Community Mental Health Journal

, Volume 40, Issue 1, pp 47–63 | Cite as

Critical Ingredients of Consumer Run Services: Results of a National Survey

  • Mark C. Holter
  • Carol T. Mowbray
  • Chyrell D. Bellamy
  • Peter MacFarlane
  • Jean Dukarski
Article

Abstract

Fidelity criteria are increasingly used in program monitoring and evaluation, but are difficult to derive for emerging models (i.e., those not based on theory or a research demonstration project). We describe steps used to develop and operationalize fidelity criteria for consumer-run (CR) mental health services: articulating and operationalizing criteria based on published literature, then revising and validating the criteria through expert judgments using a modified Delphi method. Respondents rated highest those structural and process components emphasizing the value of consumerism: consumer control, consumer choices and opportunities for decision-making, voluntary participation (and the absence of coercion), and respect for members by staff.

fidelity consumer participation empowerment psychosocial rehabilitation community mental health center mental health services program evaluation self-help groups United States 

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References

  1. Bond, G.R., Drake, R.E., Mueser, K.T., & Becker, D.R. (1997). An update on supported employment for people with severe mental illness. Psychiatric Services, 48(3), 335-346.Google Scholar
  2. Bond, G. R., Evans, L., Salyers, M. P., et al. (2000). Measurement of fidelity in psychiatric rehabilitation. Mental Health Services Research, 2(2), 75-87.Google Scholar
  3. Chamberlain, J., Rogers, E. S., & Ellison, M.L. (1996). Self-help programs: A description of their characteristics and their members. Psychiatric Rehabilitation Journal, 19(3), 33-42.Google Scholar
  4. Clark, C. C., & Krupa, T. (2002). Reflections on empowerment in community mental health: giving shape to an elusive idea. Psychiatric Rehabilitation Journal, 25(4), 341-349.Google Scholar
  5. Donabedian, A. (1980). Exploration in quality assessment and monitoring: The definition of quality and approaches to assessment. Vol I. Ann Arbor, MI: Health Admin. Press.Google Scholar
  6. Drake, R. E., McHugo, G. J., Becker, D. R., et al. (1996). The New Hampshire study of supported employment for people with severe mental illness. Journal of Consulting and Clinical Psychology, 64(2), 391-399.Google Scholar
  7. Hermann, R. C., Finnerty, M., Provost, S., et al. (2002). Process measures for the assessment and improvement of quality of care for schizophrenia. Schizophrenia Bulletin, 28(1), 95-104.Google Scholar
  8. Le Doux, E. (1997). Revitalizing a consumer-controlled alternative. In Mowbray, C.T., Moxley, D.P., Jasper, C.A. & Howell, L.L. (Eds.). Consumers as providers in psychiatric rehabilitation (pp. 142-147). Columbia, Md.: International Association of Psychosocial Rehabilitation Services.Google Scholar
  9. Lucca, A.M. (2000). A Clubhouse fidelity index: Preliminary reliability and validity results. Mental Health Services Research, 2(2), 89-94.Google Scholar
  10. Maton, K.I., & Salem, D.A. (1995). Organizational characteristics of empowering community settings: A multiple case study approach. American Journal of Community Psychology, 23(5), 631-656.Google Scholar
  11. McGrew, J.H., Bond, G.R., Dietaen, L., & Salyers, M. (1994). Measuring the fidelity of implementation of a mental health program model. Journal of Consulting and Clinical Psychology, 62(4), 670-678.Google Scholar
  12. McHugo, G. J., Drake, R. E., Teague, G. B., & Xie, H. (1999). Fidelity to assertive community treatment and client outcomes in the New Hampshire dual disorders study. Psychiatric Services, 50(6), 818-824.Google Scholar
  13. Mead, S., Hilton, D., & Curtis, L. (2001). Peer support: a theoretical perspective. Psychiatric Rehabilitation Journal, 25(2), 134-141.Google Scholar
  14. Mowbray, C.T., Moxley, D.P., Jasper, C., & Howell, L. (Eds.). (1997). Consumers as providers in psychiatric rehabilitation. Columbia, Md.: International Association of Psychosocial Rehabilitation Services.Google Scholar
  15. Mowbray, C.T., & Tan, C. (1992). Evaluation of an innovative consumer-run service model: The Drop-In Center. Innovations & Research, 1(2), 19-24.Google Scholar
  16. Mueser, K.T., Bond, G.R., Drake, R.E., et al. (1998). Models of community care for severe mental illness: A review of research on case management. Schizophrenia Bulletin, 24, 37-74.Google Scholar
  17. Segal, S. P., & Silverman, C. (2002). Determinants of client outcomes in self-help agencies. Psychiatric Services, 53(3), 304-309.Google Scholar
  18. Segal, S.P., Silverman, C., & Temkin, T. (1993). Empowerment and self-help agency practice for people with mental disabilities. Social Work, 38(6), 705-712.Google Scholar
  19. Silverman, S. (1997). Recovery through partnership: "on our own, Charlottesville, Virginia." In Mowbray, C. T., et al., (Eds.). Consumers as providers in psychiatric rehabilitation (pp. 126-141). Columbia, Md.: International Assoc. for Psychosocial Rehabilitation Services.Google Scholar
  20. Solomon, P., & Draine, J. (1996). Perspectives concerning consumers as case managers. Community Mental Health Journal, 32(1), 41-46.Google Scholar
  21. Teague, G.B., Bond, G.R., & Drake, R.E. (1998). Program fidelity in assertive community treatment: Development and use of a measure. American Journal of Orthopsychiatry, 68(2), 216-232.Google Scholar
  22. Teague, G. B., Drake, R. E., & Ackerson, T. H. (1995). Evaluating use of continuous treatment teams for persons with mental illness and substance abuse. Psychiatric Services, 46 (7), 689-695.Google Scholar
  23. Teague, G.B., Ganju, V., Hornik, J.A., et al. (1997). The MHSIP mental health report card. A consumer-oriented approach to monitoring the quality of mental health plans. Evaluation Review, 21 330-341.Google Scholar
  24. Test, M.A. (1998). Community-based treatment models for adults. In Williams, J.B.W. and Ell, K. (Eds.) Advances in mental health research: Implications for practice (pp. 420-436). Silver Springs, MD: NASW Press.Google Scholar
  25. Van Tosh, L., & del Vecchio, P. (2000). Consumer-operated self-help programs: A technical report. Center for Mental Services, SAMHSA, PHS, US-DHHS. Rockville, MD (www.samsha. gov).Google Scholar
  26. Yanos, P. T., Primavera, L. H., & Knight, E. L. (2001). Consumer-run service participation, recovery of social functioning, and the mediating role of psychological factors. Psychiatric Services, 52(4), 493-500.Google Scholar
  27. Zinman, S. (1986). Self-help: The wave of the future. Hospital and Community Psychiatry, 37(3), 213.Google Scholar

Copyright information

© Human Sciences Press, Inc. 2004

Authors and Affiliations

  • Mark C. Holter
    • 1
  • Carol T. Mowbray
    • 2
  • Chyrell D. Bellamy
    • 2
  • Peter MacFarlane
    • 2
  • Jean Dukarski
    • 3
  1. 1.University of Michigan School of Social WorkAnn Arbor
  2. 2.University of Michigan School of Social WorkAnn Arbor
  3. 3.Justice in Mental Health OrganizationLansing

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