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Revision and Psychometric Testing of the City of Hope Quality of Life–Ostomy Questionnaire

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Abstract

Purpose: Ostomies may be performed for bowel or urinary diversion, and occur in both cancer and non-cancer patients. Impact on physical, psychological, social and spiritual well-being is not unexpected, but has been minimally described in the literature. The City of Hope Quality of Life (COH-QOL)-Ostomy Questionnaire is an adult patient self-report instrument designed to assess quality of life. This report focuses on the revision and psychometric testing of this questionnaire. Patients and methods: The revised COH-QOL-Ostomy Questionnaire involved in-depth patient interviews and expert panel review. The format consisted of a 13-item disease and demographic section, a 34-item forced-choice section, and a 41-item linear analogue scaled section. A mailed survey to California members of the United Ostomy Association resulted in a 62% response rate (n = 1513). Factor analysis was conducted to refine the instrument. Construct validity involved testing a number of hypotheses identifying contrasting groups. Results: Factor analysis confirmed the conceptual framework. Reliability of subscales ranged from 0.77 to 0.90. The questionnaire discriminated between subpopulations with specific concerns. Conclusions: Overall, the analyses provide evidence for the validity and reliability of the COH-QOL-Ostomy Questionnaire as a comprehensive, multidimensional self-report questionnaire for measuring quality of life in patients with intestinal ostomies.

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References

  1. DeCosse JJ.Quality of life.J Surg Oncol 1997;65:231.

    Google Scholar 

  2. Trichopoulos D, Petridou E, Lipworth L, Adami H.Epidemiology of cancer.In:DeVita V, Hellman S, Rosenberg S (eds),Cancer Principles and Practice of Oncology 5th ed. Philadelphia: Lippincott-Raven,1997;231–257.

    Google Scholar 

  3. Grumann MM, Noack EM, Hoffman IA, Schlag PM. Comparison of quality of life in patients undergoing abdominal extirpation or anterior resection for rectal cancer.Ann Surg 2001;233(2):149–158.

    Google Scholar 

  4. Andes PG, Friedman LS.Epidemiology and the natural course of inflammatory bowel disease.Gastroenterol Clin North Am 1999;28(2):255–281.

    Google Scholar 

  5. Spilker B.Introduction.In:Spilker B (ed.),Quality of Life Assessment in Clinical Trials,2nd ed.New York: Lippincott,1996;3–9.

    Google Scholar 

  6. Padilla G, Ferrell B, Grant M, Rhiner M.De fining the content domain of quality of life for cancer patients with pain.Cancer Nurs 1990;13:108–115.

    Google Scholar 

  7. Ware JE.Scales for measuring general health perceptions. Health Serv Res 1976;11(4):396–415.

    Google Scholar 

  8. Orbach CE, Tallent N.Modi fication of perceived body and body concepts following the construction of a colostomy. Arch Gen Psychiatr 1965;12:126–135.

    Google Scholar 

  9. Watson PG.The effects of short-term post-operative counseling on cancer/ostomy patients.Cancer Nurs 1983; 3:21–29.

    Google Scholar 

  10. Jenks JM, Morin KH, Tomaselli N.The influence of ostomy surgery on body image in patients with cancer.Appl Nurs Res 1997;10(4):174–180.

    Google Scholar 

  11. Klopp AL.Body image and self-concept among individuals with stomas.J Enterostom Ther 1990;17:98–105.

    Google Scholar 

  12. Kourkouras D, Spiliotis J, Scopa CD,et al.Radical consequence in the sexuality of male patients operated for colorectal carcinoma.Eur J Surg Oncol 1991;17:285–288.

    Google Scholar 

  13. Kuchenho J., Wirsching M, Draner HU, Herrmann G, Kohler C.Coping with a stoma–a comparative study of patients with rectal carcinoma or inflammatory bowel diseases.Psychother Psychosom 1981;36:98–104.

    Google Scholar 

  14. MacDonald LD, Anderson HR.Stigma in patients with rectal cancer:A community study.J Epidemiol Commun Health 1989;38:284–290.

    Google Scholar 

  15. Sprangers MAG, Taal BG, Aaronson NK, te Velde A. Quality of life in colorectal cancer.Dis Colon Rectum 1995; 38(4):361–369.

    Google Scholar 

  16. Drossman DA, Leserman J, Li Z, Mitchell M, Zagami EA, Patrick DL.The rating form of IBD patient concerns:A new measure of health status.Psychosom Med 1991;53: 701–712.

