Community Mental Health Journal

, Volume 40, Issue 5, pp 423–435 | Cite as

A Positive Aspect of Caregiving: The Influence of Social Support on Caregiving Gains for Family Members of Relatives with Schizophrenia

  • Fang-pei Chen
  • Jan S. Greenberg


This study examines family members' caregiving gains as a result of caring for their relatives with schizophrenic spectrum disorders, and the influence of formal and informal social support on these positive experiences. The results from interviews with 560 family members support that the experience of caregiving gains is prevalent. Moreover, formal support from mental health professionals through information sharing and collaborative interactions with family members, and informal support from other family members, support group participation, and contributions from the relative with mental illness all have significant, positive associations with family members' experiences of caregiving gains.

caregiving gains family caregiver social support family-professional relationship mental illness 


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  1. Anderson, C.M., Reiss, D. & Hogarty, G. (1986). Schizophrenia and the family. New York: Guil-ford.Google Scholar
  2. Bernheim, K.F. & Lehman, A. (1985). Working with families of the mentally ill. New York: W. W. Norton & Company.Google Scholar
  3. Bernheim, K.F. & Switalski, T. (1988). Mental health staff and patient's relatives: How they view each other. Hospital and Community Psychiatry, 39(1), 63–68.PubMedGoogle Scholar
  4. Biegel, D.E., Song, L., & Milligan, S.E. (1995). A comparative analysis of family caregivers' perceived relationships with mental health professionals. Psychiatric Services, 46(5), 477–482.PubMedGoogle Scholar
  5. Birchwood, M., Smith, J., & Cochrane, R. (1992). Specific and non-specific effects of educational intervention for families living with schizophrenia. British Journal of Psychiatry, 160, 806–814.Google Scholar
  6. Bloch, S., Szmukler, G., Herrman, H., Benson, A., & Colussa, S. (1995). Counseling caregivers of relatives with schizophrenia: Themes, interventions, and caveats. Family Process, 34(4), 413–425.PubMedGoogle Scholar
  7. Bulger, M.W., Wandersman, A., & Goldman, C.R. (1993). Burdens and gratifications of caregiving: Appraisal of parental care of adults with schizophrenia. American Journal of Orthopsychiatry, 63, 255–265.PubMedGoogle Scholar
  8. Chafetz, L. & Barnes, L. (1989). Issues in psychiatric caregiving. Archives of Psychiatric Nursing, III, 61–68.Google Scholar
  9. Crotty, B. & Kulys, R. (1986). Are schizophrenics a burden to their families? Significant others' views. Health & Social Work, 11, 173–188.Google Scholar
  10. Dearth, N., Labenski, B., Mott, M., & Pellegrini, L. (1986). Families helping families. New York: W. W. Norton & Company.Google Scholar
  11. Falloon, I., Boyd, J.L., & McGill, C.W. (1984). Family care of schizophrenia: A problem-solving approach to the treatment of mental illness. New York: The Guilford Press.Google Scholar
  12. Goldman, C. R. (1996). Training mental health professionals to work effectively with persons with serious and persistent mental illness. In S.M. Soreff (Ed.), Handbook for the treatment of the seriously mentally ill, (pp. 461–482). Seattle: Hogrefe & Huber Publishers.Google Scholar
  13. Greenberg, J.S. (1995). The other side of caring: Adult children with mental illness as supports to their mothers in later life. Social Work, 40, 414–423.PubMedGoogle Scholar
  14. Greenberg, J.S., Greenley, J.R., & Benedict, P. (1994). Contributions of persons with serious mental illness to their families. Hospital and Community Psychiatry, 45, 475–480.PubMedGoogle Scholar
  15. Greenberg, J.S., Greenley, J.R., & Brown, R. (1997). Do mental health services reduce distress in families of people with serious mental illness? Psychiatric Rehabilitation Journal, 21(1), 40–50.Google Scholar
  16. Greenberg, J.S., Seltzer, M.M., & Judge, K. (2000). Another side of the family's experience: Learning and growing through the process of coping with mental illness. The Journal of the California Alliance for the Mentally Ill, 11, 8–10.Google Scholar
  17. Greenberg, J.S., Seltzer, M.M., Krauss, M.W., & Kim, H. (1997). The differential effects of social support on the psychological well-being of aging mothers of adults with mental illness or mental retardation. Family Relations: Interdisciplinary Journal of Applied Family Studies, 46(4), 383–394.Google Scholar
  18. Hatfield, A.B. (1997). Working collaboratively with families. Social Work in Health Care, 25(3), 77–85.PubMedGoogle Scholar
