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“I Didn't Leave Y'all on Purpose”: HIV-Infected Mothers' Videotaped Legacies for Their Children

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Abstract

The authors analyzed twelve videotapes made by HIV-infected women for their children. Using grounded theory methods the concept of “eternal mothering” provides a framework to study the interactive aspects of mothering, and the significance of impending maternal death from a stigmatizing illness. In creating these videotape legacies, the mothers drew on personal experiences of gender, class, race, ethnicity, family configurations, and other social conditions. There is tension between women's self-presentation in an attempt to control the impressions they make on their children, and their decision to disclose stigmatizing secrets with the potential consequential loss of maternal authority and children's loyalty, as well as inherited shame by association.

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REFERENCES

  • Anastos, K., & C. Marte. 1989. “Women—The missing persons in the AIDS epidemic.” Health/PAC Bulletin, Winter, 6–13.

  • Baca Zinn, M. B., & B. T. Dill. 1994. Difference and domination. In M. B. Zinn and B. T. Dill (Eds.) Women of color in U.S. Society. Philadelphia: Temple University Press.

    Google Scholar 

  • Barnes, D. B. 1992. The disclosure of HIV status in health care settings: Processes, Patterns, and Consequences. Ph.D. diss., University of California, San Francisco.

    Google Scholar 

  • Barnes, D. B. 1996. “Self-disclosure experience of people with HIV infection in dedicated and mainstreamed dental facilities.” Journal of Public Health Dentistry, 56,4, 223–225.

    Google Scholar 

  • Becker, H. S. 1986. “Photography and sociology.” In H. S. Becker (Ed.), Doing things together: Selected papers. Evanston, Ill: Northwestern University Press.

    Google Scholar 

  • Beloff, H. 1985. Camera Culture. New York: Basil Blackwell.

    Google Scholar 

  • Braden, S. 1983. Committing photography. London: Pluto Press.

    Google Scholar 

  • Chaplin, E. 1994. Sociology and visual representation. London: Routledge.

    Google Scholar 

  • Chodorow, N. 1978. The reproduction of mothering. Berkeley, CA: University of California Press.

    Google Scholar 

  • Cohen, M. 1994. “Integrating HIV care in primary care settings.” Paper presented at Annual Meetings of the American Public Health Association, Washington, D.C.

  • Collier, J. Jr. 1967. Visual anthropology: Photography as a research method. New York: Holt, Rinehart and Winston.

    Google Scholar 

  • Collins, P. H. 1991. Black feminist thought: Knowledge, consciousness, and the politics of empowerment. New York: Routledge.

    Google Scholar 

  • Collins, P. H. 1994. “Shifting the center, race, class, and feminist theorizing about motherhood.” In M. B. Baca Zinn and B. T. Dill (Eds.) Women of color in U.S. Society. Philadelphia: Temple University Press.

    Google Scholar 

  • Dill, B. T. 1988. “Our mothers' grief: Racial ethnic women and the maintenance of families.” Journal of Family History, 13,4, 415–431.

    Google Scholar 

  • Dill, B. T. 1994. “Fictive kin, paper sons, and Compadrazgo: Women of color and the struggle for family survival.” In M. B. Zinn and B. T. Dill (Eds.) Women of color in U.S. Society. Philadelphia: Temple University Press.

    Google Scholar 

  • Ehrenreich, B., and D. English. 1973. Complaints and disorders: The sexual politics of sickness. New York: The Feminist Press.

    Google Scholar 

  • Gilligan, C. 1982. In a different voice: Psychological theory and women's development. Cambridge: Harvard University Press.

    Google Scholar 

  • Glaser, B. G. 1978. Theoretical sensitivity: Advances in the methodology of grounded theory. Mill Valley, California: The Sociology Press.

    Google Scholar 

  • Glaser, B. G., & Strauss, A. L. 1967. The discovery of grounded theory: strategies for qualitative research. New York: Aldine De Gruyter.

    Google Scholar 

  • Glenn, E. N. 1994. “Social constructions of mothering: A thematic overview.” In E. N. Glenn, G. Chang, and L. R. Forcey (Eds.) Mothering: Ideology, experience, and agency. New York: Routledge.

    Google Scholar 

  • Goffman, E. 1959. The presentation of self in everyday life. New York: Doubleday.

    Google Scholar 

  • Goffman. E. 1963. Stigma: Notes on the management of spoiled identity. New York: Simon & Schuster.

    Google Scholar 

  • Goffman, E. 1979. Gender advertisements. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Green, R. 1990. “American Indian women: Diverse leadership for social change.” In L. Albrecht and R. M. Brewer (Eds.) Bridges of power: Women's Multicultural alliances. Philadelphia: New Society.

    Google Scholar 

  • Hammond, J. D. 1989. “Representation in a collaborative video project.” Visual Sociology Review, Spring, 4,1, 8–15.