    Google Scholar 

  17. Love JR, Irvine EJ, Fedorak RN.Quality of life in clinical inflammatory bowel disease.J Clin Gastroenterol 1992; 14(1):15–19.

    Google Scholar 

  18. Padilla GV, Grant MM.Quality of life as a cancer nursing outcome variable.Adv Nurs Sci 1985;8(1):45–60.

    Google Scholar 

  19. Padilla GV, Grant MM, Martin L.Rehabilitation and quality of life measurement issues.J Head Neck Surg 1988; 10(Suppl.):S156–S160.

    Google Scholar 

  20. Ferrell BR, Grant MM, Padilla G, Vemuri S, Rhiner M. The experience of pain and perceptions of quality of life: Validation of a conceptual model.Hospice J 1991;7(3):9–24.

    Google Scholar 

  21. Padilla GV, Mishel MH, Grant M.Uncertainty,appraisal, and quality of life.Qual Life Res 1992;1(3):155–165.

    Google Scholar 

  22. Grant M, Ferrell B, Schmidt GM, Fonbuena P, Niland JC, Forman SJ.Measurement of quality of life in bone marrow transplantation survivors.Qual Life Res 1992;1(6):375–384.

    Google Scholar 

  23. Ferrell B, Hassey-Dow K, Grant M.Measurement of quality of life in cancer survivors.Qual Life Res 1995;4: 523–531.

    Google Scholar 

  24. Ferrell B, Grant M, Funk B, Garcia N, Otis-Green S, Shaffner MLJ.Quality of life in breast cancer.Cancer Prac 1996;4(6):331–340.

    Google Scholar 

  25. Padilla GV, Presant C, Grant MM, Metter G, Lipsett J, Heide F.Quality of life index for patients with cancer.Res Nurs Health 1983;6:117–126.

    Google Scholar 

  26. Scientific Advisory Committee of the Medical Outcomes Trust.Assessing health status and quality-of-life instruments.Attributes and review criteria.Qual Life Res 2002; 11:193–205.

    Google Scholar 

  27. Gill TM, Feinstein AR.A critical approach of the quality of quality of life measurements.JAMA 1994;272(8):619–626.

    Google Scholar 

  28. \Grant MM, Padilla GV, Presant C, Lipsett J, Runa PL.Cancer patients and quality of life.Proceedings of the Fourth National Conference on Cancer Nursing.Los Angeles,California: American Cancer Society,1984;2–11.

    Google Scholar 

  29. DeCosse JJ, Cennerazzo WJ.Quality-of-life management of patients with colorectal cancer.CA-A Cancer J for Clin 1997;47(4):198–206.

    Google Scholar 

  30. Bui LL, Last L, Bradley H, Law CHL, Maier BA, Smith AJ.Interest and participation in support of group programs among patients with colorectal cancer.Cancer Nurs 2002;25(2):150–157.

    Google Scholar 

  31. Grunberg KL.Sexual rehabilitation of the cancer patient undergoing ostomy surgery.J Enterostom Ther 1986;13: 148–152.

    Google Scholar 

  32. Hurny C, Holland J.Psychosocial sequelae of ostomies in cancer patients.Cancer–A Cancer J Clin 1985;35(3):170–183.

    Google Scholar 

  33. Grant, MM.Quality of life issues in colorectal cancer. Develop Support Cancer Care 1999;3(1):4–9.

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Authors and Affiliations

  1. City of Hope National Medical Center, Duarte, California (E-mail:

    Marcia Grant, Betty Ferrell, Grace Dean & David Chu

  2. Vital Research, LLC, Los Angeles, California

    Gwen Uman

  3. Southern Arizona Veterans Association Health Care System (SAVAHCS), University of Arizona, Tucson, Arizona, USA

    Robert Krouse

Authors
  1. Marcia Grant
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  2. Betty Ferrell
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  3. Grace Dean
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  4. Gwen Uman
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  5. David Chu
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  6. Robert Krouse
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Grant, M., Ferrell, B., Dean, G. et al. Revision and Psychometric Testing of the City of Hope Quality of Life–Ostomy Questionnaire. Qual Life Res 13, 1445–1457 (2004). https://doi.org/10.1023/B:QURE.0000040784.65830.9f

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  • DOI: https://doi.org/10.1023/B:QURE.0000040784.65830.9f

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