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The Experiences of African Americans and Euro-Americans with Multiple Sclerosis

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Abstract

This article summarizes the experiences of 76 Euro-Americans and 24 African Americans who have multiple sclerosis (MS), a chronic neurological disease which affects 250,000–350,000 Americans. Although the majority of people with MS are young to middle-aged women of Northern European origin, African Americans, Asian Americans, Latinos, and Native Americans also have MS. This qualitative study explores the impact of race and gender on people's initial interpretation of symptoms, access to appropriate medical care, diagnosis, and adjustment to disability.

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REFERENCES

  1. Batten HL: Analysis of aggregated MS chapters' needs assessment research: a report to the NMSS. Waltham, MA: The Bugel Institute for Research, 1991.

    Google Scholar 

  2. Minden S, Orav J, Reich P: Depression in MS. General Hospital Psychiatry 9: 426–443, 1987.

    Google Scholar 

  3. Crews D, Bindon J: Ethnicity as a taxonomic category in biomedical and biosocial research. Ethnicity and Disease 1: 42–49, 1991.

    Google Scholar 

  4. Littlefield A, Lieberman L, Reynolds T: Redefining race: the potential demise of a concept in physical anthropology. Current Anthropology 23: 641–655, 1982.

    Google Scholar 

  5. Barber E (ed): Racism, gender, and health. Medical Anthropology Quarterly 7, 1993.

  6. Lieberman L, Jackson FL: Race and three models of human origin. American Anthropologist 97: 231–242, 1995.

    Google Scholar 

  7. Marshall P, Bennet L (eds): Culture and behavior in the AIDS epidemic. Medical Anthropology Quarterly 4, 1990.

  8. Ayanian J, Epstein A: Differences in the use of procedures between women and men hospitalized for coronary artery disease. New England Journal of Medicine 266: 221–226, 1991.

    Google Scholar 

  9. Kenton EJ: Access to neurological care for minorities. Archives of Neurology 48: 480–485, 1991.

    Google Scholar 

  10. Brooks D, Smith D, Anderson R: Medical apartheid: an American perspective. JAMA 266: 2746–2750, 1991.

    Google Scholar 

  11. Smart JF, Smart DW: Acceptance of disability and the Mexican-American culture. Rehabilitation Counseling Bulletin 34: 357–367, 1991.

    Google Scholar 

  12. Magnus MH: Cardiovascular health among African-Americans: a review of the health status, risk, reduction, and intervention strategies. American Journal of Applied Rehabilitation Counseling 22: 43–45, 1991.

    Google Scholar 

  13. Fischer JM: A comparison between American Indian and non-Indian consumers of vocational rehabilitation services. Journal of Applied Rehabilitation Counseling 22: 43–45, 1991.

    Google Scholar 

  14. McLaughlin J, Zeeberg I: Self-care and multiple sclerosis: a view from two cultures. Social Science and Medicine 37: 315–330, 1993.

    Google Scholar 

  15. Seidel J, Friese S, Leonard DC: The Ethnograph (version 4.0). Amherst, MA: Qualis Research Associates, 1994.

    Google Scholar 

  16. Patton MQ: Qualitative Evaluation and Research Methods. Newbury Park, CA: Sage, 1990.

    Google Scholar 

  17. Feussner J. Smiel D: General internal medicine. JAMA 270: 209–212, 1993.

    Google Scholar 

  18. Meeuwesen L, Schaap C, van der Staak C: Verbal analysis of doctor-patient communication. Social Science and Medicine 32: 1143–1151, 1991.

    Google Scholar 

  19. Hahn R: Sickness and Healing: An Anthropological Perspective. New Haven: Yale, 1995.

    Google Scholar 

  20. Lindsey L: Gender Roles: A Sociological Perspective. New York: Prentice Hall, 1997.

    Google Scholar 

  21. Freeman J (ed): Women: A Feminist Perspective. Mountain View, CA: Mayfield, 1995.

    Google Scholar 

  22. Furino A, Munoz E: Health status among Hispanics: major themes and new priorities. JAMA 265: 255–258, 1991.

    Google Scholar 

  23. Goldstein A: Worlds apart: health care in Washington. The Washington Post (July 31, August 1, August 2), 1994.

  24. Jenkins JH: The impress of extremity: women's experience of trauma and political violence. In Gender and Health: An International Perspective, CF Sargent and CB Brettell (eds). Upper Saddle River, NJ: Prentice Hall, 1996, pp. 278–291.

