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Disability Identity Formation and Affirmation: The Experiences of Persons with Severe Mental Illness

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Sociological Practice

Abstract

This article examines the pervasive nature and extent of the debilitating sense of shame associated with disability. It then explores the emergence of disability identity, pride, and culture to challenge such shame—illustrated in personal narrative accounts of the individual and collective journeys of people coping with severe mental illness.

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References

  • Cass, V. C. 1979. “Homosexual Identity Formation: A Theoretical Model. ” Journal of Homosexuality 4:219–235.

    Google Scholar 

  • Chan, C. S. 1989. “Issues of Identity Development Among Asian-American Lesbians and Gay Men. ” Journal of Counseling & Development 68:16–20.

    Google Scholar 

  • Coleman, E. 1982. “Developmental Stages of the Coming Out Process. ” Journal of Homosexuality 7(23):31–43.

    Google Scholar 

  • Condeluci, A. 1991. Interdependence: The Route to Community. Winter Park, FL: PMD Publishers Group.

    Google Scholar 

  • D'Augelli, A. R., and C. J. Patterson. 1995. Lesbian, Gay, and Bisexual Identities Over the Lifespan: Psychological Perspectives. New York: Oxford University Press.

    Google Scholar 

  • Davidson, J. 1991. Evaluation of an Education Model for Race/Ethnic Sensitive Social Work and Critique of the White Racial Identity Attitude Scale, Unpublished doctoral dissertation. Arlington: Graduate School, University of Texas at Arlington.

    Google Scholar 

  • Davidson, L., and J. S. Strauss. 1992. “Sense of Self in Recovery from Severe Mental Disorder. ” British Journal of Medical Psychology 65:131–145.

    Google Scholar 

  • DeCecco, J. P., and J. P. Elia. 1993. If You Seduce a Straight Person, Can You Make Them Gay? Issues in Biological Essentialism Versus Social Constructionism in Gay and Lesbian Identities. New York: Harrington Park Press.

    Google Scholar 

  • Finger, A. 1993. “Deemed Sexless. ” Utne Reader 56:107–108.

    Google Scholar 

  • Gill, C. J. 1992. “What the Doctors Didn't Want to Know. ” Disability Rag 13(3):11–13.

    Google Scholar 

  • Hastings, J. A. 1999. Voices in the Storm: A Personal Journey of Recovery from Mental Illness. St. Augustine, FL: Training Resource Network.

    Google Scholar 

  • Jamison, K. R. 1996. An Unquiet Mind. New York: Vintage Books.

    Google Scholar 

  • Kaufman, G., and L. Raphael. 1996. Coming Out of Shame: Transforming Gay and Lesbian Lives. New York: Bantam Doubleday Dell.

    Google Scholar 

  • Longmore, P. K. 1995. “The Second Phase: From Disability Rights to Disability Culture. ” Disability Rag & ReSource 16(5):4–11.

    Google Scholar 

  • Mackelprang, R. W., and R. O. Salsgiver. 1999. Disability: A Diversity Model Approach in Human Service Practice. Pacific Grove, CA: Brooks/Cole.

    Google Scholar 

  • Manning, M. 1996. Undercurrents: A Life Beneath the Surface. San Francisco: Harper.

    Google Scholar 

  • Moskovitz, R. 1996. Lost in the Mirror: An Inside Look at Borderline Personality Disorder. Dallas, TX: Taylor.

    Google Scholar 

  • Padden, C., and T. Humphries. 1988. Deaf in America: Voices from a Culture. Cambridge, MA: Harvard University Press.

    Google Scholar 

  • Piastro, D. 1995. “Identifying with Our Culture—Ourselves. ” Disability Rag & ReSource 16(5):11.

    Google Scholar 

  • Powell, T. J. 1995. “Self-Help Groups. ” Pp. 2116–2123 in Encyclopedia of Social Work, 19th ed. Washington, DC: NASW Press.

    Google Scholar 

  • Rappaport, J. 1985. “The Power of Empowerment Language. ” Social Policy 17:15–21.

    Google Scholar 

  • Savage, D. G. 1999, “Disability Law: Should It Benefit Millions More?” Austin American-Statesman 128(272):E1, E5(Apr. 25).

    Google Scholar 

  • Schiller, L. 1996. The Quiet Room: A Journey Out of the Torment of Madness. New York: Warner Books.

    Google Scholar 

  • Shapiro, J. P. 1993. No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Times Books.

    Google Scholar 

  • Sheehan, S. 1983. Is There No Place on Earth for Me? New York: Random House.

    Google Scholar 

  • Slater, L. 1998. Prozac Diary. New York: Random House.

    Google Scholar 

  • Stuab, E. 1987. “Moral Exclusion and Extreme Destructiveness: Personal Goal Theory, Differential Evaluation, Moral Equilibration and Steps Along the Continuum of Destruction,” Paper presentation. New York: American Psychological Association.

    Google Scholar 

  • Styron, W. 1992. Darkness Visible. New York: Vintage.

    Google Scholar 

  • Toombs, S. K. 1994. “Disability and Self. ” Pp. 337–357 in Changing the self: Philosophies, Techniques, and Experiences, edited by T. M. Brinthaupt and R. P. Lipka. New York: State University of New York Press.

    Google Scholar 

  • Tucker, N. (ed.). 1995. Bisexual Politics: Theories, Queries, and Visions. New York: Haworth Press.

    Google Scholar 

  • Wishik, H., and C. Pierce. 1995. Sexual Orientation and Identity: Heterosexual, Lesbian, Gay, and Bisexual Journeys. Laconia, NH: New Dynamics.

    Google Scholar 

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Onken, S.J., Slaten, E. Disability Identity Formation and Affirmation: The Experiences of Persons with Severe Mental Illness. Sociological Practice 2, 99–111 (2000). https://doi.org/10.1023/A:1010136801075

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  • DOI: https://doi.org/10.1023/A:1010136801075

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