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Empowering Parents: The Use of the Parent as Researcher Paradigm in Early Intervention

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Abstract

Whilst family-focussed models of service delivery are proving more effective in early intervention, it is the parents who ultimately carry the burden of responsibility. They often evolve their own strategies for coping with difficulties and solving problems within a family context. Through case study analysis, I report on some of the key outcomes of early intervention for families of very young children with disabilities. The analysis challenges traditional definitions of the family and suggests a recontextualisation of this concept. Similarly parental perceptions of the style of early intervention services are contrasted with those models reported to be effective by professionals. In striving for optimal effectiveness in early intervention, the unique knowledge and understanding of parents is pivotal, and ways are suggested of objectively collecting and collating that knowledge to inform practice and identify important research questions. This case study analysis has led to the evolution of the parent as researcher paradigm, and the implications for the practical implementation of this model will be considered.

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REFERENCES

  • Appleton, P. L., & Minchcom, P. E. (1991). Models of parent partnerships and child development centres. Child: Care, Health and Development, 17, 27–38.

    Google Scholar 

  • Bailey, D. B., Palsha, S. A., & Huntington, G. S. (1990). Preservice preparation of special educators to work with infants with handicaps and their families: Current status and training needs. Journal of Early Intervention, 14, 43–54.

    Google Scholar 

  • Beresford, B. (1996). Positively parents: Caring for a severely disabled child. London: Social Policy Research Unit/HMSO.

    Google Scholar 

  • Blackstone, S. W., & Williams, M. B. (1994). Family involvement in the AAC intervention process: Conceptual and methodological issues. In J. Broding & E. Bjorck-Akesson (Eds.), Methodological issues in research in augmentative and alternative communication. Jonkoping, Sweden: Jonkoping University Press.

    Google Scholar 

  • Brinker, R. P. (1992). Family involvement in early intervention: Accepting the unchangeable, changing the changeable and knowing the difference. Topics in Early Childhood Special Education, 12, 307–332.

    Google Scholar 

  • Carpenter, B. (1995a). Family support: The contribution of early intervention services. Association Nationale des Communautes Educatives Bulletin, 89, 31–38.

    Google Scholar 

  • Carpenter, B. (1995b). “Tell me about Katie”: Attitudes of mainstream 7–8-year-olds to a peer with Down's syndrome. Down's syndrome: Research and Practice, 3, 45–52.

    Google Scholar 

  • Cochran, M. (1990). Personal social networks as a focus of support. Prevention in Human Services, 9, 45–67.

    Google Scholar 

  • Dale, N. (1995). Working with families of children with special needs. London: Routledge.

    Google Scholar 

  • Dempsey, I. (1993). The measurement of parental empowerment. In M. Arthur, R. Conway, & P. Foreman (Eds.), Quality and equality in intellectual disability. Newcastle, New South Wales: Australian Society for the Study of Intellectual Disability.

    Google Scholar 

  • Dunst, C. J., Trivette, C. M., & Deal, A. (1988). Enabling and empowering families: Principles and guidelines for practice. Cambridge, MA: Brookline.

    Google Scholar 

  • Guralnick, M. J. (1991). The next decade of research in the effectiveness of early intervention. Exceptional Children, 58, 174–183.

    Google Scholar 

  • Herbert, E., & Carpenter, B. (1994). Fathers: The secondary partners. In B. Carpenter (Ed.), Early intervention: Where are we now? (pp. 43–58). Oxford: Westminster College.

    Google Scholar 

  • Hornby, G. (1988). Launching parent-to-parent schemes. British Journal of Special Education, 15, 77–78.

    Google Scholar 

  • Hornby, G. (1989). A model for parent participation. British Journal of Special Education, 16, 161–162.

    Google Scholar 

  • Hornby, G. (1995). Working with parents of children with special needs. London: Cassell.

    Google Scholar 

  • Maki, I. (1994). Ecological approaches and early intervention. In M. Leskinen (Ed.), Family in focus (pp. 75–86). Jyväskylä, Finland: Jyväskylä University Press.

    Google Scholar 

  • Mattus, M. R. (1994). Interview as intervention: Strategies to empower families of children with disabilities. In M. Leskinen (Ed.), Family in focus (pp. 86–108). Jyväkylä, Finland: Jyväkylä University Press.

    Google Scholar 

  • Noonan, M. J., & McCormick, L. (1993). Early intervention in natural environments: Methods and procedures. Pacific Grove, CA: Brooks/Cole.

    Google Scholar 

  • Peterander, F. (1995). Early intervention: Research report to the Helios II programme. Munich, Germany: Ludwig-Maximilian University.

    Google Scholar 

  • Quine, L., & Pahl, J. (1991). Stress and coping in mothers caring for a child with severe learning difficulties: A test of Lazarus' transaction model of coping. Journal of Community and Applied Social Psychology, 1, 57–70.

    Google Scholar 

  • Robson, C. (1993). Real world research: A resource for social scientists and practitioner-researchers. Oxford: Blackwell.

    Google Scholar 

  • Sloper, P., Knussen, C., Turner, S., & Cunningham, C. (1991). Factors related to stress and satisfaction with life in families of children with Down's syndrome. Journal of Child Psychology and Psychiatry, 32, 655–676.

    Google Scholar 

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Carpenter, B. Empowering Parents: The Use of the Parent as Researcher Paradigm in Early Intervention. Journal of Child and Family Studies 6, 391–398 (1997). https://doi.org/10.1023/A:1025037210871

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