    Google Scholar 

  25. Tannen D: You Just Don't Understand: Women and Men in Conversation. New York: Ballantine Books, 1990.

    Google Scholar 

  26. Kugelmann R: Stress and its management: the cultural construction of an illness and its treatment in the anthropology of medicine: from culture to method. In The Anthropology of Medicine: From Culture to Method. L Romanucci-Ross, D Moerman, R Tancredi (eds). New York: Bergin and Garvey, 1991, pp. 371–388.

    Google Scholar 

  27. Chavez L, Hubbell A, McMullin J, Martinez R, Mishra S: Structure and meaning in models of breast and cervical cancer risk factors: a comparison of perceptions among Latinas, Anglo women, and physicians. Medical Anthropology Quarterly 9: 40–74, 1995.

    Google Scholar 

  28. Sargent C, Brettell C: Introduction: gender, medicine, and health. In Gender and Health: An International Perspective, C Sargent and C Brettell (eds). Upper Saddle River, NJ: Prentice Hall, 1996, pp. 1–28.

    Google Scholar 

  29. Rao S, Huber S, Bornstein R: Emotional changes with multiple sclerosis and Parkinson's disease. Journal of Consulting and Clinical Psychology 60: 369–379, 1992.

    Google Scholar 

  30. Minden S, Orav J, Reich P: Depression in MS. General Hospital Psychiatry 9: 426–443, 1987.

    Google Scholar 

  31. Minden S, Schiffer RB: Depression and mood disorders in MS. Neuropsychiatry, Neuropsychology, and Behavioral Neurology 4: 62–77, 1991.

    Google Scholar 

  32. Gergen KJ, Gergen MM: Narrative form and the construction of psychological science. In Narrative Psychology, TR Sarib (ed), 1986, p. 25.

  33. Robinson I: Personal narratives, social careers, and medical courses: analyzing life histories in autobiographies of people with multiple sclerosis. Social Science and Medicine 30: 1173–1186, 1990.

    Google Scholar 

  34. Matson RR, Brooks NA: Adjusting to multiple sclerosis: an exploratory study. Social Science and Medicine 11: 145–150, 1977.

    Google Scholar 

  35. Miles A: Some psychosocial consequences of multiple sclerosis. British Journal of Medical Psychology 52: 321–331, 1979.

    Google Scholar 

  36. Stewart DC, Sullivan TJ: Illness behavior and the sick role: the case of multiple sclerosis. Social Science and Medicine 16: 1397–1404, 1982.

    Google Scholar 

  37. Pollack K: Mind and Matter: A study of conceptions of health and illness among three groups of English families with particular reference to MS, schizophrenia, and 'nervous breakdown'. Ph.D. thesis, Cambridge University.

  38. Robinson I: Reconstructing lives: negotiating the meaning of MS. In Living with Chronic Illness, R Anderson, M Bury (eds). London: Unwin Hyman, 1988, pp. 43–66.

    Google Scholar 

  39. Gilmore D: Manhood in the Making: Cultural Concepts of Masculinity. New Haven: Yale, 1990.

    Google Scholar 

  40. Ward M: A World Full of Women. Needham Heights, MA: Allyn and Bacon, 1996.

    Google Scholar 

  41. Kleinman A: The Illness Narratives: Suffering, Healing, and the Human Condition. New York: Basic Books, 1988.

    Google Scholar 

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Authors and Affiliations

  1. Sociology-Anthropology Department, Shippensburg University, Shippensburg, PA, 17257-2299

    Christine A. Loveland

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  1. Christine A. Loveland
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Correspondence to Christine A. Loveland.

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Loveland, C.A. The Experiences of African Americans and Euro-Americans with Multiple Sclerosis. Sexuality and Disability 17, 19–35 (1999). https://doi.org/10.1023/A:1021499628918

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