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Disability Identity Formation and Affirmation: The Experiences of Persons with Severe Mental Illness

Abstract

This article examines the pervasive nature and extent of the debilitating sense of shame associated with disability. It then explores the emergence of disability identity, pride, and culture to challenge such shame—illustrated in personal narrative accounts of the individual and collective journeys of people coping with severe mental illness.

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References

  1. Cass, V. C. 1979. “Homosexual Identity Formation: A Theoretical Model. ” Journal of Homosexuality 4:219–235.

  2. Chan, C. S. 1989. “Issues of Identity Development Among Asian-American Lesbians and Gay Men. ” Journal of Counseling & Development 68:16–20.

  3. Coleman, E. 1982. “Developmental Stages of the Coming Out Process. ” Journal of Homosexuality 7(23):31–43.

  4. Condeluci, A. 1991. Interdependence: The Route to Community. Winter Park, FL: PMD Publishers Group.

  5. D'Augelli, A. R., and C. J. Patterson. 1995. Lesbian, Gay, and Bisexual Identities Over the Lifespan: Psychological Perspectives. New York: Oxford University Press.

  6. Davidson, J. 1991. Evaluation of an Education Model for Race/Ethnic Sensitive Social Work and Critique of the White Racial Identity Attitude Scale, Unpublished doctoral dissertation. Arlington: Graduate School, University of Texas at Arlington.

  7. Davidson, L., and J. S. Strauss. 1992. “Sense of Self in Recovery from Severe Mental Disorder. ” British Journal of Medical Psychology 65:131–145.

  8. DeCecco, J. P., and J. P. Elia. 1993. If You Seduce a Straight Person, Can You Make Them Gay? Issues in Biological Essentialism Versus Social Constructionism in Gay and Lesbian Identities. New York: Harrington Park Press.

  9. Finger, A. 1993. “Deemed Sexless. ” Utne Reader 56:107–108.

  10. Gill, C. J. 1992. “What the Doctors Didn't Want to Know. ” Disability Rag 13(3):11–13.

  11. Hastings, J. A. 1999. Voices in the Storm: A Personal Journey of Recovery from Mental Illness. St. Augustine, FL: Training Resource Network.

  12. Jamison, K. R. 1996. An Unquiet Mind. New York: Vintage Books.

  13. Kaufman, G., and L. Raphael. 1996. Coming Out of Shame: Transforming Gay and Lesbian Lives. New York: Bantam Doubleday Dell.

  14. Longmore, P. K. 1995. “The Second Phase: From Disability Rights to Disability Culture. ” Disability Rag & ReSource 16(5):4–11.

  15. Mackelprang, R. W., and R. O. Salsgiver. 1999. Disability: A Diversity Model Approach in Human Service Practice. Pacific Grove, CA: Brooks/Cole.

  16. Manning, M. 1996. Undercurrents: A Life Beneath the Surface. San Francisco: Harper.

  17. Moskovitz, R. 1996. Lost in the Mirror: An Inside Look at Borderline Personality Disorder. Dallas, TX: Taylor.

  18. Padden, C., and T. Humphries. 1988. Deaf in America: Voices from a Culture. Cambridge, MA: Harvard University Press.

  19. Piastro, D. 1995. “Identifying with Our Culture—Ourselves. ” Disability Rag & ReSource 16(5):11.

  20. Powell, T. J. 1995. “Self-Help Groups. ” Pp. 2116–2123 in Encyclopedia of Social Work, 19th ed. Washington, DC: NASW Press.

  21. Rappaport, J. 1985. “The Power of Empowerment Language. ” Social Policy 17:15–21.

  22. Savage, D. G. 1999, “Disability Law: Should It Benefit Millions More?” Austin American-Statesman 128(272):E1, E5(Apr. 25).

  23. Schiller, L. 1996. The Quiet Room: A Journey Out of the Torment of Madness. New York: Warner Books.

  24. Shapiro, J. P. 1993. No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Times Books.

  25. Sheehan, S. 1983. Is There No Place on Earth for Me? New York: Random House.

  26. Slater, L. 1998. Prozac Diary. New York: Random House.

  27. Stuab, E. 1987. “Moral Exclusion and Extreme Destructiveness: Personal Goal Theory, Differential Evaluation, Moral Equilibration and Steps Along the Continuum of Destruction,” Paper presentation. New York: American Psychological Association.

  28. Styron, W. 1992. Darkness Visible. New York: Vintage.

  29. Toombs, S. K. 1994. “Disability and Self. ” Pp. 337–357 in Changing the self: Philosophies, Techniques, and Experiences, edited by T. M. Brinthaupt and R. P. Lipka. New York: State University of New York Press.

  30. Tucker, N. (ed.). 1995. Bisexual Politics: Theories, Queries, and Visions. New York: Haworth Press.

  31. Wishik, H., and C. Pierce. 1995. Sexual Orientation and Identity: Heterosexual, Lesbian, Gay, and Bisexual Journeys. Laconia, NH: New Dynamics.

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Onken, S.J., Slaten, E. Disability Identity Formation and Affirmation: The Experiences of Persons with Severe Mental Illness. Sociological Practice 2, 99–111 (2000). https://doi.org/10.1023/A:1010136801075

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  • disability
  • identity formation
  • identity affirmation
  • mental illness