Abstract
A survey of systemic lupus erythematosus patients was carried out in Portugal. The length of time from disease appearance to diagnosis remained unchanged over the 1970–2001 study period, while awareness of the disease increased considerably in the population in the mid-1990s, apparently as a result of an awareness campaign conducted by the national lupus support group. The data are compared to results from similar studies worldwide.
References
Tan EM, Cohen AS, Fries JF, et al. The 1982 revised criteria for the classification of systemic lupus erythematosus. Arthritis Rheum 1982; 25: 1271–1277.
Manzi S. Epidemiology of systemic lupus erythematosus. Am J Managed Care 2001; 7: S474–S479.
Stein H, Walters K, Dillon A, Schulzer M. Systemic lupus erythematosus - a medical and social profile. J Rheumatol 1986; 13: 570–576.
Ka MM, Diallo S, Kane A, et al. Systemic lupus erythematosus and lupus syndromes in Senegal. Rev Rheum [Engl Ed] 1998; 65: 471–476.
Cervera R, Khamasta MA, Font J, et al. Systemic lupus erythematosus: Clinical and immunologic patterns of disease expression in a cohort of 1000 patients. Medicine 1993; 72: 113–124.
Jacobsen S, Petersen J, Ullman S, et al. A multicentre study of 513 Danish patients with systemic lupus erythematosus. I. Disease manifestations and analyses of clinical subsets. Clin Rheumatol 1998; 17: 468–477.
Gudmundsson S, Steinsson K. Systemic lupus erythematosus in Iceland 1975 through 1984. A nationwide epidemiological study in an unselected population. J Rheumatol 1990; 17: 1162–1167.
Corcoran D, O'sullivan M, Wall JG. Clinical spectrum and diagnosis of systemic lupus erythematosus in the Republic of Ireland. Med Sc Res 1999; 27: 769–771.
Swaak AJG, Nieuwenhuis EJ, Smeenk RJT. Changes in clinical features of patients with systemic lupus erythematosus followed prospectively over 2 decades. Rheumatol Int 1992; 12: 71–75.
Karlson EW, Daltroy LH, Lew RA, et al. The relationship of socioeconomic status, race, and modifiable risk factors to outcomes in patients with systemic lupus erythematosus. Arthritis Rheum 1997; 40: 47–56.
Konttinen YT, Santavirta N, Honkanen V, Sandelin S, Schauman L, Grönblad M. Systemic lupus erythematosus patient guide: Influence on knowledge of the disease. Ann Rheum Dis 1991; 50: 900–902.
Wekking EM, Vingerhoets AJM, van Dam AP, Nossent JC, Swaak AJG. Daily stressors and systemic lupus erythematosus: A longitudinal analysis - first findings. Psychother Pshchosom 1991; 55: 108–113.
Hopkinson ND, Doherty M, Powell RJ. Clinical features and race-specific incidence/prevalence rates of systemic lupus erythematosus in a geographically complete cohort of patients. Ann Rheum Dis 1994; 53: 675–680.
Uramoto KM, Michet Jr CJ, Thumboo J, Sunku J, O'Fallon WM, Gabriel SE. Trends in the incidence and mortality of systemic lupus erythematosus, 1950-1992. Arthritis Rheum 1999; 42: 46–50.
Jonsson H, Nived O, Sturfelt G. The effect of age on clinical and serological manifestations in unselected patients with systemic lupus erythematosus. J Rheumatol 1988; 15: 505–509.
Hochberg MC, Perlmutter DL, Medsger TA, et al. Prevalence of self-reported physician-diagnosed systemic lupus erythematosus in the USA. Lupus 1995; 4: 454–456.
Catoggio LJ, Skinner RP, Smith G, Maddison PJ. Systemic lupus erythematosus in the elderly: Clinical and serological characteristics. J Rheumatol 1984; 11: 175–181.
Sutcliffe N, Clarke AE, Levinton C, Frost C, Gordon C, Isenberg DA. Associates of health status in patients with systemic lupus erythematosus. J Rheumatol 1999; 26: 2352–2356.
Corcoran D, Wall JG. Lupus support and awareness in the Republic of Ireland. Irish Med J 2000; 93: 54–55.
Lahita RG. Special report: Adjusted lupus prevalence. Results of a marketing survey by the Lupus Foundation of America. Lupus 1995; 4: 450–453.
Segasothy M, Phillips PA. Systemic lupus erythematosus in Aborigines and Caucasians in central Australia: A comparative study. Lupus 2001; 10: 439–444.
Jonsson H, Nived O, Sturfelt G. Outcome in systemic lupus erythematosus: A prospective study of patients from a defined population. Medicine 1989; 68: 141–150.
Swaak AJG, Nossent JC, Bronsveld W, et al. Systemic lupus erythematosus. I. Outcome and survival: Dutch experience with 110 patients studied prospectively. Ann Rheum Dis 1989; 48: 447–454.
Nived O, Sturfelt G, Wollheim F. Systemic lupus erythematosus in an adult population in southern Sweden: Incidence, prevalence and validity of ARA revised classification criteria. Brit J Rheumatol 1985; 24: 147–154.
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Moriarty, T., O'Sullivan, M., Tam, A. et al. Systemic lupus erythematosus in Portugal: Diagnosis and disease awareness from 1970 to 2001. Eur J Epidemiol 18, 995–999 (2003). https://doi.org/10.1023/A:1025854611531
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DOI: https://doi.org/10.1023/A:1025854611531