American Journal of Community Psychology

, Volume 30, Issue 1, pp 133–148 | Cite as

Evaluating Attributions for an Illness Based Upon the Name: Chronic Fatigue Syndrome, Myalgic Encephalopathy and Florence Nightingale Disease

  • Leonard A. Jason
  • Renee R. Taylor
  • Sigita Plioplys
  • Zuzanna Stepanek
  • Jennifer Shlaes


In recent years, considerable discussion has occurred about stigma surrounding the name given to an illness currently known as chronic fatigue syndrome (CFS). Although patients and medical personnel have expressed varying opinions on this issue, no studies have evaluated how beliefs about the illness change based upon the type of name used for diagnostic purposes. Proposals have been put forth to rename the illness with an eponym (a famous patient's or researcher's name) or with a less trivial sounding, more medically based type of name. In this study, attributions about CFS were measured in three groups of medical trainees. All groups read the same case study of a person with classic symptoms of chronic fatigue syndrome, with the only difference being in the type of name given. Trainees then were asked to provide attributions about certain aspects of the illness, including its cause, severity, and prognosis. Results suggested that, across name conditions, most trainees appeared to consider the symptom complex of CFS a serious illness resulting in poor quality of life. In addition, findings indicated that the name, chronic fatigue syndrome, may be regarded less seriously than the Myalgic Encephalopathy name with respect to some important aspects of the illness. In this study, specialty of medical trainee also played a role in how the illness was perceived.

chronic fatigue syndrome attributions name 


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  1. Abbey, S. E., & Garfinkel, P. E. (1991). Neurasthenia and chronic fatigue syndrome: The role of culture in the making of a diagnosis. American Journal of Psychotherapy, 148 1638-1646.Google Scholar
  2. Burns, R. (1998). Responses for CFS name survey two. Retrieved from Scholar
  3. Donnay, A. (1999). CPARDigest (e-mail note posted to a CFS electronic bulletin board, May 6, 1999).Google Scholar
  4. Fine, M., & Asch, A. (1990). Disability beyond stigma: Social interaction, discrimination, and activism. In M. Nagler (Ed.), Perspectives on disability (pp. 61-74). Palo Alto, CA: Health Markets Research.Google Scholar
  5. Friedberg, F., & Jason, L. A. (1998). Understanding chronic fatigue syndrome: An empirical guide to assessment and treatment. Washington, DC: American Psychological Association.Google Scholar
  6. Hahn, H. (1990). The politics of physical difference: Disability and discrimination. In M. Nagler (Ed.), Perspectives on disability (pp. 118-123). Palo Alto, CA: Health Markets Research.Google Scholar
  7. Hoh, D. (1999). Why not just call it M.E.? The CIFIDS Chronicle, 12 9.Google Scholar
  8. Holmes, G. P., Kaplan, J. E., Gantz, N. M., Komaroff, A. L., Schonberger, L. B., Strauss, S. S., et al. (1988). Chronic fatigue syndrome:Aworking case definition. Annals of Internal Medicine, 108 387-389.Google Scholar
  9. Jason, L. A., Kolak, A. M., Purnell, T., Cantillon, D., Camacho, J. M., Klein, S., & Lerman, A. (2001). Collaborative ecological community interventions for people with chronic fatigue syndrome. Journal of Prevention and Intervention in the Community, 21 35-52.Google Scholar
  10. Jason, L. A., Richman, J. A., Friedberg, F., Wagner, L., Taylor, R., & Jordan, K. M. (1997). Politics, science, and the emergence of a new disease: The case of chronic fatigue syndrome. American Psychologist, 52 973-983.Google Scholar
  11. Katz, I., Hass, G., & Bailey, J. (1988). Attributional ambivalence and behavior toward people with disabilities. In H. Yuker (Ed.), Attitudes toward persons with disabilities (pp. 47-57). New York: Springer.Google Scholar
  12. Lorber, J. (1997). Gender and the social construction of illness. Thousand Oaks: Sage.Google Scholar
  13. Meyerson, L. (1990). The social psychology of physical disability: 1948-1988. In M. Nagler (Ed.), Perspectives on disability (pp. 13-23). Palo Alto, CA: Health Markets Research.Google Scholar
  14. Murray, T. J. (1995). The psychosocial aspects of multiple sclerosis. Neurologic Clinics, 13 197-223.Google Scholar
  15. Name-Change Survey Results. (1997). Retrieved from Scholar
  16. Richman, J. A., Jason, L. A., Taylor, R. R., & Jahn, S. C. (2000). Feminist perspectives on the social construction of illness states. Health Care for Women International, 22 173-185.Google Scholar
  17. Romei, J., Green, J., & Heinzen, T. (1996). Perceived stigma in chronic fatigue syndrome. Poster presented at the 1996 Eastern Psychological Association.Google Scholar
  18. Rosenberg, C. E. (1989). Disease in history: Frames and framers. Philadelphia: University of Pennsylvania School of Arts and Sciences.Google Scholar
  19. Schmelkin, L. (1988). Multidimensional perspectives in the perception of disabilities. In H. Yuker (Ed.), Attitudes toward persons with disabilities (pp. 127-137). New York: Springer.Google Scholar
  20. Shlaes, J. L., Jason, L. A., & Ferrari, J. R. (1999). The development of the chronic fatigue syndrome attitudes test: A psychometric analysis. Evaluation and the Health Professions, 22 442-465.Google Scholar
  21. Simpson, L. (1999). CPARDigest (e-mail note posted to a CFS electronic bulletin board, May 6, 1999).Google Scholar
  22. Soder, M. (1990). Prejudice or ambivalence? Attitudes toward persons with disabilities. Disability, Handicap, and Society, 5 227-241.Google Scholar
  23. Sontag, S. (1978). Illness as metaphor. New York: Farrar, Straus, and Giroux.Google Scholar
  24. Ware, N. C., & Kleinman, A. (1992). Culture and somatic experience: The social cause of illness in neurasthenia and chronic fatigue syndrome. Psychosomatic Medicine, 54 546-560.Google Scholar
  25. Wright, B. (1988). Attitudes and the fundamental negative bias: Conditions and corrections. In H. Yuker (Ed.), Attitudes toward persons with disabilities (pp. 3-21). New York: Springer.Google Scholar

Copyright information

© Plenum Publishing Corporation 2002

Authors and Affiliations

  • Leonard A. Jason
    • 1
  • Renee R. Taylor
    • 1
  • Sigita Plioplys
    • 2
  • Zuzanna Stepanek
    • 1
  • Jennifer Shlaes
    • 1
  1. 1.DePaul UniversityUSA
  2. 2.University of IllinoisUSA

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