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Health Needs in Chronic Kidney Disease on Dialysis: a Qualitative Systematic Review

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Abstract

Chronic kidney disease (CKD) by 2017 affected 14.5% of the population in the USA; health needs are defined as “capacity to benefit” and incorporate determinants of health, knowing this is an important opportunity to generate a current and evidence-based picture of current deficiencies that really affect the patient’s health status. This study aims to identify health needs present in patients with CKD on dialysis from the experiences and perspectives of patients, family caregivers, and health professionals. We considered studies in hemodialysis or dialysis peritoneal contexts; disabilities, immigrants, and kidney transplant were excluded. The protocol was registered in PROSPERO; a comprehensive search was performed in MEDLINE, Embase, Web of Science, Lilacs, PsycARTICLES, Sociology Database, Nursing & Allied Health Database (via ProQuest), and gray literature; selection and data extraction were performed by two independent reviewers. Meta-aggregation was used to data analysis and methodological quality assessed. A total of 6818 records were screened and 14 included; a total of 18 categories were produced describing difficulties patients face; six synthesized findings were produced identifying health needs related to facilities and environment during dialysis, care, and relationships with health professionals; to the patient’s life as family and couple and daily activities; and to social conditions as work and social life. These results are a starting point based on evidence for health team and decision-makers have a global look about the impact of the CKD to promote a continuous construction in the care with quality and safety determining key aspects that can be intervened in the short, medium, and long term.

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References

  1. Ministerio de Salud y protección social. Guía de Práctica Clínica para el diagnóstico y tratamiento de la Enfermedad Renal Crónica (adopción). 2016; Número 59.

  2. United States Renal Data System. 2019 USRDS annual data report: epidemiology of kidney disease in the United States. National Institutes of Health, National Institute of Diabetes and Digestive and Kidney Diseases, Bethesda, MD, 2019.

  3. Wright J, Williams R, Wilkinson JR. Development and importance of health needs assessment. BMJ. 1998;316(7140):1310–3. https://doi.org/10.1136/bmj.316.7140.1310.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  4. Bradshaw J. Taxonomy of social need. In: McLachlan G, editor. Problems and progress in medical care: essays on current research. London: Oxford University Press; 1972. p. 71–82.

    Google Scholar 

  5. Lockwood C, Porrit K, Munn Z, Rittenmeyer L, Salmond S, Bjerrum M, et al. Chapter 2: systematic reviews of qualitative evidence. In: Aromataris E, Munn Z, editors. Joanna Briggs Institute Reviewer’s Manual: The Joanna Briggs Institute; 2017. Available from https://reviewersmanual.joannabriggs.org/.

  6. Lockwood C, Munn Z, Porritt K. Qualitative research synthesis: methodological guidance for systematic reviewers utilizing meta-aggregation. International Journal of Evidence-based Healthcare. 2015;13(3):179–87.

    Article  PubMed  Google Scholar 

  7. Moher D, Liberati A, Tetzlaff J, Altman DG, PRISMA Group. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. PLoS Med. 2009;6(7):e1000097. https://doi.org/10.1371/journal.pmed.1000097.

    Article  PubMed  PubMed Central  Google Scholar 

  8. Nobahar M, Tamadon MR. Barriers to and facilitators of care for hemodialysis patients; a qualitative study. J Renal Inj Prev. 2016;5(1):39–44. https://doi.org/10.15171/jrip.2016.09.

    Article  PubMed  PubMed Central  Google Scholar 

  9. Hagren B, Pettersen IM, Severinsson E, Lützén K, Clyne N. Maintenance haemodialysis: patients' experiences of their life situation. J Clin Nurs. 2005;14(3):294–300. https://doi.org/10.1111/j.1365-2702.2004.01036.x.

    Article  PubMed  Google Scholar 

  10. Greer RC, Ameling JM, Cavanaugh KL, Jaar BG, Grubbs V, Andrews CE, et al. Specialist and primary care physicians' views on barriers to adequate preparation of patients for renal replacement therapy: a qualitative study. BMC Nephrol. 2015;16:37. https://doi.org/10.1186/s12882-015-0020-x.

    Article  PubMed  PubMed Central  Google Scholar 

  11. Vafaei AA, Nobahar M. The care preferences of patients under hemodialysis. J Renal Inj Prev. 2017;6(3):210–5. https://doi.org/10.15171/jrip.2017.40.

    Article  Google Scholar 

  12. Borzou SR, Anosheh M, Mohammadi E, Kazemnejad A. Patients' perception of comfort facilitators during hemodialysis procedure: a qualitative study. Iran Red Crescent Med J. 2014;16(7):e19055. https://doi.org/10.5812/ircmj.19055.

    Article  PubMed  PubMed Central  Google Scholar 

  13. Aghakhani N, Sharif F, Molazem Z, Habibzadeh H. Content analysis and qualitative study of hemodialysis patients, family experience and perceived social support. Iran Red Crescent Med J. 2014;16(3):e13748. https://doi.org/10.5812/ircmj.13748.

    Article  PubMed  PubMed Central  Google Scholar 

  14. Bristowe K, Horsley HL, Shepherd K, Brown H, Carey I, Matthews B, et al. Thinking ahead the need for early Advance Care Planning for people on haemodialysis: a qualitative interview study. Palliat Med. 2015;29(5):443–50. https://doi.org/10.1177/0269216314560209.

    Article  PubMed  PubMed Central  Google Scholar 

  15. Cargnin M, Santos K, Getelina C, Rotoli A, Paula S, Ventura J. Los pacientes en hemodiálisis: la percepción de los cambios y las limitaciones de la enfermedad y el tratamiento. Revista de Pesquisa: Cuidado é Fundamental. 2018;10(4):926–31 Available on: http://ciberindex.com/c/ps/P104926.