  19. Hatfield, A.B., Fierstein, R., & Johnson, D. (1982). Meeting the needs of families of the psychi-atrically disabled. Psychosocial Rehabilitation Journal, 6(1), 27–40.Google Scholar
  20. Holden, D. & Lewine, R.R.J. (1982). How families evaluate mental health professionals, resources, and effects of illness. Schizophrenia Bulletin, 8, 626–633.PubMedGoogle Scholar
  21. Horwitz, A.V., Reinhard, S.C., & Howell-White, S. (1996). Caregiving as reciprocal exchange in families with seriously mentally ill members. Journal of Health and Social Behavior, 37, 149–162.PubMedGoogle Scholar
  22. Johnson, D.J. (1987). Professional-family collaboration. New Directions for Mental Health Services, 34, 73–79.PubMedGoogle Scholar
  23. Katz, M.M. & Lyerly, S.B. (1963). Methods for measuring adjustment and social behavior in the community: I. Rationale, description, discriminative validity and scale development. Psychological Reports, 13, 502–535.Google Scholar
  24. Kuipers, L. (1993). Family burden in schizophrenics: Implications for services. Social Psychological and Psychiatric Epidemiology, 28, 207–210.Google Scholar
  25. Leff, J., Kuipers, L., & Berkowitz, R. (1982). A controlled trial of social intervention in the families of schizophrenic patients. British Journal of Psychiatry, 141, 121–134.Google Scholar
  26. Lefley, H. (1996). Family caregiving in mental illness. Thousand Oaks, CA: Sage.Google Scholar
  27. Marsh, D.T., Lefley, H.P., Evans-Rhodes, D., Ansell, V.I., Doerzbacher, B.M., LaBarbera, L., & Paluzzi, J.E. (1996). The family experience of mental illness: Evidence for resilience. Psychiatric Rehabilitation Journal, 20(2), 3–12.Google Scholar
  28. McFarlane, W.R., Dixon, L., Lukens, E., & Lucksted, A. (2003). Family psychoeducation and schizophrenia: A review of the literature. Journal of Marital and Family Therapy, 29(2), 223–245.PubMedGoogle Scholar
  29. Pearlin, L.I. (1988). Caregiver's stress and coping study (NIMH R01 MH42122) San Francisco, CA: University of California, Human Development and Aging Programs.Google Scholar
  30. Peternelj-Taylor, C.A. & Hartley, V.L. (1993). Living with mental illness: Professional/family collaboration. Journal of Psychosocial Nursing and Mental Health Services, 31, 23–28.Google Scholar
  31. Petrilla, J.R. & Sadoff, R.L. (1992). Confidentiality and the Family as Caregiver. Hospital and Community Psychiatry, 43, 136–139.PubMedGoogle Scholar
  32. Pickett, S.A., Cook, J.A., Cohler, F.J., & Solomon, M.L. (1997). Positive parent-adult child rela-tionships: Impact of severe mental illness and caregiving burden. American Journal of Orthopsychiatry, 67(2), 220–229.PubMedGoogle Scholar
  33. Reinhard, S.C. (1994). Living with mental illness: Effects of professional support and personal control on caregiver burden. Research in Nursing & Health, 17, 79–88.Google Scholar
  34. Saunders, J.C. (2003). Families living with severe mental illness: A literature review. Issues in Mental Health Nursing, 24, 175–198.PubMedGoogle Scholar
  35. Schene, A.H., Tessler, R.C., & Gamache, G.M. (1994). Instruments measuring family or caregiver burden in severe mental illness. Social Psychological and Psychiatric Epidemiology, 29, 228–240.Google Scholar
  36. Schwartz, C. & Gidron, R. (2002). Parents of mental ill adult children living at home: Rewards of caregiving. Health & Social Work, 27(2), 145–154.Google Scholar
  37. Solomon, P. & Draine, J. (1995). Subjective burden among family members of mentally ill adults: Relation to stress, coping, and adaptation. American Journal of Orthopsychiatry, 65, 419–427.PubMedGoogle Scholar
  38. Tessler, R.C., Fisher, G.A., & Gamache, G.M. (1992). The family burden interview schedule. University of Massachusetts: Social and Demographic Research Institute.Google Scholar
  39. Wasow, M. (1994). Training future clinicians to work with families. In H.P. Lefley & M. Wasow (Eds.), Helping families cope with mental illness. Chronic mental illness, Vol. 2., (pp. 277–293). Philadelphia: Harwood Academic Publishers/Gordon and Breach Science Publishers.Google Scholar
  40. Winefield, H.R. & Harvey, E.J. (1994). Needs of family caregivers in chronic schizophrenics. Schizophrenic Bulletin, 20, 557–566.Google Scholar
  41. Zipple, A.M., Langle, S. Spaniol, L., & Fisher, H. (1990). Client confidentiality and the family's need to know: strategies for resolving the conflict. Community Mental Health Journal, 26(6), 533–545.PubMedGoogle Scholar

Copyright information

© Springer Science+Business Media, Inc. 2004

Authors and Affiliations

  • Fang-pei Chen
    • 1
  • Jan S. Greenberg
    • 1
  1. 1.School of Social Work, UW-Madison, 1350 University Ave.MadisonUSA

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