, Barnard A, Wong J, Jenkinson C. Development of an Endometriosis Quality of life Instrument: The Endometriosis Health Pro.le-30. Obstet Gynecol 2001; 98: 258-264.

    Google Scholar 

  3. Wasson J, Keller A, Rubenstein L, Hays R, Nelson E, Johnson D, and the Dartmouth Primary care COOP Project. Benefits and obstacles of health status assessment in ambulatory settings: The clinicians point of view. Med Care 1992; 30: MS42-MS49.

    Google Scholar 

  4. Coste J, Guillemin F, Pouchet J, Fermanian J. Methodological approaches to shortening composite measurement scales. J Clin Epidemiol 1997; 50: 247-252.

    Google Scholar 

  5. Pocock SJ. Clinical Trials: A Practical Approach. Chichester: John Wiley and Sons, 1983.

    Google Scholar 

  6. Ware J, Kosinski M, Keller SD. A 12 item short-form health survey. SF-12: Construction of scales and preliminary tests of reliability and validity. Med Care 1996; 34: 220-233.

    Google Scholar 

  7. Ware JE, Nelson EC, Sherbourne CD, Stewart AL. Preliminary tests of a 6-item general health survey: A patient application. In: Stewart AL, Ware JE (eds), Measuring Functioning and Wellbeing: The Medical Outcomes Study Approach, London: Duke University Press, 1992.

    Google Scholar 

  8. Streiner DL, Norman G. Health Measurement Scales: A Practical Guide to Their Development and Use. 2nd ed. Oxford: Oxford University Press, 1995.

    Google Scholar 

  9. Gandek B, Ware JE, Aaronson NK, et al. Tests of data quality, scaling assumptions, and reliability of the SF-36 in eleven countries: Results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998; 51: 1149-1158.

    Google Scholar 

  10. Cronbach L. Coefficent alpha and the internal structure of tests. Psychometrika 1951; 16: 297-334.

    Google Scholar 

  11. Kennedy S. Is there a genetic basis to endometriosis? Semin Reprod Endocrinol 1997; 15: 309-318.

    Google Scholar 

  12. Jones G, Kennedy S, Jenkinson C. Health-related quality of life measurement in women with common benign gynecological conditions: A systematic review. Am J Obstet Gynecol 2001; 187: 501-511.

    Google Scholar 

  13. Fitzpatrick R. Applications of health status measures. In: Jenkinson C, (ed.), Measuring Health and Medical Outcomes, London: UCL Press, 1994: 27-41.

    Google Scholar 

  14. Jenkinson C, Fitzpatrick R, Jenkinson C. Health Status Measurement in Neurological Disorders. Oxford: Radcliffe Medical Press, 2000.

    Google Scholar 

  15. Bowling A. Measuring Health: A Review of Quality of Life Measurement Scales. Buckingham: Open University Press, 1997.

    Google Scholar 

  16. Katz JN, Larson MG, Phillips C, Fossel A, Liang MH. Comparative measurement sensitivity of short and longer health status instruments. Med Care 1992; 30: 917-925.

    Google Scholar 

  17. de Vaus DA. Surveys in Social Research. London: UCL Press, 1991.

    Google Scholar 

  18. Oppenheim AN. Questionnaire Design, Interviewing and Attitude Measurement. London: Continuum, 1992.

    Google Scholar 

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Jones, G., Jenkinson, C. & Kennedy, S. Development of the Short Form Endometriosis Health Profile Questionnaire: The EHP-5. Qual Life Res 13, 695–704 (2004). https://doi.org/10.1023/B:QURE.0000021321.48041.0e

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  • DOI: https://doi.org/10.1023/B:QURE.0000021321.48041.0e

  • Endometriosis
  • Health-related quality of life
  • Short Form Questionnaire