    Google Scholar 

  16. Anderson K, Cunningham J, Devitt J, Preece C, Cass A. “Looking back to my family”: indigenous Australian patients’ experience of hemodialysis. BMC Nephrol. 2012;13:114. https://doi.org/10.1186/1471-2369-13-114.

    Article  PubMed  PubMed Central  Google Scholar 

  17. Rix EF, Barclay L, Stirling J, Tong A, Wilson S. The perspectives of Aboriginal patients and their health care providers on improving the quality of hemodialysis services: a qualitative study. Hemodial Int. 2015;19(1):80–9. https://doi.org/10.1111/hdi.12201.

    Article  PubMed  Google Scholar 

  18. Chenitz K, Fernando M, Shea JA. In-center hemodialysis attendance: patient perceptions of risks, barriers, and recommendations. Hemodial Int. 2014;18(2):364–73. https://doi.org/10.1111/hdi.12139.

    Article  PubMed  Google Scholar 

  19. Clarkson KA, Robinson K. Life on dialysis: a lived experience. Nephrol Nurs J. 2010 Jan-Feb;37(1):29–35.

    PubMed  Google Scholar 

  20. Chiaranai C. The lived experience of patients receiving hemodialysis treatment for end-stage renal disease: a qualitative study. JNR. 2016;24(2):101–8. https://doi.org/10.1097/jnr.0000000000000100.

    Article  PubMed  Google Scholar 

  21. Da Cruz VF, Tagliamento G, Wanderbroocke AC. The maintenance of work life by chronic kidney patients in hemodialysis treatment: an analysis of the meanings of work. Saude soc. 2016;25(4):1050–63. https://doi.org/10.1590/s0104-12902016155525.

    Article  Google Scholar 

  22. Torres LP, Vladislavovna S, Reyes H, Villa JP, Constantino P, Pérez R. Estudio de las necesidades de salud en atención primaria mediante el diagnóstico de salud de la familia. Aten Primaria. 2006;38(7):381–6.

    Article  Google Scholar 

  23. Stevens A, Gillam S. Needs assessment: from theory to practice. BMJ. 1998;316(7142):1448–52. https://doi.org/10.1136/bmj.316.7142.1448.

    Article  CAS  PubMed  PubMed Central  Google Scholar 

  24. Pereira J, Boada L, Peñaranda DG, Torrado Y. Diálisis y Hemodiálisis. Una Revisión Actual Según la Evidencia. Revista Argentina de Nefrología. 2017;15:3–19.

    Google Scholar 

  25. Strand H, Parker D. Effects of multidisciplinary models of care for adult pre-dialysis patients with chronic kidney disease: a systematic review. International Journal of Evidence-Based Healthcare. 2012;10(1):53–9.

    Article  PubMed  Google Scholar 

  26. Huérfano D, Álvarez D, Arias E, Carreño S. Necesidades de personas en terapia de diálisis y sus cuidadores: revisión integrativa. Enferm nefrol. 2018;21(2):155–65.

    Google Scholar 

  27. Bailey PK, Hamilton AJ, Clissold RL, Inward CD, Caskey FJ, Ben-Shlomo Y, et al. Young adults' perspectives on living with kidney failure: a systematic review and thematic synthesis of qualitative studies. BMJ Open. 2018;8(1):e019926. https://doi.org/10.1136/bmjopen-2017-019926.

    Article  PubMed  PubMed Central  Google Scholar 

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Author information

Authors and Affiliations

  1. Universidad Nacional de Colombia, Bogotá, Colombia

    Francy Cantor-Cruz, Johana Cruz-Benavides, Angela María Henao-Castaño & Olga Janneth Gómez-Ramirez

  2. Evaluation Group on Health Technologies and Policies (GETS Group), Bogotá, Colombia

    Francy Cantor-Cruz

  3. Institute of Clinical Research, Bogotá, Colombia

    Francy Cantor-Cruz

  4. Nursing Faculty, Bogotá, Colombia

    Angela María Henao-Castaño & Olga Janneth Gómez-Ramirez

Authors
  1. Francy Cantor-Cruz
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  2. Johana Cruz-Benavides
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  3. Angela María Henao-Castaño
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  4. Olga Janneth Gómez-Ramirez
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Contributions

FC and JB contributed to the research idea and design; search, extraction, and data analysis; and writing of the manuscript. AH and OG contributed to the research idea and design, and the critical review of the manuscript. All authors reviewed and approved the manuscript.

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Correspondence to Francy Cantor-Cruz.

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The authors declare that they have no conflict of interest.

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This research did not involve contact with human or animal participants since being a secondary study the data available in the literature were taken, so informed consent was not used.

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Not applicable.

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We certify that we have contributed with the scientific and intellectual material, data analysis, and writing of the manuscript, making us responsible for its content. We have not conferred any right or interest in the work to third parties. We also certify that all figures and illustrations accompanying this manuscript have not been digitally altered and accurately represent the reported facts. The authors transfer all rights, titles, and interests to this manuscript, as well as copyright in all forms and means known and to be known, to SN Comprehensive Clinical Medicine Journal.

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Cantor-Cruz, F., Cruz-Benavides, J., Henao-Castaño, A.M. et al. Health Needs in Chronic Kidney Disease on Dialysis: a Qualitative Systematic Review. SN Compr. Clin. Med. 3, 117–135 (2021). https://doi.org/10.1007/s42399-020-00695-1

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  • DOI: https://doi.org/10.1007/s42399-020-00695-1

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