    Google Scholar 

  • Heilbrun, C. G. 1988. Writing a women's life. New York: Ballantine Books.

    Google Scholar 

  • Lather, P. A. 1993. “Fertile obsession: Validity after poststructuralism.” The Sociological Quarterly, 34,4, 673–693.

    Google Scholar 

  • Lather, P. A. 1995. “The validity of angels: Interpretive and textual strategies in researching the lives of women with HIV/AIDS.” Qualitative Inquiry, 1,1, 41–68.

    Google Scholar 

  • Lesy, M. 1987. The Forbidden Zone. New York: Farrar, Straus and Giroux.

    Google Scholar 

  • Lesy, M. 1973. Wisconsin Death Trip. New York: Pantheon.

    Google Scholar 

  • Levine, C. & Stein, G. 1994. “Orphans of the HIV epidemic: New York, The Orphan Project.” The Orphan Project, 121 Avenue of the Americas, 6th Floor, New York, NY 10013.

  • McCall, M. M., & Wittner, J. 1990. “The good news about life history.” In H. S. Becker and M. M. McCall (Eds.) Symbolic Interaction and cultural studies. Chicago: The University of Chicago Press.

    Google Scholar 

  • Michaels, D., & Levine, C. 1992. “Estimates of the number of motherless youth orphaned by AIDS in the United States.” Journal of the American Medical Association, 268,24, 3456–3461.

    Google Scholar 

  • Naples, N. A. 1991. “Just what needed to be done: The political practice of women community workers in low-income neighborhoods.” Gender & Society, 5,4, 478–494.

    Google Scholar 

  • Naples, N. A. 1992. “Activist mothering: Cross-generational continuity in the community work of women from low-income urban neighborhoods.” Gender & Society, 6,3, 441–463.

    Google Scholar 

  • Nixon, N., & Nixon, B. 1991. People with AIDS. Boston: David R. Godine.

    Google Scholar 

  • Pivnick, A. 1994. “Childbearing and the meaning of children among poor inner city, drug-using women.” Paper presented at Annual Meetings, American Public Health Association, Washington, D.C.

  • Press, A. L. 1991. Women watching television: Gender, class, and generation in the American television experience. Philadelphia: University of Pennsylvania Press.

    Google Scholar 

  • Ruddick, S. 1983. “Maternal thinking.” In J. Trebilcot (Ed.) Mothering: Essays in feminist theory. Totowa, NJ: Rowman & Allanheld.

    Google Scholar 

  • Ruddick, S. 1989. Maternal thinking:Toward a politics of peace. Boston: Beacon Press.

    Google Scholar 

  • Sack, C. 1994. “Different voices, different visions: Gender, culture, and moral reasoning.” In M. B. Baca Zinn and B. T. Dill (Eds.) Women of color in U.S. Society. Philadelphia: Temple University Press.

    Google Scholar 

  • Siegel, K., & Gorey, E. 1994. “Childhood bereavement due to parental death from Acquired Immunodeficiency Syndrome.” Journal of Developmental and Behavioral Pediatrics, 15,3, S66–S69.

    Google Scholar 

  • Smith, D. E. 1987. The everyday world as problematic: A feminist sociology. Boston: Northeastern University Press.

    Google Scholar 

  • Strauss, A. L. 1987. Qualitative Analysis for Social Scientists. New York: Cambridge University Press.

    Google Scholar 

  • Strauss, A. L., & Corbin, J. 1990. Basics of qualitative research: Grounded theory procedures and techniques. London: Sage Publications.

    Google Scholar 

  • Tasker, M. 1992. How can I tell you. Bethesda, MD: Association for the Care of Children's Health.

    Google Scholar 

  • Taylor-Brown, S. 1993. “HIV-positive women: Finding a voice in the AIDS pandemic.” In V. Lynch, G. Lloyd, and M. Fimbres (Eds.) The changing faces of AIDS. Westport, CT: Auburn House.

    Google Scholar 

  • Taylor-Brown, & Wiener, L. 1993. “Making videotapes of HIV-infected women for their children.” Families in Society, 78,8, 468–479.

    Google Scholar 

  • The Nation's Health. 1993 “AIDS to Orphan 80,000 youths by 2000.” January.

  • Wiener, L. C., Fair, & R. Granowsky. 1993. “HIV infection in infants, children, and adolescents: Implications for social work practice.” In V. Lynch, G. Lloyd, and M. Fimbres (Eds.) The changing faces of AIDS. Westport, CT: Auburn House.

    Google Scholar 

  • Worth, S., & Adair, J. 1975. Through Navajo eyes: An exploration in film communication and anthropology. Bloomington: Indiana University Press.

    Google Scholar 

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Barnes, D.B., Taylor-Brown, S. & Wiener, L. “I Didn't Leave Y'all on Purpose”: HIV-Infected Mothers' Videotaped Legacies for Their Children. Qualitative Sociology 20, 7–32 (1997). https://doi.org/10.1023/A:1024760113945

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